Exercise in Autoimmune Myasthenia Gravis and Myasthenic Syndromes

NCT05408702 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 500

Last updated 2022-06-07

No results posted yet for this study

Summary

A few recent observational studies show that despite the lack of clear recommendations, many individuals with myasthenia participate in exercise. However, no link has been found between exercise and the severity of myasthenia symptoms, measured by the Muscle Myasthenia Score or the Myasthenia Gravis Composite Score. This suggests that there are other factors that may limit or prevent some individuals from being active, or factors which may facilitate participation in exercise.

Studies in other diseases have shown that there are internal (beliefs, motivation, etc.) and external (cost, accessibility, etc.) factors unrelated to the disease which may play a role in exercise participation.

The aim of this study is to identify factors that facilitate or limit exercise in individuals with autoimmune myasthenia gravis, congenital myasthenia syndrome and Lambert-Eaton syndrome.

Conditions

  • Autoimmune Myasthenia Gravis
  • Lambert-Eaton Myasthenic Syndrome
  • Congenital Myasthenic Syndrome
  • Myasthenia Gravis

Sponsors & Collaborators

  • Association Française contre les Myopathies (AFM), Paris

    collaborator OTHER
  • Institut de Myologie, France

    lead OTHER

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2021-11-12
Primary Completion
2022-05-15
Completion
2022-05-15

Countries

  • France

Study Locations

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Entities

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT05408702 on ClinicalTrials.gov