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Psychological Support in Adult Patients With Marfan Syndrome

NCT05712577 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 125

Last updated 2024-01-12

No results posted yet for this study

Summary

The goal of this observational study is to identify key factors leading to psychotherapy or psychological support in adult subjects with Marfan syndrome (MSF). the main questions it aims to answer are:

* Understand and define which internal variables of the individual drive this request for psychological support;
* To learn about verify the impact that the clinical manifestations of MSF have on psychosocial aspects, self-esteem, subjective perception of the disease and coping mechanisms.

Conditions

Interventions

OTHER

Questionnaire

Rosenberg Self- Esteem scale

OTHER

Questionnaire

Short Form 36 scale

OTHER

Questionnaire

Coping orientation to the problems experienced - New Version in Italian

OTHER

Questionnaire

Outcome Questionnaire - version 42.5

Sponsors & Collaborators

  • IRCCS Policlinico S. Donato

    lead OTHER

Principal Investigators

  • Alessandro Pini, MD · Cardiovascular-Gentic Centre, IRCCS Policlinico San Donato

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2023-01-09
Primary Completion
2024-10-09
Completion
2024-10-09

Countries

  • Italy

Study Locations

More Related Trials

Entities

Diseases

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT05712577 on ClinicalTrials.gov