Trial Outcomes & Findings for Telotristat Ethyl for the Treatment of Carcinoid Heart Disease in Patients With Metastatic Neuroendocrine Tumor (NCT NCT04810091)

NCT ID: NCT04810091

Last Updated: 2026-03-09

Results Overview

Percent change in N-terminal pro B-type natriuretic peptide (NT-proBNP) from baseline to 6 months defined as (NTproBNP at 6 month - NTproBNP at baseline)/(NTproBNP at baseline)\*100

Recruitment status

ACTIVE_NOT_RECRUITING

Study phase

PHASE3

Target enrollment

79 participants

Primary outcome timeframe

Baseline and at 6 months

Results posted on

2026-03-09

Participant Flow

Of the 79 participants who consented and enrolled in the study, 6 withdrew before arm assignment. These 6 participants were not randomized and were excluded from the study. The remaining 73 participants were randomized to one of two arms.

Participant milestones

Participant milestones
Measure
Placebo + SSA
Placebo-matching telotristat ethyl tablet TID + stable-dose somatostatin analog (SSA) therapy
Xermelo + SSA
Telotristat ethyl 500 mg po TID + stable-dose somatostatin analog (SSA)
Overall Study
STARTED
37
36
Overall Study
Randomized
37
36
Overall Study
Treated
35
32
Overall Study
3 Month Follow-up
29
29
Overall Study
COMPLETED
27
26
Overall Study
NOT COMPLETED
10
10

Reasons for withdrawal

Reasons for withdrawal
Measure
Placebo + SSA
Placebo-matching telotristat ethyl tablet TID + stable-dose somatostatin analog (SSA) therapy
Xermelo + SSA
Telotristat ethyl 500 mg po TID + stable-dose somatostatin analog (SSA)
Overall Study
Adverse Event
1
1
Overall Study
Death
1
0
Overall Study
Lost to Follow-up
1
1
Overall Study
Physician Decision
2
3
Overall Study
Withdrawal by Subject
4
2
Overall Study
Ineligible
0
1
Overall Study
Non-compliance
0
1
Overall Study
Prescribed Xermelo by local oncologist
1
0
Overall Study
Progressive disease
0
1

Baseline Characteristics

Telotristat Ethyl for the Treatment of Carcinoid Heart Disease in Patients With Metastatic Neuroendocrine Tumor

Baseline characteristics by cohort

Baseline characteristics by cohort
Measure
Placebo + SSA
n=37 Participants
Placebo-matching telotristat ethyl tablet TID + stable-dose somatostatin analog (SSA) therapy
Xermelo + SSA
n=36 Participants
Telotristat ethyl 500 mg po TID + stable-dose somatostatin analog (SSA)
Total
n=73 Participants
Total of all reporting groups
Race (NIH/OMB)
Native Hawaiian or Other Pacific Islander
0 Participants
n=68 Participants
0 Participants
n=69 Participants
0 Participants
n=137 Participants
Age, Categorical
<=18 years
0 Participants
n=68 Participants
0 Participants
n=69 Participants
0 Participants
n=137 Participants
Age, Categorical
Between 18 and 65 years
22 Participants
n=68 Participants
20 Participants
n=69 Participants
42 Participants
n=137 Participants
Age, Categorical
>=65 years
15 Participants
n=68 Participants
16 Participants
n=69 Participants
31 Participants
n=137 Participants
Age, Continuous
63.4 years
STANDARD_DEVIATION 11.6 • n=68 Participants
59.2 years
STANDARD_DEVIATION 14.4 • n=69 Participants
61.4 years
STANDARD_DEVIATION 12.6 • n=137 Participants
Sex: Female, Male
Female
14 Participants
n=68 Participants
16 Participants
n=69 Participants
30 Participants
n=137 Participants
Sex: Female, Male
Male
23 Participants
n=68 Participants
20 Participants
n=69 Participants
43 Participants
n=137 Participants
Ethnicity (NIH/OMB)
Hispanic or Latino
4 Participants
n=68 Participants
6 Participants
n=69 Participants
10 Participants
n=137 Participants
Ethnicity (NIH/OMB)
Not Hispanic or Latino
30 Participants
n=68 Participants
30 Participants
n=69 Participants
60 Participants
n=137 Participants
Ethnicity (NIH/OMB)
Unknown or Not Reported
3 Participants
n=68 Participants
0 Participants
n=69 Participants
3 Participants
n=137 Participants
Race (NIH/OMB)
American Indian or Alaska Native
0 Participants
n=68 Participants
0 Participants
n=69 Participants
0 Participants
n=137 Participants
Race (NIH/OMB)
Asian
0 Participants
n=68 Participants
1 Participants
n=69 Participants
1 Participants
n=137 Participants
Race (NIH/OMB)
Black or African American
4 Participants
n=68 Participants
4 Participants
n=69 Participants
8 Participants
n=137 Participants
Race (NIH/OMB)
White
32 Participants
n=68 Participants
29 Participants
n=69 Participants
61 Participants
n=137 Participants
Race (NIH/OMB)
More than one race
0 Participants
n=68 Participants
0 Participants
n=69 Participants
0 Participants
n=137 Participants
Race (NIH/OMB)
Unknown or Not Reported
1 Participants
n=68 Participants
2 Participants
n=69 Participants
3 Participants
n=137 Participants
Region of Enrollment
United States
37 participants
n=68 Participants
36 participants
n=69 Participants
73 participants
n=137 Participants

PRIMARY outcome

Timeframe: Baseline and at 6 months

Population: Patients who had NTproBNP at both baseline and 6 months

Percent change in N-terminal pro B-type natriuretic peptide (NT-proBNP) from baseline to 6 months defined as (NTproBNP at 6 month - NTproBNP at baseline)/(NTproBNP at baseline)\*100

Outcome measures

Outcome measures
Measure
Placebo + SSA
n=27 Participants
Placebo-matching telotristat ethyl tablet TID + stable-dose somatostatin analog (SSA) therapy
Xermelo + SSA
n=26 Participants
Telotristat ethyl 500 mg po TID + stable-dose somatostatin analog (SSA)
Percent Change in NTproBNP at 6 Months Visit From Baseline
-9.1 Percent change from baseline
Interval -32.4 to 14.3
1.4 Percent change from baseline
Interval -32.4 to 53.8

SECONDARY outcome

Timeframe: Baseline and 3 month follow-up

Population: Of the 29 participants who completed 3-month follow-up in the Placebo + SSA arm, 25 completed the 6MWT at both baseline and 3 months. In the Xermelo + SSA arm, all 29 participants who completed 3-month follow-up also completed the 6MWT at both baseline and at 3 months.

Change in functional capacity from baseline to 3-month visit, assessed by a 6-minute walk test (6MWT), where 6MWT is defined as the distance walked in 6 minutes, and the change is calculated as: 6MWT at 3 months minus 6MWT at baseline

Outcome measures

Outcome measures
Measure
Placebo + SSA
n=25 Participants
Placebo-matching telotristat ethyl tablet TID + stable-dose somatostatin analog (SSA) therapy
Xermelo + SSA
n=29 Participants
Telotristat ethyl 500 mg po TID + stable-dose somatostatin analog (SSA)
Change in 6MWT at 3 Month Visit
0 meters
Interval -35.0 to 45.0
8 meters
Interval -25.0 to 64.0

SECONDARY outcome

Timeframe: Baseline and 6 month follow-up

Population: Of the 27 participants who completed 6-month follow-up in the Placebo + SSA arm, 26 participants completed 6MWT at both baseline and at 6 months. All 26 participants who completed 6-month follow-up in the Xermelo + SSA arm completed the 6MWT at both baseline and 6 months.

Change in functional capacity from baseline to 6-month visit, assessed by a 6-minute walk test (6MWT), where 6MWT is defined as the distance walked in 6 minutes, and the change is calculated as: 6MWT at 6 months minus 6MWT at baseline

Outcome measures

Outcome measures
Measure
Placebo + SSA
n=26 Participants
Placebo-matching telotristat ethyl tablet TID + stable-dose somatostatin analog (SSA) therapy
Xermelo + SSA
n=26 Participants
Telotristat ethyl 500 mg po TID + stable-dose somatostatin analog (SSA)
Change in 6MWT at 6 Month Visit
-14 meters
Interval -63.0 to 39.0
25.5 meters
Interval -27.0 to 67.0

SECONDARY outcome

Timeframe: Baseline and 3 month follow-up

Population: Of the 29 participants who completed 3-month follow-up in the Placebo + SSA arm, 7 completed CVHD evaluations at both baseline and 3 months. In the Xermelo + SSA arm, 5 of the 29 participants who completed 3-month follow-up completed CVHD evaluations at both baseline and 3 months.

The Carcinoid Valvular Heart disease (CVHD) % score at 3 months minus CVHD % score at baseline. CVHD score was determined by 1) tricuspid valve appearance, 2) tricuspid regurgitation severity by either spectral pulsed wave or color dopplet flow mapping, 3) pulmonary stenosis severity by spectral pulsed or continuous wave Doppler, and 4) pulmonary insufficiency severity by color Doppler. CVHD % score was calculated as total points assigned across four echo parameters (specified above 1-4)) divided by the maximum possible points (14) and multiplied by 100. The CVHD % score ranges from 0% to 100%, with higher values indicating more severe disease. The change in CVHD % score from baseline to 3 months reflects disease progression or improvement: a positive change indicates worsening valvular involvement, a negative change indicates improvement, and zero indicates stability.

Outcome measures

Outcome measures
Measure
Placebo + SSA
n=7 Participants
Placebo-matching telotristat ethyl tablet TID + stable-dose somatostatin analog (SSA) therapy
Xermelo + SSA
n=5 Participants
Telotristat ethyl 500 mg po TID + stable-dose somatostatin analog (SSA)
Change in CVHD % Score From Baseline to 3 Month Visit
0 Scores on a scale
Interval -7.0 to 0.0
0 Scores on a scale
Interval 0.0 to 0.0

SECONDARY outcome

Timeframe: Baseline and 6 month follow-up

Population: Of the 27 participants who completed 6-month follow-up in the Placebo + SSA arm, 24 participants completed CVHD evaluations at both baseline and 6 months. In the Xermelo + SSA arm, 23 of the 26 participants who completed 6-month follow-up completed CVHD evaluation at both baseline and at 6 months. The values reported represent the median values for change in CVHD score for each Arm, and do not represent non-meaningful placeholders.

The Carcinoid Valvular Heart disease (CVHD) % score at 6 months minus CVHD % score at baseline. CVHD score was determined by 1) tricuspid valve appearance, 2) tricuspid regurgitation severity by either spectral pulsed wave or color dopplet flow mapping, 3) pulmonary stenosis severity by spectral pulsed or continuous wave Doppler, and 4) pulmonary insufficiency severity by color Doppler. CVHD % score was calculated as total points assigned across four echo parameters divided by the maximum possible points (14) and multiplied by 100. The CVHD % score ranges from 0% to 100%, with higher values indicating more severe disease. The change in CVHD % score from baseline to 6 months reflects disease progression or improvement: a positive change indicates worsening valvular involvement, a negative change indicates improvement, and zero indicates stability.

Outcome measures

Outcome measures
Measure
Placebo + SSA
n=24 Participants
Placebo-matching telotristat ethyl tablet TID + stable-dose somatostatin analog (SSA) therapy
Xermelo + SSA
n=23 Participants
Telotristat ethyl 500 mg po TID + stable-dose somatostatin analog (SSA)
Change in CVHD Score From Baseline to 6 Month Visit
0 Scores on a scale
Interval 0.0 to 0.0
0 Scores on a scale
Interval 0.0 to 0.0

SECONDARY outcome

Timeframe: Baseline and 3 month follow-up

Population: Of the 29 participants who completed 3 months follow-up in the Placebo + SSA arm, 3 completed strain RV evaluations at both baseline and 3 months. In the Xermelo + SSA arm, 7 of the 29 participants who completed 3-month follow-up completed strain RV evaluations at both baseline and at 3 months.

Percentage of participants with a significant change in right ventricular global longitudinal strain (strain-RV) from baseline to 3 months. A significant change is defined as an 15% or more change (increase or decrease) from baseline to 3 months. The Exact 2-sided 95% CI is based on the observed proportion of participants.

Outcome measures

Outcome measures
Measure
Placebo + SSA
n=3 Participants
Placebo-matching telotristat ethyl tablet TID + stable-dose somatostatin analog (SSA) therapy
Xermelo + SSA
n=7 Participants
Telotristat ethyl 500 mg po TID + stable-dose somatostatin analog (SSA)
Percentage of Participants With Significant Change in Strain-RV From Baseline at 3 Months
33.3 Percentage of Participants
Interval 0.8 to 90.6
42.9 Percentage of Participants
Interval 9.9 to 81.6

SECONDARY outcome

Timeframe: Baseline and 6 month follow-up

Population: Of the 27 participants who completed 6-month follow-up in the Placebo + SSA arm, 7 completed strain RV evaluations at both baseline and 6 months. In the Xermelo + SSA arm, 5 of the 26 participants who completed 6-month follow-up completed strain RV evaluations at both baseline and 6 months.

Percentage of participants with a significant change in right ventricular global longitudinal strain (strain-RV) from baseline to 6 months. A significant change is defined as an 15% or more change (increase or decrease) from baseline to 6 months. The Exact 2-sided 95% CI is based on the observed proportion of participants.

Outcome measures

Outcome measures
Measure
Placebo + SSA
n=7 Participants
Placebo-matching telotristat ethyl tablet TID + stable-dose somatostatin analog (SSA) therapy
Xermelo + SSA
n=5 Participants
Telotristat ethyl 500 mg po TID + stable-dose somatostatin analog (SSA)
Percentage of Participants With Significant Change in Strain-RV From Baseline at 6 Months
42.9 Percentage of Participants
Interval 9.9 to 81.6
40 Percentage of Participants
Interval 5.3 to 85.3

SECONDARY outcome

Timeframe: Baseline and 3 month follow-up

Population: Of the 29 participants who completed 3-month follow-up in the Placebo + SSA arm, 7 participants completed strain LV evaluations at both baseline and 3 months. In the Xermelo + SSA arm, 7 of the 29 participants who completed 3-month follow-up completed strain LV evaluations at both baseline and 3 months.

Percentage of participants with a significant change in left ventricular global longitudinal strain (strain-LV) from baseline to 3 months. A significant change is defined as an 15% or more change (increase or decrease) from baseline to 3 months. The Exact 2-sided 95% CI is based on the observed proportion of participants.

Outcome measures

Outcome measures
Measure
Placebo + SSA
n=7 Participants
Placebo-matching telotristat ethyl tablet TID + stable-dose somatostatin analog (SSA) therapy
Xermelo + SSA
n=7 Participants
Telotristat ethyl 500 mg po TID + stable-dose somatostatin analog (SSA)
Percentage of Participants With Significant Change in Strain-LV From Baseline at 3 Months
14.3 Percentage of Participants
Interval 0.4 to 57.9
28.6 Percentage of Participants
Interval 3.7 to 71.0

SECONDARY outcome

Timeframe: Baseline and 6 month follow-up

Percentage of participants with a significant change in left ventricular global longitudinal strain (strain-LV) from baseline to 6 months. A significant change is defined as an 15% or more change (increase or decrease) from baseline to 6 months. The Exact 2-sided 95% CI is based on the observed proportion of participants.

Outcome measures

Outcome measures
Measure
Placebo + SSA
n=15 Participants
Placebo-matching telotristat ethyl tablet TID + stable-dose somatostatin analog (SSA) therapy
Xermelo + SSA
n=16 Participants
Telotristat ethyl 500 mg po TID + stable-dose somatostatin analog (SSA)
Percentage of Participants With Significant Change in Strain-LV From Baseline at 6 Months
13.3 Percentage of Participants
Interval 1.7 to 40.5
12.5 Percentage of Participants
Interval 1.6 to 38.4

SECONDARY outcome

Timeframe: 3 month follow-up

Population: Among 29 who completed 3 months follow-up in the Placebo + SSA arm, 5 participants completed TAPSE evaluations at both baseline and at 3 months. In the Xermelo + SSA arm, 7 of the 29 participants who completed TAPSE evaluations at both baseline and at 3 months.

Percentage of participants with a normal Tricuspid Annular Plane Systolic Excursion (TAPSE) at 3 months, where TAPSE ≥1.6cm is defined as normal. The Exact 2-sided 95% CI is based on the observed proportion of participants.

Outcome measures

Outcome measures
Measure
Placebo + SSA
n=5 Participants
Placebo-matching telotristat ethyl tablet TID + stable-dose somatostatin analog (SSA) therapy
Xermelo + SSA
n=7 Participants
Telotristat ethyl 500 mg po TID + stable-dose somatostatin analog (SSA)
Percentage of Participants With Normal TAPSE at 3 Months
100 Percentage of Participants
Interval 47.8 to 100.0
86 Percentage of Participants
Interval 42.1 to 99.6

SECONDARY outcome

Timeframe: 6 month follow-up

Population: Of the 27 participants who completed 6-month follow-up in the Placebo + SSA arm, 21 completed TAPSE evaluations at both baseline and 6 months. In Xermelo + SSA arm, 20 of the 26 who completed 6-month follow-up ccompleted TAPSE evaluation at both baseline and 6 months.

Percentage of participants with a normal Tricuspid Annular Plane Systolic Excursion (TAPSE) at 6 months, where TAPSE ≥1.6cm is defined as normal. The Exact 2-sided 95% CI is based on the observed proportion of participants.

Outcome measures

Outcome measures
Measure
Placebo + SSA
n=21 Participants
Placebo-matching telotristat ethyl tablet TID + stable-dose somatostatin analog (SSA) therapy
Xermelo + SSA
n=20 Participants
Telotristat ethyl 500 mg po TID + stable-dose somatostatin analog (SSA)
Percentage of Participants With Normal TAPSE at 6 Months
100 Percentage of Participants
Interval 83.9 to 100.0
95 Percentage of Participants
Interval 75.1 to 99.9

SECONDARY outcome

Timeframe: Baseline and 3 month follow-up

Population: Of the 29 participants who completed 3-month follow-up in the Placebo + SSA arm, 26 completed 5HIAA evaluations at both baseline and 3 months. In Xermelo + SSA arm, all 29 who completed 3-month follow-up completed 5HIAA evaluations at both baseline and 3 months.

Change in plasma 5HIAA (5-Hydroxyindoleacetic acid) level from baseline to 3 months. The change is calculated as: 5HIAA at 3 months minus 5HIAA at baseline

Outcome measures

Outcome measures
Measure
Placebo + SSA
n=26 Participants
Placebo-matching telotristat ethyl tablet TID + stable-dose somatostatin analog (SSA) therapy
Xermelo + SSA
n=29 Participants
Telotristat ethyl 500 mg po TID + stable-dose somatostatin analog (SSA)
Change in 5HIAA From Baseline to 3 Months
-0.9 ng/mL
Interval -4.2 to 6.6
-55.3 ng/mL
Interval -118.2 to -28.6

SECONDARY outcome

Timeframe: Baseline and 6 month follow-up

Change in 5HIAA measurement from baseline to 6 months

Outcome measures

Outcome measures
Measure
Placebo + SSA
n=26 Participants
Placebo-matching telotristat ethyl tablet TID + stable-dose somatostatin analog (SSA) therapy
Xermelo + SSA
n=26 Participants
Telotristat ethyl 500 mg po TID + stable-dose somatostatin analog (SSA)
Change in 5HIAA From Baseline to 6 Months
0.1 ng/mL
Interval -1.9 to 7.3
-56.4 ng/mL
Interval -104.4 to -18.6

SECONDARY outcome

Timeframe: Baseline and 3 months follow-up

Population: Of the 29 participants who completed 3-month follow-up in the Placebo + SSA arm, 25 completed troponin evaluation at both baseline and 3 months. In the Xermelo + SSA arm, 25 of the 29 who completed 3-month completed troponin evaluation at both baseline and 3 months.

Change in troponin level from baseline to 3 months, calculated as: troponine at 3 months minus troponin at baseline

Outcome measures

Outcome measures
Measure
Placebo + SSA
n=25 Participants
Placebo-matching telotristat ethyl tablet TID + stable-dose somatostatin analog (SSA) therapy
Xermelo + SSA
n=25 Participants
Telotristat ethyl 500 mg po TID + stable-dose somatostatin analog (SSA)
Change in Troponin From Baseline to 3 Months
0 ng/L
Interval -1.0 to 2.0
0 ng/L
Interval -2.0 to 1.0

SECONDARY outcome

Timeframe: Baseline and 6 months follow-up

Population: Of the 27 participants who completed 6-month follow-up in the Placebo + SSA arm, 26 completed troponin evaluation at both baseline and 6 months. In the Xermelo + SSA arm, 25 of the 26 who completed 6-month follow-up completed troponin evaluation at both baseline and at 6 months.

Change in troponin level from baseline to 6 months, calculated as: troponine at 6 months minus troponin at baseline

Outcome measures

Outcome measures
Measure
Placebo + SSA
n=26 Participants
Placebo-matching telotristat ethyl tablet TID + stable-dose somatostatin analog (SSA) therapy
Xermelo + SSA
n=25 Participants
Telotristat ethyl 500 mg po TID + stable-dose somatostatin analog (SSA)
Change in Troponin From Baseline to 6 Months
0 ng/L
Interval -1.0 to 1.0
0 ng/L
Interval -2.0 to 1.0

SECONDARY outcome

Timeframe: Baseline and 3 months follow-up

Population: Of the 29 participants who completed 3-month follow-up in the Placebo + SSA arm, 27 completed MDASI core symptom evaluation at both baseline and 3 months. In the Xermelo + SSA arm, 28 of the 29 participants who completed 3-month follow-up completed MDASI core symptom evaluation at both baseline and 3 months.

Change in MD Anderson Symptom Inventory (MDASI) mean core symptom score from baseline to 3 months. The MDASI mean core symptom score is calculated as the mean of 13 core symptom items, each ranged from 0 ( "not present") to 10 being ("as bad as you can imagine"), with the higher scores indicating worse symptoms. The change is computed as: score at 3 months minus score at baseline

Outcome measures

Outcome measures
Measure
Placebo + SSA
n=27 Participants
Placebo-matching telotristat ethyl tablet TID + stable-dose somatostatin analog (SSA) therapy
Xermelo + SSA
n=28 Participants
Telotristat ethyl 500 mg po TID + stable-dose somatostatin analog (SSA)
Change in MDASI Mean Core Symptom Score From Baseline to 3 Months
-0.2 Scores on a scale
Interval -0.4 to 0.4
0.1 Scores on a scale
Interval -0.2 to 0.3

SECONDARY outcome

Timeframe: Baseline and 6 months follow-up

Population: All 27 participants who completed 6-month follow-up in the Placebo + SSA arm completed MDASI core symptom evaluation at both baseline and 6 months. In the Xermelo + SSA arm, 25 of the 26 participants who completed 6-month follow-up completed MDASI core symptom evaluation at both baseline and 6 months.

Change in MD Anderson Symptom Inventory (MDASI) mean core symptom score from baseline to 6 months. The MDASI mean core symptom score is calculated as the mean of 13 core symptom items, each ranged from 0 ( "not present") to 10 being ("as bad as you can imagine"), with the higher scores indicating worse symptoms. The change is computed as: score at 6 months minus score at baseline

Outcome measures

Outcome measures
Measure
Placebo + SSA
n=27 Participants
Placebo-matching telotristat ethyl tablet TID + stable-dose somatostatin analog (SSA) therapy
Xermelo + SSA
n=25 Participants
Telotristat ethyl 500 mg po TID + stable-dose somatostatin analog (SSA)
Change in Core Symptom Score From Baseline to 6 Months
0 Scores on a scale
Interval -0.3 to 0.4
0 Scores on a scale
Interval -0.3 to 0.2

SECONDARY outcome

Timeframe: Baseline and 3 months follow-up

Population: Of the 29 participants who completed 3-month follow-up in the Placebo + SSA arm, 27 completed MDASI total symptom evaluation at both baseline and 3 months. In the Xermelo + SSA arm, all 28 participants who completed 3-month follow-up completed MDASI total symptom evaluation at both baseline and 3 months.

Change in MD Anderson Symptom Inventory (MDASI) mean total symptom score from baseline to 3 months. The MDASI mean total symptom score is calculated as the mean symptom severity of 21 symptom items (13 core symptom items and 8 additional symptom items), each ranged from 0 ( "not present") to 10 being ("as bad as you can imagine), with the higher scores indicating worse symptoms. The change is computed as: score at 3 months minus score at baseline

Outcome measures

Outcome measures
Measure
Placebo + SSA
n=27 Participants
Placebo-matching telotristat ethyl tablet TID + stable-dose somatostatin analog (SSA) therapy
Xermelo + SSA
n=28 Participants
Telotristat ethyl 500 mg po TID + stable-dose somatostatin analog (SSA)
Change in MDASI Mean Total Symptom Score From Baseline to 3 Months
0 points
Interval -0.3 to 0.5
0 points
Interval -0.2 to 0.2

SECONDARY outcome

Timeframe: Baseline and 6 months follow-up

Population: All 27 participants who completed 6-month follow-up in the Placebo + SSA arm completed MDASI total symptom evaluation at both baseline and 6 months. In the Xermelo + SSA arm, 25 of the 26 participants who completed 6-month follow-up completed MDASI total symptom evaluation at both baseline and 6 months.

Change in MD Anderson Symptom Inventory (MDASI) mean total symptom score from baseline to 6 months. The MDASI mean total symptom score is calculated as the mean symptom severity of 21 symptom items (13 core symptom items and 8 additional symptom items), each ranged from 0 ( "not present") to 10 being ("as bad as you can imagine), with the higher scores indicating worse symptoms. The change is computed as: score at 6 months minus score at baseline

Outcome measures

Outcome measures
Measure
Placebo + SSA
n=27 Participants
Placebo-matching telotristat ethyl tablet TID + stable-dose somatostatin analog (SSA) therapy
Xermelo + SSA
n=25 Participants
Telotristat ethyl 500 mg po TID + stable-dose somatostatin analog (SSA)
Change in MDASI Mean Total Symptom Score From Baseline to 6 Months
-0.1 Scores on a scale
Interval -0.2 to 0.2
0 Scores on a scale
Interval -0.4 to 0.3

SECONDARY outcome

Timeframe: Baseline and 3 months follow-up

Population: Of the 29 participants who completed 3-month follow-up in the Placebo + SSA arm, 26 completed MDASI interference evaluation at both baseline and 3 months. In the Xermelo + SSA arm, 28 of the 29 participants who completed 3-month follow-up completed MDASI interference evaluation at both baseline and 3 months.

Change in MD Anderson Symptom Inventory (MDASI) mean interference score from baseline to 3 months. The MDASI mean interference score is calculated as the mean of 6 interference items, each ranged from 0 ( "not present") to 10 being ("as bad as you can imagine"), with the higher scores indicating worse interference. The change is computed as: score at 3 months minus score at baseline

Outcome measures

Outcome measures
Measure
Placebo + SSA
n=26 Participants
Placebo-matching telotristat ethyl tablet TID + stable-dose somatostatin analog (SSA) therapy
Xermelo + SSA
n=28 Participants
Telotristat ethyl 500 mg po TID + stable-dose somatostatin analog (SSA)
Change in MDASI Mean Interference Score From Baseline to 3 Months
0 Scores on a scale
Interval -0.3 to 0.8
0 Scores on a scale
Interval -0.4 to 0.1

SECONDARY outcome

Timeframe: Baseline and 6 months follow-up

Population: Of the 27 participants who completed 6-month follow-up in the Placebo + SSA arm, 26 completed MDASI interferemce evaluation at both baseline and 6 months. In the Xermelo + SSA arm, 24 of the 26 who completed 6-month follow-up completed MDASI interference evaluation at both baseline and 6 months.

Change in MD Anderson Symptom Inventory (MDASI) mean interference score from baseline to 6 months. The MDASI mean interference score is calculated as the mean of 6 interference items, each ranged from 0 ( "not present") to 10 being ("as bad as you can imagine"), with the higher scores indicating worse interference. The change is computed as: score at 6 months minus score at baseline

Outcome measures

Outcome measures
Measure
Placebo + SSA
n=26 Participants
Placebo-matching telotristat ethyl tablet TID + stable-dose somatostatin analog (SSA) therapy
Xermelo + SSA
n=24 Participants
Telotristat ethyl 500 mg po TID + stable-dose somatostatin analog (SSA)
Change in Interference Score From Baseline to 6 Months
0 Scores on a scale
Interval -0.3 to 0.5
0 Scores on a scale
Interval -0.5 to 0.0

SECONDARY outcome

Timeframe: Baseline, 3 months follow-up, 6 months follow-up

Population: Those who were treated: 35 in placebo + SSA and 32 in Xermelo + SSA

Percentage of participants classified as compliant (compliance≥70%) during the study. Compliance is calculated as the total number of pills taken divided by the toal number of pills dispensed while the patient was on the study. Participants with compliance≥70% are considered compliant; otherwise, not compliant.

Outcome measures

Outcome measures
Measure
Placebo + SSA
n=35 Participants
Placebo-matching telotristat ethyl tablet TID + stable-dose somatostatin analog (SSA) therapy
Xermelo + SSA
n=32 Participants
Telotristat ethyl 500 mg po TID + stable-dose somatostatin analog (SSA)
Compliance>=70% While the Patients Were in the Study
74.3 Percentage of Participants
Interval 56.7 to 87.5
87.5 Percentage of Participants
Interval 71.0 to 96.5

Adverse Events

Placebo + SSA

Serious events: 3 serious events
Other events: 26 other events
Deaths: 1 deaths

Xermelo + SSA

Serious events: 4 serious events
Other events: 27 other events
Deaths: 0 deaths

Serious adverse events

Serious adverse events
Measure
Placebo + SSA
n=35 participants at risk
Placebo-matching telotristat ethyl tablet TID + stable-dose somatostatin analog (SSA) therapy
Xermelo + SSA
n=32 participants at risk
Telotristat ethyl 500 mg po TID + stable-dose somatostatin analog (SSA)
Gastrointestinal disorders
Ascites (death)
2.9%
1/35 • Number of events 1 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
0.00%
0/32 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
General disorders
Cataract
2.9%
1/35 • Number of events 1 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
0.00%
0/32 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
Gastrointestinal disorders
Diarrhea
0.00%
0/35 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
3.1%
1/32 • Number of events 1 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
Respiratory, thoracic and mediastinal disorders
Dyspnea
0.00%
0/35 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
3.1%
1/32 • Number of events 1 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
Cardiac disorders
Ejection fraction decreased
0.00%
0/35 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
3.1%
1/32 • Number of events 1 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
General disorders
Fatigue
0.00%
0/35 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
3.1%
1/32 • Number of events 1 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
Musculoskeletal and connective tissue disorders
Fracture
0.00%
0/35 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
3.1%
1/32 • Number of events 1 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
Nervous system disorders
Presyncope
2.9%
1/35 • Number of events 1 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
0.00%
0/32 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
Nervous system disorders
Syncope
0.00%
0/35 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
3.1%
1/32 • Number of events 1 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months

Other adverse events

Other adverse events
Measure
Placebo + SSA
n=35 participants at risk
Placebo-matching telotristat ethyl tablet TID + stable-dose somatostatin analog (SSA) therapy
Xermelo + SSA
n=32 participants at risk
Telotristat ethyl 500 mg po TID + stable-dose somatostatin analog (SSA)
Investigations
Blood lactate dehydrogenase increased
5.7%
2/35 • Number of events 2 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
6.2%
2/32 • Number of events 2 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
Gastrointestinal disorders
Nausea
17.1%
6/35 • Number of events 11 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
21.9%
7/32 • Number of events 8 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
Gastrointestinal disorders
Constipation
14.3%
5/35 • Number of events 6 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
25.0%
8/32 • Number of events 8 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
Investigations
Alkaline phosphtase increased
8.6%
3/35 • Number of events 4 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
25.0%
8/32 • Number of events 8 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
General disorders
Fatigue
11.4%
4/35 • Number of events 6 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
15.6%
5/32 • Number of events 5 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
Nervous system disorders
Headache
11.4%
4/35 • Number of events 5 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
18.8%
6/32 • Number of events 6 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
Blood and lymphatic system disorders
Anemia
11.4%
4/35 • Number of events 4 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
15.6%
5/32 • Number of events 5 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
Renal and urinary disorders
Creatinine increased
22.9%
8/35 • Number of events 8 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
3.1%
1/32 • Number of events 1 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
Respiratory, thoracic and mediastinal disorders
Dyspnea
14.3%
5/35 • Number of events 5 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
9.4%
3/32 • Number of events 3 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
Cardiac disorders
Heart failure
2.9%
1/35 • Number of events 1 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
21.9%
7/32 • Number of events 7 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
Metabolism and nutrition disorders
Hyperkalemia
8.6%
3/35 • Number of events 3 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
12.5%
4/32 • Number of events 5 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
Investigations
Cardiac troponin T increased
2.9%
1/35 • Number of events 1 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
18.8%
6/32 • Number of events 6 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
Gastrointestinal disorders
Abdominal pain
11.4%
4/35 • Number of events 5 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
3.1%
1/32 • Number of events 1 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
Gastrointestinal disorders
Bloating
11.4%
4/35 • Number of events 5 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
3.1%
1/32 • Number of events 1 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
General disorders
Edema limbs
17.1%
6/35 • Number of events 6 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
0.00%
0/32 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
Metabolism and nutrition disorders
Anorexia
2.9%
1/35 • Number of events 1 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
9.4%
3/32 • Number of events 4 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
Cardiac disorders
Chest pain - cardiac
8.6%
3/35 • Number of events 4 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
3.1%
1/32 • Number of events 1 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
Renal and urinary disorders
Chronic kidney disease
8.6%
3/35 • Number of events 3 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
6.2%
2/32 • Number of events 2 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
Gastrointestinal disorders
Diarrhea
2.9%
1/35 • Number of events 1 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
9.4%
3/32 • Number of events 4 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
Investigations
Aspartate aminotransferase increased
8.6%
3/35 • Number of events 3 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
3.1%
1/32 • Number of events 1 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
Metabolism and nutrition disorders
Hyperglycemia
31.4%
11/35 • Number of events 13 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
62.5%
20/32 • Number of events 21 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
Nervous system disorders
Dizziness
2.9%
1/35 • Number of events 1 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
6.2%
2/32 • Number of events 3 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
Vascular disorders
Flushing
5.7%
2/35 • Number of events 2 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months
6.2%
2/32 • Number of events 2 • Adverse events were monitored from baseline throughout the follow-up period (3-month and 6-month follow-up visits) and for up to 30 days after the last dose of the study drug, with the treatment period planned for 6-months

Additional Information

Cezar A. Iliescu, MD

M.D. Anderson Cancer Center

Phone: (713) 792-4728

Results disclosure agreements

  • Principal investigator is a sponsor employee
  • Publication restrictions are in place