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International Wilson's Disease Patient Registry (iWilson Registry)

NCT05239858 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 500

Last updated 2026-08-11

No results posted yet for this study

Summary

Longitudinal, observational, non-interventional, standard of care Registry. Data will be collected from the routinely scheduled WD clinic visits at approximately 6-12 month intervals. At enrolment, in addition to data from the clinic visit, retrospective data will be collected from the diagnostic evaluation and any relevant past medical history and a summary of WD medication history.

Conditions

  • Wilson's Disease

Sponsors & Collaborators

  • Ergomed

    collaborator INDUSTRY

  • Orphalan

    lead INDUSTRY

Principal Investigators

  • Pramod Mistry, PhD · Yale University Hospital, Conneticut

Eligibility

Min Age
12 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2022-06-29
Primary Completion
2027-12-31
Completion
2027-12-31

Countries

  • Belgium
  • France
  • Germany
  • Poland
  • Saudi Arabia
  • Spain
  • United Kingdom

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT05239858 on ClinicalTrials.gov