Clinical and Demographic Characteristics of Adult p Atients With NEurofibromatosis in RUSsia

MicroRNAs in Patients With Neurofibromatosis Type 1

NCT01595139 ·Status: COMPLETED

Transformation of Plexiform Neurofibromas to Malignant Peripheral Nerve Sheath Tumors in Neurofibromatosis Type 1

NCT02211768 ·Status: COMPLETED ·Phase: PHASE1

Study of Plexiform Neurofibromas in Neurofibromatosis Type 1

NCT00006435 ·Status: COMPLETED

Development of Patient-Reported Outcome Measures Assessing Tumor Visibility and Appearance Concerns in Neurofibromatosis Type 1: A Qualitative Study

NCT06880991 ·Status: RECRUITING

Relationship Between Psychosocial Factors, Health Literacy, Quality of Life and Satisfaction With Medical Visits in Adults With NF

NCT02435628 ·Status: COMPLETED

Reliability of Functional Outcome Measures in Neurofibromatosis 1

NCT02479360 ·Status: COMPLETED

Analysis of Peripheral Nerve Sheath Tumors (PNSTs) in Neurofibromatosis Type 1 (NF1) Patients

NCT01218139 ·Status: UNKNOWN

Analysis of NF2 Mutations in Radiation-Related Neural Tumors

NCT00340496 ·Status: COMPLETED

Neurofibromatosis (NF) Registry Portal

NCT01885767 ·Status: RECRUITING

NF2 Natural History Consortium

NCT00004483 ·Status: UNKNOWN

Observing People With Desmoid-Type Fibromatosis

NCT04281381 ·Status: RECRUITING

A Retrospective Study on Epidemiological Characteristics of Chinese NF1 Patients in Real World (PROMISE)

NCT06379230 ·Status: RECRUITING

Assessment of Eloquent Function in Brain Tumor Patients

NCT01535430 ·Status: RECRUITING

Intra-parotid Facial Nerve Tractography

NCT03950323 ·Status: UNKNOWN ·Phase: NA

Multiparametric Characterization of Orbital Tumors by MRI

NCT01884207 ·Status: COMPLETED

Systematically Assessing Changes in Plexiform Neurofibroma Related Disfigurement From Photographs of Subjects With Neurofibromatosis Type 1 on a Phase 2 Clinical Trial

NCT04879160 ·Status: COMPLETED

A Long-term Study of NPC-12G Gel in Neurofibromatosis Type I

NCT04461886 ·Status: TERMINATED ·Phase: PHASE3

Multi-Institutional Registry for Malignant Peripheral Nerve Sheath Tumors

NCT03141021 ·Status: RECRUITING

A Pilot Study Evaluating the Use of mTor Inhibitor Sirolimus in Children and Young Adults With Desmoid-Type Fibromatosis

NCT01265030 ·Status: COMPLETED ·Phase: PHASE1/PHASE2

Natural History and Biology of Skin Neurofibromas in Neurofibromatosis Type 1

NCT00314119 ·Status: COMPLETED

Screening With Whole Body MRI For Detection Of Primary Tumors In Children And Adults With Li-Fraumeni Syndrome (LFS) And Other Cancer Predisposition Syndromes

NCT02950987 ·Status: ACTIVE_NOT_RECRUITING ·Phase: NA

FCN-159 in Adult Patients With Symptomatic, Inoperable Neurofibromatosis Type 1-Related Plexiform Neurofibromas

NCT05913037 ·Status: ACTIVE_NOT_RECRUITING ·Phase: PHASE3

Effect of Implant Position on Magnetic Resonance Image Distortion

NCT02246231 ·Status: COMPLETED ·Phase: NA

European Registry for Myeloproliferative Neoplasms (MPNs) - Update of ERNEST Study

NCT04153305 ·Status: COMPLETED

Reliability of Functional Outcome Measures in Neurofibromatosis 2

NCT03617276 ·Status: COMPLETED