Trial Outcomes & Findings for COVID19 OutcomeS in Myeloma and the Impact of VaCcines (NCT NCT05831787)

NCT ID: NCT05831787

Last Updated: 2026-05-18

Results Overview

Proportion of consented participants who provide responses for the PRO instruments \& proportion of participants who permission access to clinical data through the EHR.

Recruitment status

COMPLETED

Target enrollment

201 participants

Primary outcome timeframe

At Baseline

Results posted on

2026-05-18

Participant Flow

The enrollment goal was 200 patients; however, an additional patient electronically consented after the enrollment goal was met prior to the study platform being deactivated. The additional patient did not complete any study activities, and the IRB was notified.

Participant milestones

Participant milestones
Measure
Diagnosis of Multiple Myeloma and Currently Receiving Active Treatment for Any Phase of the Disease
Diagnosis of multiple myeloma must meet the International Myeloma Working Group criteria. Patient Reported Outcomes: Patients will be asked to complete baseline, 30-day, and 6-month clinical and patient reported outcome health surveys.
Baseline
STARTED
201
Baseline
COMPLETED
196
Baseline
NOT COMPLETED
5
Month 1
STARTED
196
Month 1
COMPLETED
162
Month 1
NOT COMPLETED
34
Month 6
STARTED
162
Month 6
COMPLETED
159
Month 6
NOT COMPLETED
3

Reasons for withdrawal

Withdrawal data not reported

Baseline Characteristics

COVID19 OutcomeS in Myeloma and the Impact of VaCcines

Baseline characteristics by cohort

Baseline characteristics by cohort
Measure
Diagnosis of Multiple Myeloma and Currently Receiving Active Treatment for Any Phase of the Disease
n=196 Participants
Diagnosis of multiple myeloma must meet the International Myeloma Working Group criteria. Patient Reported Outcomes: Patients will be asked to complete baseline, 30-day, and 6-month clinical and patient reported outcome health surveys.
Age, Categorical
<=18 years
0 Participants
n=11 Participants
Age, Categorical
Between 18 and 65 years
76 Participants
n=11 Participants
Age, Categorical
>=65 years
120 Participants
n=11 Participants
Age, Continuous
66.1 years
STANDARD_DEVIATION 10.21 • n=11 Participants
Sex: Female, Male
Female
90 Participants
n=11 Participants
Sex: Female, Male
Male
106 Participants
n=11 Participants
Race/Ethnicity, Customized
Race/Ethnicity · Non-Hispanic, White
143 Participants
n=11 Participants
Race/Ethnicity, Customized
Race/Ethnicity · Non-Hispanic, Black
34 Participants
n=11 Participants
Race/Ethnicity, Customized
Race/Ethnicity · Hispanic or Latina/Latino
15 Participants
n=11 Participants
Race/Ethnicity, Customized
Race/Ethnicity · Other
4 Participants
n=11 Participants
Region of Enrollment
United States
196 participants
n=11 Participants

PRIMARY outcome

Timeframe: At Baseline

Proportion of consented participants who provide responses for the PRO instruments \& proportion of participants who permission access to clinical data through the EHR.

Outcome measures

Outcome measures
Measure
Diagnosis of Multiple Myeloma and Currently Receiving Active Treatment for Any Phase of the Disease
n=200 Participants
Diagnosis of multiple myeloma must meet the International Myeloma Working Group criteria. Patient Reported Outcomes: Patients will be asked to complete baseline, 30-day, and 6-month clinical and patient reported outcome health surveys.
Feasibility of Obtaining Baseline Clinical and PRO Data Capture From 200 Consented Patients.
196 Participants

PRIMARY outcome

Timeframe: 30 days after enrollment

Population: The total enrollment for the study was 201 patients. Although the initial enrollment goal was 200 patients, an additional participant consented before the study was closed to enrollment. However, this participant did not complete any study procedures

Proportion of consented participants who provide responses for the PRO instruments \& proportion of participants who permission access to clinical data through the EHR.

Outcome measures

Outcome measures
Measure
Diagnosis of Multiple Myeloma and Currently Receiving Active Treatment for Any Phase of the Disease
n=200 Participants
Diagnosis of multiple myeloma must meet the International Myeloma Working Group criteria. Patient Reported Outcomes: Patients will be asked to complete baseline, 30-day, and 6-month clinical and patient reported outcome health surveys.
Feasibility of Obtaining 30-day Clinical and PRO Data Capture From 200 Consented Patients.
162 Participants

PRIMARY outcome

Timeframe: 6 months after enrollment

Population: The total enrollment for the study was 201 patients. Although the initial enrollment goal was 200 patients, an additional participant consented before the study was closed to enrollment. However, this participant did not complete any study procedures

proportion of consented participants who provide responses for the PRO instruments \& proportion of participants who permission access to clinical data through the EHR.

Outcome measures

Outcome measures
Measure
Diagnosis of Multiple Myeloma and Currently Receiving Active Treatment for Any Phase of the Disease
n=200 Participants
Diagnosis of multiple myeloma must meet the International Myeloma Working Group criteria. Patient Reported Outcomes: Patients will be asked to complete baseline, 30-day, and 6-month clinical and patient reported outcome health surveys.
Feasibility of Obtaining 6-month Clinical and PRO Data Capture From 200 Consented Patients.
159 Participants

SECONDARY outcome

Timeframe: At Baseline

Population: The total enrollment for the study was 201 patients. Although the initial enrollment goal was 200 patients, an additional participant consented before the study was closed to enrollment. However, this participant did not complete any study procedures. Four additional patients either withdrew or did not provide a response for this data variable.

Percent of patients who enroll on the study platform who had previously received a SARS-CoV-2 booster

Outcome measures

Outcome measures
Measure
Diagnosis of Multiple Myeloma and Currently Receiving Active Treatment for Any Phase of the Disease
n=196 Participants
Diagnosis of multiple myeloma must meet the International Myeloma Working Group criteria. Patient Reported Outcomes: Patients will be asked to complete baseline, 30-day, and 6-month clinical and patient reported outcome health surveys.
COVID Vaccine Prevalence
186 Participants

SECONDARY outcome

Timeframe: 30 Days after enrollment

Population: The total enrollment for the study was 201 patients. Although the initial enrollment goal was 200 patients, an additional participant consented before the study was closed to enrollment. However, this participant did not complete any study procedures. Four additional patients either withdrew or did not provide a response for this data variable.

Percent of patients who enroll on the study platform who went on to receive a SARS-CoV-2 booster at 1 month follow up visit

Outcome measures

Outcome measures
Measure
Diagnosis of Multiple Myeloma and Currently Receiving Active Treatment for Any Phase of the Disease
n=196 Participants
Diagnosis of multiple myeloma must meet the International Myeloma Working Group criteria. Patient Reported Outcomes: Patients will be asked to complete baseline, 30-day, and 6-month clinical and patient reported outcome health surveys.
COVID Booster Incidence
18 Participants

SECONDARY outcome

Timeframe: During 6 month study period

Population: The total enrollment for the study was 201 patients. Although the initial enrollment goal was 200 patients, an additional participant consented before the study was closed to enrollment. However, this participant did not complete any study procedures. Four additional patients either withdrew or did not provide a response for this data variable.

Among participants providing PROs, percentage for whom PROs were viewed by site personnel

Outcome measures

Outcome measures
Measure
Diagnosis of Multiple Myeloma and Currently Receiving Active Treatment for Any Phase of the Disease
n=196 Participants
Diagnosis of multiple myeloma must meet the International Myeloma Working Group criteria. Patient Reported Outcomes: Patients will be asked to complete baseline, 30-day, and 6-month clinical and patient reported outcome health surveys.
PRO Review
196 Participants

SECONDARY outcome

Timeframe: At Baseline

Population: The total enrollment for the study was 201 patients. Although the initial enrollment goal was 200 patients, an additional participant consented before the study was closed to enrollment. However, this participant did not complete any study procedures. Four additional patients either withdrew or did not provide a response for this data variable.

Percentage of participants reporting COVID-19 infection confirmed by home-based or other testing

Outcome measures

Outcome measures
Measure
Diagnosis of Multiple Myeloma and Currently Receiving Active Treatment for Any Phase of the Disease
n=196 Participants
Diagnosis of multiple myeloma must meet the International Myeloma Working Group criteria. Patient Reported Outcomes: Patients will be asked to complete baseline, 30-day, and 6-month clinical and patient reported outcome health surveys.
COVID-19 Infection Baseline
111 Participants

SECONDARY outcome

Timeframe: During 6 month study period

Population: The total enrollment for the study was 201 patients. Although the initial enrollment goal was 200 patients, an additional participant consented before the study was closed to enrollment. However, this participant did not complete any study procedures. Four additional patients either withdrew or did not provide a response for this data variable.

Percentage of participants reporting COVID-19 infection confirmed by home-based or other testing

Outcome measures

Outcome measures
Measure
Diagnosis of Multiple Myeloma and Currently Receiving Active Treatment for Any Phase of the Disease
n=196 Participants
Diagnosis of multiple myeloma must meet the International Myeloma Working Group criteria. Patient Reported Outcomes: Patients will be asked to complete baseline, 30-day, and 6-month clinical and patient reported outcome health surveys.
COVID-19 Infection on Study
18 Participants

SECONDARY outcome

Timeframe: At Baseline

Population: The total enrollment for the study was 201 patients. Although the initial enrollment goal was 200 patients, an additional participant consented before the study was closed to enrollment. However, this participant did not complete any study procedures. Four additional patients either withdrew or did not provide a response for this data variable.

Patient reported outcomes related to confirmed COVID-19 infection. COVID-19-related outcomes were assessed through a decentralized approach using patient-reported data collected via study questionnaires. Outcomes included participant-reported COVID-19 infection and related clinical events (e.g., hospitalization).

Outcome measures

Outcome measures
Measure
Diagnosis of Multiple Myeloma and Currently Receiving Active Treatment for Any Phase of the Disease
n=196 Participants
Diagnosis of multiple myeloma must meet the International Myeloma Working Group criteria. Patient Reported Outcomes: Patients will be asked to complete baseline, 30-day, and 6-month clinical and patient reported outcome health surveys.
Patient Reported COVID 19 Related Outcomes at Baseline
0 Participants

SECONDARY outcome

Timeframe: During 6 month study period

Population: The total enrollment for the study was 201 patients. Although the initial enrollment goal was 200 patients, an additional participant consented before the study was closed to enrollment. However, this participant did not complete any study procedures. Four additional patients either withdrew or did not provide a response for this data variable.

Patient reported outcomes related to confirmed COVID-19 infection. COVID-19-related outcomes were assessed through a decentralized approach using patient-reported data collected via study questionnaires. Outcomes included participant-reported COVID-19 infection and related clinical events (e.g., hospitalization).

Outcome measures

Outcome measures
Measure
Diagnosis of Multiple Myeloma and Currently Receiving Active Treatment for Any Phase of the Disease
n=196 Participants
Diagnosis of multiple myeloma must meet the International Myeloma Working Group criteria. Patient Reported Outcomes: Patients will be asked to complete baseline, 30-day, and 6-month clinical and patient reported outcome health surveys.
Patient Reported COVID 19 Related Outcomes on Study
0 Participants

SECONDARY outcome

Timeframe: At Baseline

Population: Among the enrolled participants, 79 consented to share their electronic health record (EHR) data. Participation in EHR data sharing was optional and not a requirement of the study.

Hospitalization related to COVID-19 was ascertained through electronic health record (EHR) data obtained with participant permission. COVID-19-related outcomes included COVID-19 infection and associated clinical events (e.g., hospitalization), as documented in the EHR.

Outcome measures

Outcome measures
Measure
Diagnosis of Multiple Myeloma and Currently Receiving Active Treatment for Any Phase of the Disease
n=79 Participants
Diagnosis of multiple myeloma must meet the International Myeloma Working Group criteria. Patient Reported Outcomes: Patients will be asked to complete baseline, 30-day, and 6-month clinical and patient reported outcome health surveys.
EHR COVID 19 Related Outcomes Baseline
0 Participants

SECONDARY outcome

Timeframe: During 6 month study period

Population: Among the enrolled participants, 79 consented to share their electronic health record (EHR) data. Participation in EHR data sharing was optional and not a requirement of the study.

Hospitalization related to COVID-19 was ascertained through electronic health record (EHR) data obtained with participant permission. COVID-19-related outcomes included COVID-19 infection and associated clinical events (e.g., hospitalization), as documented in the EHR.

Outcome measures

Outcome measures
Measure
Diagnosis of Multiple Myeloma and Currently Receiving Active Treatment for Any Phase of the Disease
n=79 Participants
Diagnosis of multiple myeloma must meet the International Myeloma Working Group criteria. Patient Reported Outcomes: Patients will be asked to complete baseline, 30-day, and 6-month clinical and patient reported outcome health surveys.
EHR COVID 19 Related Outcomes on Study
12 Participants

SECONDARY outcome

Timeframe: 6 months after enrollment

Population: The total enrollment for the study was 201 patients. Although the initial enrollment goal was 200 patients, an additional participant consented before the study was closed to enrollment. However, this participant did not complete any study procedures. Four additional patients either withdrew or did not provide a response for this data variable.

Percent of patients who enrolled on the study platform and subsequently received a SARS-CoV-2 booster by the 6-month follow-up visit. Booster vaccination status was assessed using a combination of patient-reported data collected through the study platform and available electronic health record (EHR) data

Outcome measures

Outcome measures
Measure
Diagnosis of Multiple Myeloma and Currently Receiving Active Treatment for Any Phase of the Disease
n=196 Participants
Diagnosis of multiple myeloma must meet the International Myeloma Working Group criteria. Patient Reported Outcomes: Patients will be asked to complete baseline, 30-day, and 6-month clinical and patient reported outcome health surveys.
COVID Booster Incidence
39 Participants

Adverse Events

Diagnosis of Multiple Myeloma and Currently Receiving Active Treatment for Any Phase of the Disease

Serious events: 0 serious events
Other events: 0 other events
Deaths: 0 deaths

Serious adverse events

Adverse event data not reported

Other adverse events

Adverse event data not reported

Additional Information

Emily Semmel, Deputy Director ASH RC Data Hub

ASH RC

Phone: 202-552-4902

Results disclosure agreements

  • Principal investigator is a sponsor employee
  • Publication restrictions are in place