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User Controlled Follow-up of Epilepsy

NCT05683847 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 400

Last updated 2023-01-18

No results posted yet for this study

Summary

In December 2019 Vestre Viken Hospital Trust implemented user controlled epilepsy follow-up. Patients receive follow-up questions digitally twice yearly. The questionnaire was made by a multidisciplinary national network of epilepsy experts (EpilepsiNett). Responses to the questionnaire are controlled by an epilepsy nurse, and further follow-up is based on this. Data collected for user controlled follow-up will be matched with data from national registries, investigating whether this type of follow-up influences the patients' clinical course and/or the hospital's and society's use of resources.

Conditions

Interventions

OTHER

User controlled epilepsy follow-up by means of patient reported outcome measures (PROM)

Whenever they want to, but minimum every six months, users respond to standardized follow-up questions developed by the experts of EpilepsiNett. This ensures that a broader range of topics are covered, not just those related to seizures and adverse events. The incoming responses are handled by a trained epilepsy nurse, who contact the patient when needed, consulting the responsible medical doctor when needed. If current issues cannot be solved by telephonic contact with the epilepsy nurse and/or responsible medical doctor, the patient is offered an appointment at the outpatient clinic.

Sponsors & Collaborators

  • Haukeland University Hospital

    collaborator OTHER

  • Oslo University Hospital

    collaborator OTHER

  • University of Oslo

    collaborator OTHER

  • University of Bergen

    collaborator OTHER

  • Vestre Viken Hospital Trust

    lead OTHER

Principal Investigators

  • Marte Syvertsen, PhD · Vestre Viken Hospital Trust

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2019-12-01
Primary Completion
2023-12-31
Completion
2025-12-31

Countries

  • Norway

Study Locations

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Entities

Diseases

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT05683847 on ClinicalTrials.gov