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NARCOMS Registry: A Multiple Sclerosis Registry

NCT01018537 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 50000

Last updated 2025-11-13

No results posted yet for this study

Summary

This project is based on the idea that we can learn about the complexities of MS by following disease and treatment patterns in a large group of people over several years. The information gathered is used for research only. Results are presented in summary form only. All details submitted by registry participants is strictly confidential.

To participate in NARCOMS complete the baseline enrollment survey online through www.narcoms.org (or directly using the following link: https://redcap.link/py2rnyyn) or you can request a mail-in survey be sent to you by emailing [email protected]. You will be asked to update your information, online or by mail, twice a year. Each update survey typically takes less than 20 minutes to complete.

There is no cost to participate. For your participation you are offered a free subscription to the NARCOMS quarterly magazine, NARCOMS Now. NARCOMS Now provides a reliable source of information about the latest in MS research and disease management. You can stop participating in the registry at any time.

You may also receive additional surveys or information on clinical trials. You are not obligated to participate and these additional studies will always come directly from NARCOMS. Your contact information will not be shared or sold to other parties.

Conditions

Sponsors & Collaborators

  • Consortium of Multiple Sclerosis Centers

    collaborator OTHER

  • University of Texas Southwestern Medical Center

    lead OTHER

Principal Investigators

  • Robert J. Fox, M.D. · Mellen Center for MS / Cleveland Clinic

  • Amber Salter, Ph.D. · University of Texas Southwestern Medical Center

  • Gary R Cutter, Ph.D. · University of Alabama at Birmingham

  • Ruth Ann Marrie, M.D., Ph.D. · Dalhousie University

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
1996-01-31
Primary Completion
2050-12-31
Completion
2050-12-31

Countries

  • United States

Study Locations

More Related Trials

Entities

Diseases

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT01018537 on ClinicalTrials.gov