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The Appendix Cancer PMP Research Foundation Natural History Study/Patient Registry

NCT07769346 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 10000

Last updated 2026-08-17

No results posted yet for this study

Summary

ACPMP's first-ever patient-powered global patient registry/natural history study collects patient and caregiver information and data to fuel clinical trials and drive breakthroughs for appendix cancer and PMP. We've invested the time and resources to make our Registry regulatory grade. Our Registry operates under active, ongoing Institutional Review Board (IRB) oversight by independent ethicists. It is powered by NORD's IAMRARE®, an industry gold standard platform built to be consistent with FDA's best thinking on natural history studies.

Conditions

  • Appendix Cancer
  • Pseudomyxoma Peritonei

Sponsors & Collaborators

  • National Organization for Rare Disorders

    collaborator OTHER

  • Appendix Cancer Pseudomyxoma Peritonei Research Foundation

    lead OTHER

Principal Investigators

  • Deborah Shelton · ACPMP

  • Dr. Erin P. Ward, MD · University of Utah

Eligibility

Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2026-02-02
Primary Completion
2030-02-01
Completion
2030-02-01

Countries

  • United States

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT07769346 on ClinicalTrials.gov