Trial Outcomes & Findings for BOTOX Effects on Seizure Severity and Susceptibility (NCT NCT05605756)

NCT ID: NCT05605756

Last Updated: 2026-06-29

Results Overview

TMS metrics of rMT, CSP, LICI, and TMS-EEG excitability metrics will each be averaged over at least 20 trials per subject per time block (at baseline, and 3 weeks and 8 weeks after BOTOX injections). Per metric mean values will then be compared by one-way repeated measures ANOVA.

Recruitment status

TERMINATED

Study phase

PHASE4

Target enrollment

3 participants

Primary outcome timeframe

150 days

Results posted on

2026-06-29

Participant Flow

none of the patients that consented reached the baseline timepoint for the trial

Participant milestones

Participant milestones
Measure
Botox Therapy Effects on Seizure
OnabotulinumtoxinA 145 UNT \[Botox\]: Botulinum A toxin injection: Will follow the FDA-approved guideline of the treatment of chronic migraine. The following modifications are planned: (a) Total units 145 instead of 155. (b) Number of injection sites 29 instead of 31. (c) the 6 injection sites in the trapezius muscle will be eliminated as they are irrelevant to our attempt to reduce seizure events. Instead, 4 injections will be made subcutaneously along the superior sagittal suture (see figures below), where no muscles exist and thus no muscle weakness is likely. This dose (145 Units) is well below the FDA-approved guideline on safety for adolescents and adults (no more than 10 Units/Kg or a total of 340 Units). Botox injections will take place in the BIDMC Headache Clinic which is a part of the Arnold Pain center at 1 Brookline Place. Injections will be administered by Dr. Sait Ashina, the Director of the Headache Clinic.
Overall Study
STARTED
0
Overall Study
COMPLETED
0
Overall Study
NOT COMPLETED
0

Reasons for withdrawal

Withdrawal data not reported

Baseline Characteristics

none of the patients that consented reached the baseline timepoint for the trial

Baseline characteristics by cohort

Baseline data not reported

PRIMARY outcome

Timeframe: 150 days

Population: none of the patients that consented reached the baseline timepoint for the trial

TMS metrics of rMT, CSP, LICI, and TMS-EEG excitability metrics will each be averaged over at least 20 trials per subject per time block (at baseline, and 3 weeks and 8 weeks after BOTOX injections). Per metric mean values will then be compared by one-way repeated measures ANOVA.

Outcome measures

Outcome measures
Measure
Botox Therapy Effects on Seizure
OnabotulinumtoxinA 145 UNT \[Botox\]: Botulinum A toxin injection: Will follow the FDA-approved guideline of the treatment of chronic migraine. The following modifications are planned: (a) Total units 145 instead of 155. (b) Number of injection sites 29 instead of 31. (c) the 6 injection sites in the trapezius muscle will be eliminated as they are irrelevant to our attempt to reduce seizure events. Instead, 4 injections will be made subcutaneously along the superior sagittal suture (see figures below), where no muscles exist and thus no muscle weakness is likely. This dose (145 Units) is well below the FDA-approved guideline on safety for adolescents and adults (no more than 10 Units/Kg or a total of 340 Units). Botox injections will take place in the BIDMC Headache Clinic which is a part of the Arnold Pain center at 1 Brookline Place. Injections will be administered by Dr. Sait Ashina, the Director of the Headache Clinic.
Change in Net Cortical Excitability Metrics
0 Participants

SECONDARY outcome

Timeframe: 150 days

Population: none of the patients that consented reached the baseline timepoint for the trial

Blended Neuro-QOL scores will be averaged at baseline, and at the 8-12 week after BOTOX injection period, and compared by paired t-test

Outcome measures

Outcome measures
Measure
Botox Therapy Effects on Seizure
OnabotulinumtoxinA 145 UNT \[Botox\]: Botulinum A toxin injection: Will follow the FDA-approved guideline of the treatment of chronic migraine. The following modifications are planned: (a) Total units 145 instead of 155. (b) Number of injection sites 29 instead of 31. (c) the 6 injection sites in the trapezius muscle will be eliminated as they are irrelevant to our attempt to reduce seizure events. Instead, 4 injections will be made subcutaneously along the superior sagittal suture (see figures below), where no muscles exist and thus no muscle weakness is likely. This dose (145 Units) is well below the FDA-approved guideline on safety for adolescents and adults (no more than 10 Units/Kg or a total of 340 Units). Botox injections will take place in the BIDMC Headache Clinic which is a part of the Arnold Pain center at 1 Brookline Place. Injections will be administered by Dr. Sait Ashina, the Director of the Headache Clinic.
Change in Quality-of-life Metrics
0 Participants

Adverse Events

Botox Therapy Effects on Seizure

Serious events: 0 serious events
Other events: 0 other events
Deaths: 0 deaths

Serious adverse events

Adverse event data not reported

Other adverse events

Adverse event data not reported

Additional Information

Rami Burstein, profesor BIDMC Anesthesia

BIDMC

Phone: 617 735 2832

Results disclosure agreements

  • Principal investigator is a sponsor employee
  • Publication restrictions are in place