Clinical, Economic,and Psychosocial Burden of Thalassemia in Sohag

Summary

This study aims to assess the clinical, economic, and psychosocial burden of thalassemia among affected children in Sohag. Clinically, the study will evaluate disease severity, transfusion requirements, iron overload, complications, and treatment-related factors. Economically, it will estimate direct medical costs, including transfusions, medications, investigations, hospital visits, and other healthcare expenses, as well as indirect costs such as school/work absenteeism and caregiver burden. Psychosocial aspects will include assessment of quality of life, psychological well-being, social functioning, and the impact of the disease on patients and their families.

Conditions

• Thalassemia Particularly Transfusion Dependent Thalassemia

Sponsors & Collaborators

• Randa Elham Hamam

  lead OTHER

Eligibility

Min Age

2 Years

Max Age

18 Years

Sex

ALL

Healthy Volunteers

No

Timeline & Regulatory

Start

2026-08-31

Primary Completion

2027-06-30

Completion

2027-07-31