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The International PNH Interest Group PNH Registry

NCT06524726 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 2000

Last updated 2024-07-29

No results posted yet for this study

Summary

The aim of this International PNH Interest Group (IPIG) registry is to develop an international database to prospectively collect data on patients with PNH covering clinical outcomes, patient reported outcomes (PROs), and health-resource utilization (HRU) on all enrolled patients, as well as long term safety data.

Conditions

Sponsors & Collaborators

  • International PNH Interest Group

    lead OTHER

Principal Investigators

  • Richard Kelly, MBChB PhD · International PNH Interest Group

  • Jeff Szer, MB BS FRACP · International PNH Interest Group

Eligibility

Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2024-05-10
Primary Completion
2029-05-10
Completion
2029-05-10

Countries

  • United States

Study Locations

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Entities

Diseases

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT06524726 on ClinicalTrials.gov