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Rare AutoImmune SElf-management Programme Development

NCT06642870 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 360

Last updated 2024-10-15

No results posted yet for this study

Summary

The rare autoimmune rheumatic diseases (RAIRDs) are life-long multi-system diseases that are life or organ threatening. RAIRDs can impair quality of life similar to chronic diseases such as heart failure. The aim of the study is to explore content and structure of a support programme for people with RAIRDs in focus groups and survey meetings.

Conditions

  • Systemic Lupus Erthematosus
  • Systemic Vasculitis
  • Inflammatory Myositis
  • Systemic Sclerosis (SSc)
  • ANCA Associated Vasculitis (AAV)
  • Sjogren Syndrome

Interventions

OTHER

Non-interventional study

The study will consist of focus groups and a large scale patient survey

Sponsors & Collaborators

  • University of Leeds

    collaborator OTHER

  • University of the West of England

    lead OTHER

Principal Investigators

  • Joanna Robson · University of the West of England

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2024-10-31
Primary Completion
2025-10-31
Completion
2026-04-30

Countries

  • United Kingdom

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT06642870 on ClinicalTrials.gov