MedTrace Logo

Myasthenia Gravis Foundation of America Global MG Patient Registry

NCT06617741 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 3800

Last updated 2024-09-27

No results posted yet for this study

Summary

The goal of this observational study is to learn about the experiences of people living with Myasthenia Gravis (MG) in the United States. The main questions it aims to answer are:

* How and when are people with MG diagnosed?
* What are the most common symptoms associated with MG?
* What treatments are being used to treat MG?
* What are the impacts of MG on activities of daily living, employment and quality of life?
* What are the experiences with exacerbation, hospitalization and healthcare access for people with MG? Participants will answer a survey to enroll in the study, and be invited to fill out an update survey twice a year.

Conditions

  • Myasthaenia Gravis
  • Myasthenia
  • Myasthenia Gravis Associated with Thymoma
  • Myasthenia Gravis Crisis
  • Myasthenia Gravis Exacerbations
  • Myasthenia Gravis Generalised
  • Myasthenia Gravis with Exacerbation (Disorder)
  • Myasthenia Gravis, Adult Form
  • Myasthenia Gravis, Generalized
  • Myasthenia Gravis, Ocular
  • Myasthenia Gravis, Thymectomy
  • Myasthenia Gravis
  • Myasthenia Gravis, MuSK

Sponsors & Collaborators

  • Alira Health

    collaborator OTHER

  • Myasthenia Gravis Foundation of America

    lead OTHER

Principal Investigators

  • Patient Registry PI · Yale University

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2013-10-12
Primary Completion
2029-09-19
Completion
2029-09-19

Countries

  • United States

Study Locations

More Related Trials

Entities

Diseases

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT06617741 on ClinicalTrials.gov