Trial Outcomes & Findings for Phase 2 Study of LUM-201 in Children Who Have Previously Completed the LUM-201-01 Trial (OraGrowtH213) (NCT NCT05250063)

NCT ID: NCT05250063

Last Updated: 2026-05-15

Results Overview

Mean change from day 1 to month 12, Annualized Height Velocity (AHV) Height is measured in triplicate, by a calibrated stadiometer and taking the mean value AVH equation is (h2-h1/t2-t1)\*365.25; h1 = height measured at day 1 h2 = height measured at month 12 t1 = day 1 t2 = month 12

Recruitment status

COMPLETED

Study phase

PHASE2

Target enrollment

15 participants

Primary outcome timeframe

Day 1 to Month 12

Results posted on

2026-05-15

Participant Flow

Each screened subject will enter the Subject Number previously assigned in the LUM-201-01 trial, at the Screening/Baseline visit (visit 1). Subject Numbers will not be reassigned. All subjects will receive a single oral 3.2 mg/kg dose of LUM-201 at the Screening/Baseline visit (visit 1) which will include measurement of GH concentrations at baseline and 60 ± 10 minutes after dosing. All subjects will commence their dosing at the Screening/Baseline visit (visit 1).

Participant milestones

Participant milestones
Measure
LUM-201 (3.2 mg/kg/Day)
LUM-201: Administered orally once daily
Overall Study
STARTED
15
Overall Study
COMPLETED
13
Overall Study
NOT COMPLETED
2

Reasons for withdrawal

Withdrawal data not reported

Baseline Characteristics

Phase 2 Study of LUM-201 in Children Who Have Previously Completed the LUM-201-01 Trial (OraGrowtH213)

Baseline characteristics by cohort

Baseline characteristics by cohort
Measure
LUM-201 (3.2 mg/kg/Day)
n=15 Participants
LUM-201: Administered orally once daily
Age, Categorical
<=18 years
15 Participants
n=11 Participants
Age, Categorical
Between 18 and 65 years
0 Participants
n=11 Participants
Age, Categorical
>=65 years
0 Participants
n=11 Participants
Age, Continuous
102 months
STANDARD_DEVIATION 25.5 • n=11 Participants
Sex: Female, Male
Female
6 Participants
n=11 Participants
Sex: Female, Male
Male
9 Participants
n=11 Participants
Race (NIH/OMB)
American Indian or Alaska Native
0 Participants
n=11 Participants
Race (NIH/OMB)
Asian
1 Participants
n=11 Participants
Race (NIH/OMB)
Native Hawaiian or Other Pacific Islander
0 Participants
n=11 Participants
Race (NIH/OMB)
Black or African American
0 Participants
n=11 Participants
Race (NIH/OMB)
White
14 Participants
n=11 Participants
Race (NIH/OMB)
More than one race
0 Participants
n=11 Participants
Race (NIH/OMB)
Unknown or Not Reported
0 Participants
n=11 Participants
Region of Enrollment
United States
9 participants
n=11 Participants
Region of Enrollment
Poland
6 participants
n=11 Participants
Baseline Height-Standard Deviation Score (SDS)
-1.32492 Height-SDS
STANDARD_DEVIATION 0.37944 • n=11 Participants
Baseline Insulin-like growth factor 1 (IGF-1) SDS
0.9343 SDS
STANDARD_DEVIATION 1.1716 • n=11 Participants

PRIMARY outcome

Timeframe: Day 1 to Month 12

Population: Per Protocol Population Analyzed

Mean change from day 1 to month 12, Annualized Height Velocity (AHV) Height is measured in triplicate, by a calibrated stadiometer and taking the mean value AVH equation is (h2-h1/t2-t1)\*365.25; h1 = height measured at day 1 h2 = height measured at month 12 t1 = day 1 t2 = month 12

Outcome measures

Outcome measures
Measure
LUM-201 (3.2 mg/kg/Day)
n=9 Participants
LUM-201: Administered orally once daily
Annualized Height Velocity (AHV) Measured as Standing Height With Stadiometer
0.098 cm/year
Standard Deviation 0.775

SECONDARY outcome

Timeframe: Day 1 to Month 12

Population: Summary of Treatment Emergent Adverse Events by System Organ Class and Preferred Term Intent to Treat Population

Number of events

Outcome measures

Outcome measures
Measure
LUM-201 (3.2 mg/kg/Day)
n=15 Participants
LUM-201: Administered orally once daily
Occurrence of Adverse Events in Children With Growth Hormone Deficiency (GHD)
42 occurences

SECONDARY outcome

Timeframe: Day 1 to Month 12

Population: Blood samples were unable to be collected/analyzed for various subjects/timepoints. Per Protocol Population Analyzed

Mean GH Values change from Day 1 to month 12 (Pre-Dose and 1 hour Post-Dose)

Outcome measures

Outcome measures
Measure
LUM-201 (3.2 mg/kg/Day)
n=10 Participants
LUM-201: Administered orally once daily
Growth Hormone (GH) Values
Month 12, Pre-Dose
-0.05 ng/ml
Standard Deviation 0.68
Growth Hormone (GH) Values
Month 12, 1 hour Post-Dose
1.17 ng/ml
Standard Deviation 2.81

SECONDARY outcome

Timeframe: Day 1 to Month 12

Population: Per Protocol Population Analyzed

Mean change from Day 1 to month 12 (IGF-1 Values Pre-Dose)

Outcome measures

Outcome measures
Measure
LUM-201 (3.2 mg/kg/Day)
n=10 Participants
LUM-201: Administered orally once daily
Insulin-Like Growth Factor 1 (IGF-1) Values
-8.75 nmol/L
Standard Deviation 14.59

SECONDARY outcome

Timeframe: Day 1 to Month 12

Population: Per Protocol Population Analyzed

Mean change from day 1 to month 12 (IGFBP-3 Values Pre-Dose)

Outcome measures

Outcome measures
Measure
LUM-201 (3.2 mg/kg/Day)
n=10 Participants
LUM-201: Administered orally once daily
Insulin-Like Growth Factor Binding Protein 3 (IGFBP-3) Values
-58.033 nmol/L
Standard Deviation 33.092

SECONDARY outcome

Timeframe: Day 1 to Month 12

Population: This is not a Z-Score analysis. Standard deviation score of 0 is the population mean for the age/sex. Normal range is typically -2 to +2 SDS. A positive score is an improvement and a negative score a decrease. Per Protocol Population Analyzed

Mean change from day 1 to month 12 in HT-SDS

Outcome measures

Outcome measures
Measure
LUM-201 (3.2 mg/kg/Day)
n=10 Participants
LUM-201: Administered orally once daily
Height (HT) Standard Deviation Score (SDS)
0.08229 Standard Deviation Score
Standard Deviation 0.20574

SECONDARY outcome

Timeframe: Day 1 to Month 12

Population: Per Protocol Population Analyzed

Mean change in Weight from day 1 to month 12

Outcome measures

Outcome measures
Measure
LUM-201 (3.2 mg/kg/Day)
n=10 Participants
LUM-201: Administered orally once daily
Change in Weight
4.19 kg
Standard Deviation 1.74

SECONDARY outcome

Timeframe: Day 1 to Month 12

Population: This is not a Z-Score analysis. Standard deviation score of 0 is the population mean for the age/sex. Normal range is typically -2 to +2 SDS. A positive score is an improvement and a negative score a decrease. Per Protocol Population Analyzed

Mean change in Weight-SDS from day 1 to month 12

Outcome measures

Outcome measures
Measure
LUM-201 (3.2 mg/kg/Day)
n=10 Participants
LUM-201: Administered orally once daily
Change in Weight - Standard Deviation Score (SDS)
0.62279 Standard Deviation Score
Standard Deviation 0.30934

SECONDARY outcome

Timeframe: Day 1 to Month 12

Population: Per Protocol Population Analyzed

Mean change from day 1 to month 12 in BMI

Outcome measures

Outcome measures
Measure
LUM-201 (3.2 mg/kg/Day)
n=10 Participants
LUM-201: Administered orally once daily
Change in Body Mass Index (BMI)
0.969 kg/m^2
Standard Deviation 0.695

SECONDARY outcome

Timeframe: Day 1 to Month 12

Population: This is not a Z-Score analysis. Standard deviation score of 0 is the population mean for the age/sex. Normal range is typically -2 to +2 SDS. A positive score is an improvement and a negative score a decrease. Per Protocol Population Analyzed

Mean change from Day 1 to month 12 in BMI-SDS

Outcome measures

Outcome measures
Measure
LUM-201 (3.2 mg/kg/Day)
n=10 Participants
LUM-201: Administered orally once daily
Change in Body Mass Index (BMI) - Standard Deviation Score (SDS)
0.32057 Standard Deviation Score
Standard Deviation 0.30768

SECONDARY outcome

Timeframe: Month 6

Population: Per Protocol Population Analyzed

Mean change from day 1 to month 6 in bone age, measured by X-ray of left hand and wrist using Greulich \& Pyle atlas

Outcome measures

Outcome measures
Measure
LUM-201 (3.2 mg/kg/Day)
n=10 Participants
LUM-201: Administered orally once daily
Change in Bone Age
2.01 year
Standard Deviation 0.81

SECONDARY outcome

Timeframe: Day 1 to Month 12

Population: This is not a Z-Score analysis. Standard deviation score of 0 is the population mean for the age/sex. Normal range is typically -2 to +2 SDS. A positive score is an improvement and a negative score a decrease. Per Protocol Population Analyzed

Mean Change from day 1 to month 12 for IGF-1 - SDS Pre-dose Values

Outcome measures

Outcome measures
Measure
LUM-201 (3.2 mg/kg/Day)
n=10 Participants
LUM-201: Administered orally once daily
Insulin-Like Growth Factor 1 (IGF-1) - Standard Deviation Score (SDS)
-1.1083 Standard Deviation Score
Standard Deviation 1.1529

Adverse Events

LUM-201 (3.2 mg/kg/Day)

Serious events: 0 serious events
Other events: 13 other events
Deaths: 0 deaths

Serious adverse events

Adverse event data not reported

Other adverse events

Other adverse events
Measure
LUM-201 (3.2 mg/kg/Day)
n=15 participants at risk
LUM-201: Administered orally once daily
Infections and infestations
Respiratory Infection
6.7%
1/15 • Number of events 2 • 1 year
Gastrointestinal disorders
Abdominal pain upper
6.7%
1/15 • Number of events 1 • 1 year
General disorders
Pyrexia
6.7%
1/15 • Number of events 3 • 1 year
Immune system disorders
Drug hypersensitivity
6.7%
1/15 • Number of events 1 • 1 year
Infections and infestations
Bronchitis
6.7%
1/15 • Number of events 1 • 1 year
Infections and infestations
Ear infections
6.7%
1/15 • Number of events 1 • 1 year
Infections and infestations
Hordeolum
6.7%
1/15 • Number of events 1 • 1 year
Infections and infestations
Influenza
13.3%
2/15 • Number of events 2 • 1 year
Infections and infestations
Pharyngitis
13.3%
2/15 • Number of events 4 • 1 year
Infections and infestations
Pharyngitis streptococcal
6.7%
1/15 • Number of events 1 • 1 year
Infections and infestations
Tooth abscess
6.7%
1/15 • Number of events 1 • 1 year
Infections and infestations
Upper respiratory tract infections
20.0%
3/15 • Number of events 4 • 1 year
Infections and infestations
Urinary tract infection
6.7%
1/15 • Number of events 1 • 1 year
Injury, poisoning and procedural complications
Radius fracture
6.7%
1/15 • Number of events 1 • 1 year
Investigations
Body temperature increased
6.7%
1/15 • Number of events 1 • 1 year
Metabolism and nutrition disorders
Increased appetite
13.3%
2/15 • Number of events 3 • 1 year
Musculoskeletal and connective tissue disorders
Back pain
6.7%
1/15 • Number of events 2 • 1 year
Musculoskeletal and connective tissue disorders
Joint noise
6.7%
1/15 • Number of events 1 • 1 year
Nervous system disorders
Headache
6.7%
1/15 • Number of events 2 • 1 year
Psychiatric disorders
Irritability
6.7%
1/15 • Number of events 1 • 1 year
Respiratory, thoracic and mediastinal disorders
Cough
6.7%
1/15 • Number of events 1 • 1 year
Respiratory, thoracic and mediastinal disorders
Epistaxis
13.3%
2/15 • Number of events 2 • 1 year
Respiratory, thoracic and mediastinal disorders
Respiratory disorder
6.7%
1/15 • Number of events 1 • 1 year
Skin and subcutaneous tissue disorders
Lichen planus
6.7%
1/15 • Number of events 1 • 1 year
Skin and subcutaneous tissue disorders
Rash
13.3%
2/15 • Number of events 3 • 1 year

Additional Information

Lumos Pharma LLC

Lumos Pharma LLC

Phone: 515-598-2921

Results disclosure agreements

  • Principal investigator is a sponsor employee
  • Publication restrictions are in place

Restriction type: GT60