Trial Outcomes & Findings for Changes to Function and Quality of Life and Patient Experience for Patients Undergoing Treatments for Recurrent Oropharyngeal Cancer (NCT NCT04952922)

NCT ID: NCT04952922

Last Updated: 2025-08-08

Results Overview

Performance Scale for Head and Neck Cancer (PSS-HN) Normalcy of Diet (NoD) scores Three subscales: Normalcy of Diet, Understandability of Speech, Eating in Public Scores are combined to describe patient function in 6 areas (physical well-being, social and family well-being, relationship with doctor, emotional well-being, functional well-being, head \& neck related symptoms) Total score Scale 0 -100, a higher score indicating better performance/higher quality of life The score reported is the combined score with the total being the sum of the sub-scale scores

Recruitment status

COMPLETED

Target enrollment

25 participants

Primary outcome timeframe

Baseline, 3 months, 6 months

Results posted on

2025-08-08

Participant Flow

Difficulties recruiting participants to the study, number recruited will be adequate for analysis and will meet criteria for primary endpoint

Participant milestones

Participant milestones
Measure
Group 1
Patients with a diagnosis of recurrent oropharyngeal cancer - prospective
Overall Study
STARTED
25
Overall Study
COMPLETED
25
Overall Study
NOT COMPLETED
0

Reasons for withdrawal

Withdrawal data not reported

Baseline Characteristics

Changes to Function and Quality of Life and Patient Experience for Patients Undergoing Treatments for Recurrent Oropharyngeal Cancer

Baseline characteristics by cohort

Baseline characteristics by cohort
Measure
Group 1
n=25 Participants
Patients with a diagnosis of recurrent oropharyngeal cancer - prospective
Age, Categorical
<=18 years
0 Participants
n=99 Participants
Age, Categorical
Between 18 and 65 years
13 Participants
n=99 Participants
Age, Categorical
>=65 years
12 Participants
n=99 Participants
Age, Continuous
64 YEARS
n=99 Participants
Sex: Female, Male
Female
5 Participants
n=99 Participants
Sex: Female, Male
Male
20 Participants
n=99 Participants
Ethnicity (NIH/OMB)
Hispanic or Latino
0 Participants
n=99 Participants
Ethnicity (NIH/OMB)
Not Hispanic or Latino
25 Participants
n=99 Participants
Ethnicity (NIH/OMB)
Unknown or Not Reported
0 Participants
n=99 Participants
Region of Enrollment
United Kingdom
25 participants
n=99 Participants

PRIMARY outcome

Timeframe: Baseline, 3 months, 6 months

Performance Scale for Head and Neck Cancer (PSS-HN) Normalcy of Diet (NoD) scores Three subscales: Normalcy of Diet, Understandability of Speech, Eating in Public Scores are combined to describe patient function in 6 areas (physical well-being, social and family well-being, relationship with doctor, emotional well-being, functional well-being, head \& neck related symptoms) Total score Scale 0 -100, a higher score indicating better performance/higher quality of life The score reported is the combined score with the total being the sum of the sub-scale scores

Outcome measures

Outcome measures
Measure
Group 1
n=25 Participants
Patients with a diagnosis of recurrent oropharyngeal cancer - prospective
Patient Reported Swallowing Related Quality of Life
Baseline
50 score on a scale
Interval 0.0 to 100.0
Patient Reported Swallowing Related Quality of Life
3 months
40 score on a scale
Interval 0.0 to 100.0
Patient Reported Swallowing Related Quality of Life
6 months
40 score on a scale
Interval 0.0 to 100.0

SECONDARY outcome

Timeframe: Baseline, 3 months, 6 months

Population: Some participants were unable to complete/did not wish to complete the water swallow test

The Water Swallow Test is used to monitor swallow performance and possible aspiration - patients are viewed to have failed the test if they cough, have a wet voice quality post swallow or are unable to complete the task.

Outcome measures

Outcome measures
Measure
Group 1
n=17 Participants
Patients with a diagnosis of recurrent oropharyngeal cancer - prospective
Swallowing Status Measured Using the 100ml Water Swallow Test
Baseline
9.7 ml/second
Interval 6.2 to 16.3
Swallowing Status Measured Using the 100ml Water Swallow Test
3 months
16.6 ml/second
Interval 13.3 to 33.2
Swallowing Status Measured Using the 100ml Water Swallow Test
6 months
17.9 ml/second
Interval 12.0 to 33.1

SECONDARY outcome

Timeframe: Baseline, 3 months, 6 months

Population: Not all participants completed the questionnaire

The scale consists of 8 levels (0-7) where drinks are measured as 0-4 to describe thickness (0 being thin, 4 being extremely thick) and foods are measured as 3-7 (3 being liquidised, 7 being regular/easy to chew) A higher score indicates a higher level of swallowing function, 0 being the lowest score, 7 being the highest score

Outcome measures

Outcome measures
Measure
Group 1
n=25 Participants
Patients with a diagnosis of recurrent oropharyngeal cancer - prospective
Swallowing Status Measured With the Standardisation Initiative Functional Diet Scale (IDDSI-FDS)
Baseline
7 score on a scale
Interval 0.0 to 7.0
Swallowing Status Measured With the Standardisation Initiative Functional Diet Scale (IDDSI-FDS)
3 months
6 score on a scale
Interval 0.0 to 7.0
Swallowing Status Measured With the Standardisation Initiative Functional Diet Scale (IDDSI-FDS)
6 months
6 score on a scale
Interval 0.0 to 7.0

Adverse Events

Group 1

Serious events: 0 serious events
Other events: 0 other events
Deaths: 2 deaths

Serious adverse events

Adverse event data not reported

Other adverse events

Adverse event data not reported

Additional Information

Dr Grainne Brady

The Royal Marsden NHS Foundation Trust

Phone: 0000000000000

Results disclosure agreements

  • Principal investigator is a sponsor employee
  • Publication restrictions are in place