Decision Making in Serious Pediatric Illness
NCT01163136 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 358
Last updated 2017-10-03
Summary
This study will look at a cohort of parents whose children are confronting life-threatening illnesses in intensive care, palliative care, and complex care settings, to test whether parents with higher levels of hopeful patterns of thinking are subsequently more likely a) to change the "level of care" order status of their child (as an important and demonstrable example of adapting goals); b) to reprioritize goals for the child when they are reassessed regarding goals ; and c) to report a higher degree of achieving self-defined 'good parent' attributes.
Conditions
- Parental Decision Making for Seriously Ill Children
Sponsors & Collaborators
-
National Institute of Nursing Research (NINR)
collaborator NIH -
Children's Hospital of Philadelphia
lead OTHER
Principal Investigators
-
Chris Feudtner, MD, PhD, MPH · Children's Hospital of Philadelphia
Eligibility
- Min Age
- 18 Years
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2010-07-31
- Primary Completion
- 2014-11-30
- Completion
- 2017-06-30
Countries
- United States
Study Locations
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