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CureDRPLA Global Patient Registry

NCT05489393 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 100

Last updated 2026-03-17

No results posted yet for this study

Summary

The objective of the CureDRPLA Global Patient Registry is to establish a longitudinal database of patient-reported data on individuals affected with Dentatorubral-pallidoluysian atrophy (DRPLA) from anywhere in the world.

The CureDRPLA Global Patient Registry will address patient needs by:

* Expanding patient engagement by documenting quality of life outcomes.
* Providing anonymized data to the DRPLA research community on patient experience with the disease and priorities for treatment.
* Connecting DRPLA patients with opportunities to participate in clinical research.

Conditions

  • DRPLA

Sponsors & Collaborators

  • Ataxia UK

    collaborator UNKNOWN

  • CureDRPLA

    lead OTHER

Eligibility

Min Age
0 Years
Max Age
100 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2021-03-01
Primary Completion
2031-11-01
Completion
2031-11-01

Countries

  • United States

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT05489393 on ClinicalTrials.gov