Representations of Transplantation in Patients and in Health Care Professionals

Summary

Main objective : This project aims to have a better understanding of the influence of representations of patients with mucoviscidosis, their assistants and their medical persons in the choice of patients to accept or not lung transplantation.

Specific objectives :

1. Identify the knowledge, representations, or feelings of patients which could constitute bridles or factors of motivation to use for transplantation.
2. Identify the knowledge, representations, or feelings of medical persons which could constitute bridles or factors of motivation to the "encouraging" proposal to patients of lung transplant.
3. Identify the knowledge, representations, or feelings of assistants which could constitute bridles or factors of motivation to the "encouragement" of lung transplantation at its close.
4. Identify the needs of patients, assistants and medical persons to successfully reduce these bridles to transplantation and increase the factors of motivation.
5. Compare the representations of patients, assistants and medical persons
6. Search representations associated with patients who refuse the transplantation and those who accept the transplantation

Conditions

• Cystic Fibrosis

Interventions

OTHER

Representations

1. A pre-test with 5 medical persons and 5 persons without mucoviscidosis will be realized to adjust the tools and place of the interview. 2. To collect analyzable data for 30 patients, 40 patients will be included in the study. A conceptual card will be associated to a semi-structured interviews to gather information.Two subgroups will be considered in th a analysis : * 1st sub-group : After the announcement of the transplant indication by the doctor and before the consultation in the transplant centre. * 2nd subgroup : After the consultation in the transplant centre but before the inscription on the waiting list. The analysis of conceptual cards in these two subgroups will permit to study the differences between the representations of patients before and after the consultation in the transplant centre. 3. Realize a 2nd interview on the same principle with all patients, 1 year after their lung transplantation.

Sponsors & Collaborators

• Nantes University Hospital

  lead OTHER

Principal Investigators

• Valérie DAVID, Doctor · Nantes University Hospital

• Raphaële NOVE-JOSSERAND, Doctor · Hospices Civils de Lyon

• Marc STERN, Profesor · Hôpital Foch

• Martine REYNAUD-GAUBERT, Profesor · CHU de Marseille

• Isabelle DURIEU, Doctor · Hospices Civils de Lyon

• Dominique HUBERT, Doctor · Hôpital Cochin

• Sophie RAMEL, Doctor · Centre de Perharidy - Roscoff

• RAVONINJATOVO, Doctor · CHU de Reims

• Magali DUPUY-GRASSET, Doctor · University Hospital, Limoges

• Céline MENETREY, Doctor · University Hospital, Limoges

• Chantal BELLEGUIC, Doctor · Rennes University Hospital

• Corina SANZIANA CORHUT, Doctor · Central Hospital, Nancy, France

• Benoît GODBERT, Doctor · Central Hospital, Nancy, France

• Françoise VARAIGNE, Doctor · CHU de Tours

• Isabelle PIN, Doctor · University Hospital, Grenoble

• Marie-Laure UFFREDI, Doctor · CH de Vannes

Eligibility

Min Age

18 Years

Sex

ALL

Healthy Volunteers

No

Timeline & Regulatory

Start

2009-06-30

Primary Completion

2012-12-31

Completion

2012-12-31

Countries

• France

Study Locations