Public AttitudesTowards SMA and DMD Awareness, Newborn and Carrier Screening and Physiotherapy Practices
NCT05110885 · Status: UNKNOWN · Type: OBSERVATIONAL · Enrollment: 200
Last updated 2021-11-10
Summary
The addition of SMA and DMD muscle diseases to newborn screening and premarital carrier screening has been controversial.
In this study, researchers aim to measure the awareness level of SMA and DMD muscle diseases of individuals living in Turkey and to obtain information about their attitudes towards newborn and carrier screening and physiotherapy practices.
Thus, this study aimed to determine the factors that affect people's views on this subject.
Conditions
- Spinal Muscular Atrophy
- Duchenne Muscular Dystrophy
- Healthy Individuals
Interventions
- OTHER
-
Questionnaire
A questionnaire prepared by the researchers will be presented to the group.
Sponsors & Collaborators
-
Bahçeşehir University
lead OTHER
Eligibility
- Min Age
- 18 Years
- Max Age
- 50 Years
- Sex
- ALL
- Healthy Volunteers
- Yes
Timeline & Regulatory
- Start
- 2021-11-30
- Primary Completion
- 2022-01-31
- Completion
- 2022-01-31
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