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Voices Of Individuals: Challenges and Experiences Of bvFTD

NCT04060082 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 26

Last updated 2026-01-12

No results posted yet for this study

Summary

The VOICE Of bvFTD study is a telephone interview research study about life with or at risk for behavioral variant frontotemporal dementia (bvFTD). The study aims to understand how bvFTD impacts individuals' day to day lives, how people think about themselves, and what challenges they face.

Conditions

  • Frontotemporal Dementia
  • Frontotemporal Degeneration
  • Frontotemporal Dementia, Behavioral Variant
  • FTD

Interventions

OTHER

Telephone Interview

Participants will be asked to answer questions about their experiences with FTD.

Sponsors & Collaborators

Principal Investigators

  • Jill Owczarzak, PhD · Johns Hopkins Bloomberg School of Public Health

  • Lori Erby, PhD, ScM · National Institutes of Health (NIH)

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2019-06-26
Primary Completion
2025-12-31
Completion
2025-12-31

Countries

  • United States

Study Locations

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Entities

Companies

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT04060082 on ClinicalTrials.gov