Living Well, Dying Well. a Research Programme to Support Living Until the End

Summary

The iLIVE project involves a cohort study in which patients with an estimated life expectancy of six months or less are followed until they die. In total, the investigators will include 2200 patients in 11 countries, i.e. 200 per country. The primary outcome for the cohort study is a descriptive assessment of the concerns, expectations and preferences around dying and end-of-life care of patients and their relatives, in different settings and cultures..

Conditions

• Terminal Care

Interventions

OTHER

Observational study

No intervention involved

Sponsors & Collaborators

• University of Liverpool

  collaborator OTHER

• Klinikum der Universität Köln

  collaborator OTHER

• Lund University

  collaborator OTHER

• The University Clinic of Pulmonary and Allergic Diseases Golnik

  collaborator OTHER

• University of Bern

  collaborator OTHER

• Cudeca Hospice Foundation

  collaborator OTHER

• Helse-Bergen HF

  collaborator OTHER

• Landspitali University Hospital

  collaborator OTHER

• Pallium Latinoamérica N.G.O

  collaborator OTHER

• University of Humanistic Studies

  collaborator UNKNOWN

• Medical University of Vienna

  collaborator OTHER

• Arohanui Hospice Service Trust

  collaborator UNKNOWN

• Erasmus Medical Center

  lead OTHER

Principal Investigators

• Agnes van der Heide, PhD · Erasmus Medical Center

Eligibility

Min Age

18 Years

Sex

ALL

Healthy Volunteers

No

Timeline & Regulatory

Start

2020-09-01

Primary Completion

2023-07-31

Completion

2023-07-31

Countries

• Argentina
• Germany
• Iceland
• Netherlands
• New Zealand
• Norway
• Slovenia
• Spain
• Sweden
• Switzerland
• United Kingdom

Study Locations