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Palliative Care and Symptom Management for the Pediatric Oncology Patient

NCT00675467 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 13

Last updated 2016-04-08

No results posted yet for this study

Summary

The goal of this study is to learn about the communication, decision-making, symptom management, emotional adjustment, and spiritual needs of parents and pediatric patients treated at the Children's Cancer Hospital at M. D. Anderson (MCACC).

Primary Objectives:

1. Determine the palliative care service needs of pediatric cancer patients and their parents, including communication, decision-making, symptom management, emotional and spiritual support when receiving treatment for early cancer, treatment for advanced disease, and treatment in the end-of-life period.
2. Identify intra-group differences in the categories listed in Objective 1 for pediatric cancer patients receiving treatment (a) for early cancer, (b) for advanced disease, and (c) at end-of-life.

Secondary Objectives:

1\. Inform the development of a Pediatric Palliative Care Program at the Children's Cancer Hospital at The University of Texas M. D. Anderson Cancer Center (MCACC or MDACC) based on identified needs as determined by primary study aims 1 and 2.

Conditions

  • Pediatric Cancers

Interventions

BEHAVIORAL

Focus Group - Parent/Caregiver

A 1 1/2 hour group session with other parents/caregivers.

BEHAVIORAL

Focus Group - Pediatric Patient

A 1 1/2 hour group session with other pediatric patients.

Sponsors & Collaborators

  • M.D. Anderson Cancer Center

    lead OTHER

Principal Investigators

  • Rhonda Robert, PhD · M.D. Anderson Cancer Center

Eligibility

Min Age
10 Years
Max Age
18 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2008-04-30
Primary Completion
2016-04-30

Countries

  • United States

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT00675467 on ClinicalTrials.gov