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Burden of Disease and Living Situation in Desmoid Patients

NCT06258421 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 100

Last updated 2025-08-24

No results posted yet for this study

Summary

The main aim of the study is to assess the situation and quality of life of desmoid patients. Impaired areas of quality of life and the associated factors are to be identified. The survey is planned as a cross-sectional study (patient survey).

Prevalent and incident desmoid patients will be identified at the University Hospital Mannheim and checked for eligibility. Quality of life and patient-reported data are collected by means of written questionnaires. Medical data is collected from patient files in the clinics. The aim is to include 100 patients. Descriptive analyses of the variables collected and regression models are planned as statistical analysis.

Conditions

  • Desmoid Tumor
  • Quality of Life

Interventions

OTHER

No Intervention

Observatory Study

Sponsors & Collaborators

  • SOS Desmoid e.V.

    collaborator UNKNOWN

  • Universitätsmedizin Mannheim

    collaborator OTHER

  • Technische Universität Dresden

    lead OTHER

Principal Investigators

  • Martin Eichler, Dr., M.Sc. / PHD · Universitätsklinikum Carl-Gustav-Carus Dresden

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2023-10-01
Primary Completion
2024-08-31
Completion
2024-09-01

Countries

  • Germany

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT06258421 on ClinicalTrials.gov