Improving Outcomes for Juvenile Idiopathic Arthritis
NCT07659223 · Status: COMPLETED · Phase: NA · Type: INTERVENTIONAL · Enrollment: 116
Last updated 2026-06-22
Summary
Children and parents often experience uncertainty and stress when juvenile idiopathic arthritis (JIA) is first diagnosed, which creates a need for structured support. Juvenile Idiopathic Support Program (JASP-1) provide patient-and family centered support during the first year after diagnosis. However, little is known about how a support program like JASP-1 can influence outcomes. Therefore, this study aimed to longitudinally examine registry data from children who participated in JASP 1 and to compare the outcomes with registry data from a matched control group.
Conditions
- Juvenile Idiopahtic Arthritis
Interventions
- BEHAVIORAL
-
The intervention was a one year support program JASP-1
Seven structured visits with a patient-and family-centered approach was used in the JASP-1 program, in which children newly diagnosed with JIA and their parents were invited to participate in.
Sponsors & Collaborators
-
Karolinska University Hospital
collaborator OTHER - collaborator OTHER
-
Region Stockholm
lead OTHER_GOV
Study Design
- Allocation
- NON_RANDOMIZED
- Purpose
- SUPPORTIVE_CARE
- Masking
- NONE
- Model
- SINGLE_GROUP
Eligibility
- Min Age
- 0 Years
- Max Age
- 16 Years
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2019-08-15
- Primary Completion
- 2026-02-19
- Completion
- 2026-02-19
Countries
- Sweden
Study Locations
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