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Questionnaire Study to Assess the Outcomes of the Management of Congenital Adrenal Hyperplasia Individuals

NCT05228652 · Status: UNKNOWN · Type: OBSERVATIONAL · Enrollment: 61

Last updated 2023-03-13

No results posted yet for this study

Summary

This is a questionnaire study involving women and young girls affected by Congenital Adrenal Hyperplasia (CAH) and their parents. The aim is to obtain information regarding the outcomes of conservative or surgical management of CAH at the Royal Manchester Children's Hospital (RMCH) in the last 50 years, with specific reference to genital appearance and its impact on patient's social/physical/emotional/sexual outcomes. The study wants also investigate on the individuals and parental perspectives on the proposal to take away the option of early childhood surgery for girls with this condition.

Conditions

  • Adrenal Hyperplasia, Congenital

Interventions

OTHER

Questionnaire

Three different questionnaires have been developed. They consist of multiple-choice questions and some open-ended questions.

Sponsors & Collaborators

  • Manchester University NHS Foundation Trust

    lead OTHER_GOV

Principal Investigators

  • Arianna Mariotto · Royal Manchester Children's Hospital Manchester University NHS Foundation Trust

Eligibility

Min Age
16 Years
Max Age
100 Years
Sex
ALL
Healthy Volunteers
Yes

Timeline & Regulatory

Start
2022-02-28
Primary Completion
2024-02-01
Completion
2024-02-01

Countries

  • United Kingdom

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT05228652 on ClinicalTrials.gov