The Italian Transthyretin Amyloidosis Web-Network
NCT05444920 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 1000
Last updated 2026-03-27
Summary
The study aims, by generating a large registry of patients with ATTR amyloidosis, including data at diagnosis and during follow up, to describe the natural history of ATTR amyloidosis in a real-world setting and to define and validate prognostic models, response criteria applicable at any point of the disease. The registry will also be used for data sharing and to allow the possibility of a close collaboration amongst the amyloidosis experts of the ARTC and all the physicians around the Country involved in the diagnosis and management of systemic amyloidosis. Thanks to the online registry, the diagnostic facility of the ARTC will be made available to requesting physicians.
Conditions
- ATTR Amyloidosis
Sponsors & Collaborators
-
Fondazione IRCCS Policlinico San Matteo di Pavia
lead OTHER
Eligibility
- Min Age
- 18 Years
- Max Age
- 99 Years
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2022-07-13
- Primary Completion
- 2026-12-31
- Completion
- 2027-11-01
Countries
- Italy
Study Locations
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