Multiple Myeloma (MM) Quality of Life (QOL) Study
NCT04388735 · Status: UNKNOWN · Type: OBSERVATIONAL · Enrollment: 360
Last updated 2020-05-14
Summary
The main purpose of this study is to examine differences in quality of life and psychological distress for both Multiple Myeloma patients receiving treatment and their caregivers and to assess patient and caregiver prognostic understanding (understanding of the likely course of a disease over time) of Multiple Myeloma to guide development of more personalized treatment plans.
This study looks to further understand quality of life changes throughout multiple myeloma therapy for both patients and caregivers to help determine ways to improve patient and caregiver understanding of illness and in turn, tailor customized treatment that best aligns with patient preferences.
The study will use a series of questionnaires to measure quality of life, mood, coping strategies, and prognostic understanding.
Conditions
- Multiple Myeloma
- Quality of Life
- Symptom, Behavioral
Interventions
- BEHAVIORAL
-
Questionnaire
Series of questions covering quality of life, physical and psychological symptom burden, mood, and illness and prognostic understanding administered in person or remotely.
Sponsors & Collaborators
-
Kully Family Foundation
collaborator UNKNOWN -
Massachusetts General Hospital
lead OTHER
Principal Investigators
-
Elizabeth K O'Donnell, MD · Massachusetts General Hospital
Eligibility
- Min Age
- 18 Years
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2020-06-30
- Primary Completion
- 2021-11-15
- Completion
- 2022-05-16
Countries
- United States
Study Locations
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