Czech AATD Registry
NCT05178277 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 300
Last updated 2022-01-05
Summary
Alpha-1-antitrypsin deficiency is the most common congenital disease of the respiratory system, leading to early pulmonary emphysema or bronchiectasis. Pulmonary involvement significantly accelerates active cigarette smoking. Patients with alpha-1-antitrypsin deficiency may also have liver cirrhosis, vasculitis, skin or intestinal disorders.
The AATD Registry is a non-interventional multicenter retrospective prospective longitudinal follow-up of patients with alpha-1-antitrypsin deficiency.
The aim of the AATD National Registry is to collect and analyze clinical data in patients with alpha-1 antitrypsin deficiency.
Conditions
- Alpha-1-antitrypsin Deficiency
Sponsors & Collaborators
-
Masaryk University
collaborator OTHER -
Thomayer University Hospital
lead OTHER
Principal Investigators
-
Jan MD Chlumsky, PhD · Thomayer University Hospital
Eligibility
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2018-01-01
- Primary Completion
- 2033-12-31
- Completion
- 2035-12-31
Countries
- Czechia
Study Locations
More Related Trials
-
Screening for Alpha-1 Antitrypsin Deficiency in Patients With Airway Obstruction
NCT07152834 ·Status: RECRUITING
-
Prevalence of Alpha-1 Antitrypsin Dysfunction in Pulmonary Emphysema
NCT02382367 ·Status: COMPLETED ·Phase: NA
-
Characterization of the Pathobiology of Early Lung Destruction in Alpha 1-Antitrypsin Deficient Individuals
NCT00001462 ·Status: COMPLETED
-
Functional and Structural Lung Imaging in Chronic Obstructive Pulmonary Disease
NCT04966221 ·Status: UNKNOWN
-
The PROspective German NOn-CF bronchiectaSIS Patient Registry
NCT02574143 ·Status: UNKNOWN
-
Optimising Screening for Early Disease Detection in Familial Pulmonary Fibrosis
NCT05367349 ·Status: UNKNOWN
-
Turkish Thoracic Society Usual Interstitial Pneumonia Registry Study
NCT02821039 ·Status: TERMINATED
-
Evaluation of Patients With Idiopathic Pulmonary Fibrosis (IPF) Through an IPF Registry
NCT00212511 ·Status: WITHDRAWN
-
EARCO REGISTRY. History Of Patients With Alpha-1 Antitrypsin
NCT04180319 ·Status: UNKNOWN
-
Investigating Idiopathic Pulmonary Fibrosis in Greece
NCT03074149 ·Status: COMPLETED
-
Long-Term Study On Home Spirometry After Lung Transplantation
NCT00743171 ·Status: COMPLETED
-
Czech Multicentre Research Database of Chronic Obstructive Pulmonary Disease (COPD)
NCT01923051 ·Status: UNKNOWN
-
Pulmonary Fibrosis and Telomerase Mutation Study
NCT01501578 ·Status: COMPLETED
-
Determination of Functional Exercise Capacity, Respiratory Muscle Endurance in Idiopathic Pulmonary Fibrosis
NCT06668051 ·Status: NOT_YET_RECRUITING
-
The Genetics of Pulmonary Fibrosis
NCT03478553 ·Status: RECRUITING
-
Study of the Etiology and Immunological Pathogenesis in Acute Exacerbation of Idiopathic Pulmonary Fibrosis (AE-IPF)
NCT02509364 ·Status: UNKNOWN
-
Hyperpolarized Xenon-129 MRI in Idiopathic Pulmonary Fibrosis
NCT06853145 ·Status: RECRUITING ·Phase: EARLY_PHASE1
-
Early Diagnosis of Pulmonary Fibrosis - Diagnostic Delay
NCT02772549 ·Status: ACTIVE_NOT_RECRUITING
-
Aetiology of Children With Bronchiectasis in China
NCT02555865 ·Status: UNKNOWN
-
Characterization of Apolipoprotein A-I Pathways in Idiopathic Pulmonary Fibrosis
NCT02315586 ·Status: COMPLETED
-
Imaging Measures of Respiratory Health Registry
NCT05102825 ·Status: RECRUITING
-
Clinical Genetics and Screening for Idiopathic Pulmonary Fibrosis
NCT06521125 ·Status: NOT_YET_RECRUITING
-
A Project Ensuring Quality and Cooperation in the Chronic Obstructive Pulmonary Disease (COPD) Treatment
NCT00772733 ·Status: COMPLETED
-
Pulmonary Care and Research Collaborative Patient Registry
NCT05445817 ·Status: UNKNOWN
-
Disease-syndrome Characteristics of IPF
NCT07178392 ·Status: NOT_YET_RECRUITING