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Longitudinal Ulnar Deficit (ULNEER)

NCT07404514 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 28

Last updated 2026-08-24

No results posted yet for this study

Summary

The management of patients with longitudinal ulnar deficiency is a clinical challenge due to the rarity of this condition and the wide variety of its manifestations. In particular, there is no consensus in the literature on the indications for surgery.

The aim of this research is to improve understanding and management of this malformation by analyzing existing data from patient medical follow-up.

No new clinical evaluations or occupational therapy assessments will be performed specifically for this study.

The analysis will be based on previous medical and paramedical data (consultation reports, imaging, occupational therapy assessments, etc.) in order to better describe the functional evolution of patients and identify the decision-making criteria that guide surgical management.

Parents will also receive standardized questionnaires (PROMIS and ABILHAND-Kids-CP) to gather their perceptions of their child's quality of life and independence.

The results will be used to propose recommendations for a more consistent and multidisciplinary assessment of longitudinal ulnar deficit in the future.

Conditions

  • Ulnar Longitudinal Deficiency
  • Ulnar Hand Deformity

Sponsors & Collaborators

  • Hopitaux de Saint-Maurice

    lead OTHER

Eligibility

Min Age
3 Years
Max Age
18 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2026-02-12
Primary Completion
2026-05-30
Completion
2026-09-30

Countries

  • France

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT07404514 on ClinicalTrials.gov