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CuidAME: Longitudinal Data Collection From Patients With Spinal Muscular Atrophy in Spain

NCT07231549 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 1000

Last updated 2025-11-17

No results posted yet for this study

Summary

The goal of this observational study is to set up a longitudinal data collection study to perform a long-term follow-up of SMA patients in a real-world setting, and to standardise and homogenize the data collection process for SMA patient's data.

Treated and untreated patients will be followed based on the routine clinical practice schedule.

Conditions

Sponsors & Collaborators

  • Fundació Sant Joan de Déu

    lead OTHER

Principal Investigators

  • Andrés Nascimento · Hospital Sant Joan de Deu

  • Mónica Povedano Panadés · Hospital Universitari de Bellvitge

  • Francina Munell Casadesús · Hospital Universitari Vall d'Hebrón

  • Miguel Angel Fernández García Miguel Angel Fernández García · Hospital Universitario La Paz

  • Inmaculada Pitarch Castellano · Hospital Universitario La Fe

  • Juan Francisco Vázquez Costa · Hospital Universitario La Fe

  • Maria Grazia Cattinari · Fundación Atrofia Muscular Espinal

  • Rocío Calvo · Hospital Universitario Regional de Málaga

  • Eduardo Martínez Salcedo · Hospital Universitario Virgen de la Arrixaca

  • Antonio Moreno Escribano · Hospital Universitario Virgen de la Arrixaca

  • Julita Medina Cantillo · Hospital Sant Joan de Deu

Eligibility

Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2020-05-05
Primary Completion
2026-12-31
Completion
2026-12-31

Countries

  • Spain

Study Locations

More Related Trials

Entities

Diseases

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT07231549 on ClinicalTrials.gov