Trial Outcomes & Findings for Decreasing Alzheimer's Risk Through oNline Choreographed Exercise - Down Syndrome (NCT NCT06537648)

NCT ID: NCT06537648

Last Updated: 2026-03-13

Results Overview

Attendance at each 35-minute online exercise classes will be collected. Attendance will be assessed as the number of sessions attended out of the total number of sessions available (24 sessions available).

Recruitment status

COMPLETED

Study phase

NA

Target enrollment

20 participants

Primary outcome timeframe

12 weeks

Results posted on

2026-03-13

Participant Flow

Adults with DS were recruited to participate in a 12-week exercise intervention with two dance-based exercise sessions per week. Participants were recruited in two cohorts, with the goal of 10 participants per cohort. Cohorts were limited to 10 people to ensure the exercise instructor could safely observe all participants at the same time. Participants were recruited using flyers and emails to past research participants and through community partnerships.

All 20 participants who consented to participate in the program enrolled in the intervention. All enrolled participants were assigned to the single treatment arm. No participants were excluded between enrollment and assignment

Participant milestones

Participant milestones
Measure
Decreasing Alzheimer's Risk Through oNline Choreographed Exercise - Down Syndrome
Participants will be asked to attend 35 minute, remotely delivered, group exercise classes using choreographed exercise twice a week for 12 weeks.
Overall Study
STARTED
20
Overall Study
COMPLETED
20
Overall Study
NOT COMPLETED
0

Reasons for withdrawal

Withdrawal data not reported

Baseline Characteristics

Decreasing Alzheimer's Risk Through oNline Choreographed Exercise - Down Syndrome

Baseline characteristics by cohort

Baseline characteristics by cohort
Measure
Decreasing Alzheimer's Risk Through oNline Choreographed Exercise - Down Syndrome
n=20 Participants
Participants will be asked to attend 35 minute, remotely delivered, group exercise classes using choreographed exercise twice a week for 12 weeks.
Age, Continuous
28.3 years
STANDARD_DEVIATION 8.0 • n=41 Participants
Sex: Female, Male
Female
14 Participants
n=41 Participants
Sex: Female, Male
Male
6 Participants
n=41 Participants
Race (NIH/OMB)
American Indian or Alaska Native
0 Participants
n=41 Participants
Race (NIH/OMB)
Asian
1 Participants
n=41 Participants
Race (NIH/OMB)
Native Hawaiian or Other Pacific Islander
0 Participants
n=41 Participants
Race (NIH/OMB)
Black or African American
1 Participants
n=41 Participants
Race (NIH/OMB)
White
16 Participants
n=41 Participants
Race (NIH/OMB)
More than one race
2 Participants
n=41 Participants
Race (NIH/OMB)
Unknown or Not Reported
0 Participants
n=41 Participants
Ethnicity (NIH/OMB)
Hispanic or Latino
2 Participants
n=41 Participants
Ethnicity (NIH/OMB)
Not Hispanic or Latino
18 Participants
n=41 Participants
Ethnicity (NIH/OMB)
Unknown or Not Reported
0 Participants
n=41 Participants
Level of Support Needs
Mild
13 Participants
n=41 Participants
Level of Support Needs
Moderate
7 Participants
n=41 Participants

PRIMARY outcome

Timeframe: 12 weeks

Population: All 20 participants enrolled were included in the analysis for attendance.

Attendance at each 35-minute online exercise classes will be collected. Attendance will be assessed as the number of sessions attended out of the total number of sessions available (24 sessions available).

Outcome measures

Outcome measures
Measure
Decreasing Alzheimer's Risk Through oNline Choreographed Exercise - Down Syndrome
n=20 Participants
Participants will be asked to play attend 35 minute, remotely delivered, group exercise classes using choreographed exercise twice a week for 12 weeks.
Attendance
21.7 Number of Classes Attended
Interval 16.0 to 24.0

PRIMARY outcome

Timeframe: 12 weeks

Population: All enrolled participants were assigned to the single treatment arm and were included in the analysis for retention.

Participant retention will be collected based on the number of participants who complete the 12 week intervention. A total of up to 20 participants will be enrolled into the study. Participants that complete the 12-week intervention will be considered retained. Any participant that discontinues participation prior to the end of the 12-week intervention will not be considered retained.

Outcome measures

Outcome measures
Measure
Decreasing Alzheimer's Risk Through oNline Choreographed Exercise - Down Syndrome
n=20 Participants
Participants will be asked to play attend 35 minute, remotely delivered, group exercise classes using choreographed exercise twice a week for 12 weeks.
Retention
20 Participants

PRIMARY outcome

Timeframe: 12 weeks

Population: All enrolled participants were assigned to the single treatment arm and were included when totaling number and types of adverse events.

Adverse events will be collected on a weekly basis.

Outcome measures

Outcome measures
Measure
Decreasing Alzheimer's Risk Through oNline Choreographed Exercise - Down Syndrome
n=20 Participants
Participants will be asked to play attend 35 minute, remotely delivered, group exercise classes using choreographed exercise twice a week for 12 weeks.
Adverse Events
Moderate
1 Event Type
Adverse Events
Mild
3 Event Type

SECONDARY outcome

Timeframe: 1 session

Population: Out of the 20 participants enrolled, 16 were able to complete the energy expenditure assessment. Two attempted the assessment but were unable to complete the assessment per the protocol, and two were unable to be scheduled due to scheduling conflicts.

Energy expenditure during a dance session (kilocalories per minute; Metabolic equivalents (METs) will be assessed by portable indirect calorimetry. Measurement was taken during one class session per participant, between weeks 4-12 of the 12 week intervention.

Outcome measures

Outcome measures
Measure
Decreasing Alzheimer's Risk Through oNline Choreographed Exercise - Down Syndrome
n=16 Participants
Participants will be asked to play attend 35 minute, remotely delivered, group exercise classes using choreographed exercise twice a week for 12 weeks.
Energy Expenditure
4.8 Metabolic Equivalents of Task
Standard Deviation 1.0

SECONDARY outcome

Timeframe: 12 weeks

Population: Of the 20 participants enrolled, only 16 were able to complete the assessment of exercise intensity. Two were unable to complete the study protocol as described due to non-compliance with the mask and two were unable to be scheduled to to schedule conflicts.

Exercise intensity will be assessed as an average of the percent of age-estimated maximal heart rate achieved during dance sessions assessed time spent in moderate to vigorous intensity as defined by the COSMED device.

Outcome measures

Outcome measures
Measure
Decreasing Alzheimer's Risk Through oNline Choreographed Exercise - Down Syndrome
n=16 Participants
Participants will be asked to play attend 35 minute, remotely delivered, group exercise classes using choreographed exercise twice a week for 12 weeks.
Exercise Intensity
90.1 Percent of class in moderate-to-vigorous
Interval 31.3 to 100.0

Adverse Events

Decreasing Alzheimer's Risk Through oNline Choreographed Exercise - Down Syndrome

Serious events: 0 serious events
Other events: 4 other events
Deaths: 0 deaths

Serious adverse events

Adverse event data not reported

Other adverse events

Other adverse events
Measure
Decreasing Alzheimer's Risk Through oNline Choreographed Exercise - Down Syndrome
n=20 participants at risk
Participants will be asked to attend 35 minute, remotely delivered, group exercise classes using choreographed exercise twice a week for 12 weeks.
Infections and infestations
Respiratory illness (common cold)
5.0%
1/20 • From enrollment to end of intervention, 12 weeks.
Safety was assessed via the number and type of adverse events during the intervention in accordance with the National Institute on Aging guidelines. This included the severity of the event (mild, moderate, severe), relatedness to intervention (not related, possibly related, definitely related) and if it was considered a Serious Adverse Event (resulting in death, hospitalization, medical event, or disability) .
Injury, poisoning and procedural complications
Foot pain from long walk earlier in day
5.0%
1/20 • From enrollment to end of intervention, 12 weeks.
Safety was assessed via the number and type of adverse events during the intervention in accordance with the National Institute on Aging guidelines. This included the severity of the event (mild, moderate, severe), relatedness to intervention (not related, possibly related, definitely related) and if it was considered a Serious Adverse Event (resulting in death, hospitalization, medical event, or disability) .
Injury, poisoning and procedural complications
Back pain from previous injury
5.0%
1/20 • From enrollment to end of intervention, 12 weeks.
Safety was assessed via the number and type of adverse events during the intervention in accordance with the National Institute on Aging guidelines. This included the severity of the event (mild, moderate, severe), relatedness to intervention (not related, possibly related, definitely related) and if it was considered a Serious Adverse Event (resulting in death, hospitalization, medical event, or disability) .
Injury, poisoning and procedural complications
Knee pain from sporting event
5.0%
1/20 • From enrollment to end of intervention, 12 weeks.
Safety was assessed via the number and type of adverse events during the intervention in accordance with the National Institute on Aging guidelines. This included the severity of the event (mild, moderate, severe), relatedness to intervention (not related, possibly related, definitely related) and if it was considered a Serious Adverse Event (resulting in death, hospitalization, medical event, or disability) .

Additional Information

Julianne G. Clina

University of Kansas Medical Center

Phone: 913-588-7982

Results disclosure agreements

  • Principal investigator is a sponsor employee
  • Publication restrictions are in place