Utilizing Palliative Leaders In Facilities to Transform Care for Alzheimer's Disease
NCT04520698 · Status: COMPLETED · Phase: NA · Type: INTERVENTIONAL · Enrollment: 1322
Last updated 2025-10-23
Summary
The purpose of this study is to evaluate a comprehensive model for integrating both primary and specialty Palliative Care for older adults with dementia into nursing facilities. Palliative Care is a supportive care approach that aims to improve the quality of life of patients and their families facing serious or life-threatening illnesses, through the prevention and relief of suffering through the treatment of pain and other problems, using physical, psychosocial and spiritual approaches. Palliative care is specialized medical care for people who are living with a serious illness. This type of care is focused on providing relief from the symptoms and from the stress of the illness. The goal is to improve quality of life for both patient and family.
The UPLIFT-AD model will include providing education on primary Palliative Care for residents with dementia to nursing facility staff, training nursing facility staff in providing primary Palliative Care, and providing access to specialty Palliative Care consultations for residents. To help understand the impact of these interventions, this study will also collect information about resident health, the care they receive, and perceptions of their quality of life according to both family members and nursing facility staff.
Conditions
- Alzheimer Disease
Interventions
- BEHAVIORAL
-
UPLIFT-AD
Access to palliative care needs screening, advance care planning conversations, palliative care consultations
Sponsors & Collaborators
-
University of Maryland, Baltimore
collaborator OTHER -
National Institute on Aging (NIA)
collaborator NIH -
Indiana University
lead OTHER
Principal Investigators
-
Kathleen T Unroe, MD, MHA · Indiana University
-
John Cagle, PhD, MSW · University of Maryland, Baltimore
Study Design
- Allocation
- NON_RANDOMIZED
- Purpose
- SUPPORTIVE_CARE
- Masking
- NONE
- Model
- CROSSOVER
Eligibility
- Min Age
- 18 Years
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2021-09-08
- Primary Completion
- 2025-09-30
- Completion
- 2025-09-30
Countries
- United States
Study Locations
More Related Trials
-
Care Management for Patients With Alzheimer Disease and Their Family Caregivers
NCT00246896 ·Status: COMPLETED ·Phase: NA
-
Palliative and End-of-life Care in Advanced Dementia: Evaluation of a Program of Organization of Care in Long-term Care
NCT01441726 ·Status: COMPLETED
-
Translating Data Science to Palliative Care
NCT05942040 ·Status: COMPLETED ·Phase: NA
-
Implementation of a Telehealth Palliative Care Model for Persons With Dementia
NCT05001620 ·Status: COMPLETED ·Phase: NA
-
Palliative Care for Patients With Dementia
NCT05749146 ·Status: ACTIVE_NOT_RECRUITING ·Phase: NA
-
Enhancing Palliative Care in ICU
NCT06605079 ·Status: RECRUITING ·Phase: NA
-
Supportive Care for Cognitively Impaired Patients and Families
NCT03881579 ·Status: ACTIVE_NOT_RECRUITING ·Phase: NA
-
Improving Mood and Behavior in Assisted Living Residents Through Skills Training for Their Caregivers
NCT00255866 ·Status: COMPLETED ·Phase: PHASE2/PHASE3
-
Enhancing Care Coordination: Hospital to Home for Cognitively Impaired Older Adults and Their Caregivers
NCT00294307 ·Status: COMPLETED
-
SUPPORT-D Intervention for Persons With Alzheimer's Disease and Their Caregivers
NCT05501119 ·Status: COMPLETED ·Phase: NA
-
Developing and Testing the Enhancing Active Caregiver Training (EnACT) Intervention for Dementia Family Caregivers
NCT04920006 ·Status: COMPLETED ·Phase: NA
-
Optimizing Care for Patients With Dementia
NCT03442322 ·Status: COMPLETED ·Phase: NA
-
Community Paramedic Coaching Program for Caregivers and People With Dementia
NCT04239924 ·Status: COMPLETED ·Phase: NA
-
An Intervention to Improve End of Life Decision Making Among Homeless Persons
NCT00471016 ·Status: COMPLETED ·Phase: NA
-
Pilot Study of an Advance Care Planning Intervention Among Persons With Dementia
NCT05049291 ·Status: COMPLETED ·Phase: NA
-
Powerful Tools for Caregivers of Dementia Patients
NCT02697721 ·Status: COMPLETED ·Phase: NA
-
Alzheimer's Caregiver Coping: Mental and Physical Health
NCT02317523 ·Status: COMPLETED ·Phase: NA
-
Virtual Coaching to Maximize Dementia Caregivers' Respite Time Use
NCT03689179 ·Status: COMPLETED ·Phase: NA
-
Enhancing Quality of Life for Nursing Home Residents
NCT00388544 ·Status: COMPLETED ·Phase: PHASE2
-
Testing the Implementation of EIT-4-BPSD
NCT03014570 ·Status: COMPLETED ·Phase: NA
-
Dissemination and Implementation of Function Focused Care for Assisted Living
NCT03459118 ·Status: COMPLETED ·Phase: NA
-
Caregiver Outcomes of Alzheimer's Disease Screening
NCT03300180 ·Status: COMPLETED ·Phase: NA
-
Effect of an Advance Care Planning Intervention
NCT04852055 ·Status: COMPLETED ·Phase: NA
-
Randomized Evaluation of Default Access to Palliative Services
NCT02505035 ·Status: COMPLETED ·Phase: NA
-
Palliative Care at Home for Dementia
NCT03798327 ·Status: COMPLETED ·Phase: NA