Alzheimer's Family Research
NCT00878059 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 165
Last updated 2013-10-16
Summary
This is a research study about how family members make research participation decisions for a relative with Alzheimer's or a related dementia. The purpose of this study is to learn more about how proxies (the family member who makes decisions for that relative), would think through decisions about whether to enroll their relative in studies for not-yet-approved medications for Alzheimer's Disease. The long-term goal of the study is to improve the way researchers inform families about clinical research studies and opportunities for participation. This study is being sponsored by the National Institute on Aging.
Study participants will be interviewed by a research staff member about research enrollment decisions for their relative. A number of standardized questionnaires will be administered. There is only one visit required. The interview lasts about three hours. The investigators will try to make it as convenient as possible for your schedule.
This is a non-intervention study. UCSF CHR # H58055-31168-02 v.1 Date: 012709
Conditions
- Decision Making
Sponsors & Collaborators
-
National Institute on Aging (NIA)
collaborator NIH -
University of California, San Francisco
lead OTHER
Principal Investigators
-
Laura B Dunn, MD · University of California, San Francisco
Eligibility
- Min Age
- 18 Years
- Sex
- ALL
- Healthy Volunteers
- Yes
Timeline & Regulatory
- Start
- 2008-07-31
- Primary Completion
- 2011-12-31
- Completion
- 2011-12-31
Countries
- United States
Study Locations
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