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Histiocytic Disorder Follow-up Study

NCT05915208 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 6000

Last updated 2025-06-11

No results posted yet for this study

Summary

The purpose of the study is to describe the burden of chronic health conditions, psychological dysfunction, chronic pain, healthcare utilization, worse health-related quality of life, overall mortality, and cause-specific mortality among individuals with histiocytic disorders

Conditions

  • Histiocytosis
  • Langerhans Cell Histiocytosis
  • Erdheim-Chester Disease
  • Rosai Dorfman Disease
  • Xanthogranuloma
  • Malignant Histiocytoses

Sponsors & Collaborators

  • University of Alabama at Birmingham

    lead OTHER

Principal Investigators

  • Gaurav Goyal, MD · University of Alabama at Birmingham

Eligibility

Min Age
0 Years
Max Age
89 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2022-09-01
Primary Completion
2027-07-31
Completion
2028-12-31

Countries

  • United States

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT05915208 on ClinicalTrials.gov