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Supportive Care Needs of Caregivers of People With Erdheim-Chester Disease and Other Histiocytic Diseases

NCT03990428 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 250

Last updated 2025-09-11

No results posted yet for this study

Summary

This study is being done to answer the following question: What are the supportive care needs of informal caregivers of people with Erdheim-Chester disease and other histiocytic diseases?

Conditions

  • Supportive Care Needs of Caregivers

Interventions

BEHAVIORAL

online surveys

Survey data about supportive care needs, mood, and the experience of IC's finding meaning and purpose in the caregiving experience.

Sponsors & Collaborators

Principal Investigators

  • Eli Diamond, MD · Memorial Sloan Kettering Cancer Center

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
Yes

Timeline & Regulatory

Start
2019-06-14
Primary Completion
2026-06-30
Completion
2026-06-30

Countries

  • United States

Study Locations

More Related Trials

Entities

Companies

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT03990428 on ClinicalTrials.gov