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Retinoblastoma Survivor Study: Assessment of General Health and Quality of Life

NCT00639301 · Status: ACTIVE_NOT_RECRUITING · Type: OBSERVATIONAL · Enrollment: 473

Last updated 2026-02-02

No results posted yet for this study

Summary

The purpose of this study is to find out about the quality of life and health in a group of adults who had retinoblastoma when they were children. By quality of life, we mean how you are feeling about being satisfied with things in your life, including your physical health, your emotional health, and your ability to carry out daily activities. We hope that this information will help us provide better care to future children with retinoblastoma and better follow-up care for survivors of retinoblastoma.

Conditions

  • Retinoblastoma

Interventions

BEHAVIORAL

Questionnaires

The survey will be administered by mail or telephone interview, based upon the participant preference. The survey has been adapted from the 2008 questionnaire being administered through the CCSS (11); it has been supplemented with questions addressing areas of interest specific to the retinoblastoma survivor population (eg, validated instruments that assess visual impairment).

Sponsors & Collaborators

Principal Investigators

  • Danielle Novetsky Friedman, MD · Memorial Sloan Kettering Cancer Center

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2008-03-11
Primary Completion
2027-03-31
Completion
2027-03-31

Countries

  • United States

Study Locations

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Entities

Companies

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT00639301 on ClinicalTrials.gov