Analysis of COMPASsion and Humanisation of Adolescents Facing the End-of-life Processes.

Summary

The investigators want to work on compassion, understood as the recognition of the suffering of others that motivates us to try to alleviate it. The goal of this Multicenter project, with a mixed sequential transformative methodology, is to analyze the impact of a participatory process of awareness and reflection on compassion, in the face of end-of-life processes, in adolescents aged 12-23 years in 6 Spanish provinces, and to understand how the participatory process can transform and improve their compassion.

As the adolescents must be the protagonists of change, the study will be conducted with students enrolled in one public secondary school and in one degree in a public University, that belongs to the same "health area" in each province. The investigators also include families' and teachers' knowledge of the context because it can support the interventions of change proposals.

Compassion will be assessed using the Compassion for the Lives of Others Scale (COOLS), comprising 26 items. Similarly, adolescents' attitudes toward death are another important concept and will be explored through the Death Anxiety Scale (DAS), which has 15 questions. Both scales will be distributed to the adolescents, requesting their permission anonymously.

After the survey, a second phase will start with a Participatory Action Research (PAR) with different activities. The objective is to generate awareness of the need to improve it, allowing the participants to design the interventions, based on evidence-based proposals (cinema forum, colloquiums with testimonies of volunteers accompanying palliative patients, organization of Death Cafe, artistic and literary activities, generation of grief groups, etc.).

At the end of the project, the investigators will evaluate the adolescent compassion level and create discussion groups again to understand the impact of the interventions.

With this project, the investigators will empower new generations of people to encourage, facilitate, support, and celebrate mutual care and family and community development in end-of-life processes. The translation and implications of the results for clinical practice will contribute to reducing inequalities in health research in a vulnerable group of special interest, especially when treatments can do nothing for their survival but with interventions such as those in this study, the investigators can ensure quality and dignity of life as long as there is life.

Conditions

• Compassion
• Death Anxiety
• Adolescent Behavior

Interventions

OTHER

questionnaire

COOL Scale and DAS

OTHER

Discussion group

Through discussion groups with students in secondary schools and university separately, a compassionate plan will be designed

OTHER

Reflective diary

Students can modify the interventions adapting them to their requirements to get the compassion needed for those in need.

Sponsors & Collaborators

• Instituto de Salud Carlos III

  lead OTHER_GOV

Principal Investigators

• Eva Abad-Corpa, PhD · Instituto Murciano de Investigación Biosanitaria

Eligibility

Min Age

12 Years

Max Age

23 Years

Sex

ALL

Healthy Volunteers

Yes

Timeline & Regulatory

Start

2024-09-01

Primary Completion

2026-12-31

Completion

2026-12-31

Countries

• Spain

Study Locations