HIBA-Institutional Registry of Amyloidosis

Summary

1. Creating a population-based registry system Amyloidosis prospective epidemiological survey

* risk factors
* diagnosis
* prognosis
* treatment
* monitoring
* survival
2. Describe the occurrence of amyloidosis in the population of HIBA, Hospital Italiano de Buenos Aires.
3. Describe the characteristics of clinical presentation, evolution and predisposing factors of amyloidosis.

Conditions

• Amyloidosis

Sponsors & Collaborators

• Instituto Cardiovascular de Buenos Aires

  collaborator OTHER

• Austral University, Argentina

  collaborator OTHER

• Hospital de Alta Complejidad en Red

  collaborator OTHER

• Hospital de Clinicas José de San Martín

  collaborator OTHER

• HOSPITAL BRITANICO DE BUENOS AIRES

  collaborator OTHER

• Hospital Privado de Rosario

  collaborator UNKNOWN

• Centro de Educación Medica e Investigaciones Clínicas Norberto Quirno

  collaborator OTHER

• La Fundacion Favaloro para la Investigacion y la Docencia Medica

  collaborator OTHER

• Sanatorio Anchorena

  collaborator UNKNOWN

• Centro Médico Uruguayo, Uruguay

  collaborator UNKNOWN

• Clínica Foianini, Bolivia

  collaborator UNKNOWN

• Hospital Italiano de Buenos Aires

  lead OTHER

Principal Investigators

• María Lourdes Posadas-Martínez, MD · Hospital Italiano de Buenos Aires, Argentina

• Elsa Nucifora, MD · Hospital Italiano de Buenos Aires, Argentina

• Diego Hernan Giunta, MD · Hospital Italiano de Buenos Aires, Argentina

• Dorotea Fantl, MD · Hospital Italiano de Buenos Aires, Argentina

• Gustavo Greloni, MD · Hospital Italiano de Buenos Aires, Argentina

• Maria Adela Aguirre, MD · Hospital Italiano de Buenos Aires, Argentina

• Cesar Antonio Belziti, MD · Hospital Italiano de Buenos Aires, Argentina

• Patricia Sorroche · Hospital Italiano de Buenos Aires, Argentina

• Soledad Saez · Hospital Italiano de Buenos Aires, Argentina

• Erika Brulc, MD · Hospital Italiano de Buenos Aires, Argentina

• Diego Perez de Arenaza, MD · Hospital Italiano de Buenos Aires, Argentina

• Eugenia Villanueva, MD · Hospital Italiano de Buenos Aires, Argentina

• Marcelina Carretero, MD · Hospital Italiano de Buenos Aires, Argentina

• Carolina María Petit Cwirko, MD · Clinica Foianini, Santa Cruz, Bolivia

• Pablo Young, MD · Hospital Británico, Buenos Aires, Argentina

• Gisela Streitenberger, MD · Hospital de Alta Complejidad El Cruce Nestor Kirchner, Buenos Aires, Argentina

• Luciana Leon Cejas, MD · Hospital Británico, Buenos Aires, Argentina

• Veronica Volberg, MD · Hospital de Clínicas José de San Martin, Buenos Aires, Argentina

• Sergio Juan Baratta, MD · Hospital Austral, Buenos Aires, Argentina

• Juan Pablo Costabel, MD · Instituto cardiovascular Buenos Aires, Argentina

• Carlos Dumont Dunayevich, MD · Hospital Privado de Rosario, Santa Fe, Argentina

• Alejandro Quiroga, MD · Fundación Favaloro, Buenos Aires, Argentina

• Adrian Fernandez, MD · Fundación Favaloro, Buenos Aires, Argentina

• Josefina Parodi, MD · Anchorena, Buenos Aires, Argentina

• Franco Leoni, MD · Médica Uruguaya, Uruguay

• Eduardo Ortuño Campos, MD · Hospital Universitarios Austral, Buenos Aires, Argentina

• Jorge Thierer, MD · CEMIC, , Buenos Aires, Argentina

Eligibility

Min Age

18 Years

Sex

ALL

Healthy Volunteers

No

Timeline & Regulatory

Start

2011-04-30

Primary Completion

2030-01-31

Completion

2030-01-31

Countries

• Argentina