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Evaluation of the Adhesion to the GENEPY Network

NCT03979612 · Status: UNKNOWN · Type: OBSERVATIONAL · Enrollment: 450

Last updated 2019-06-07

No results posted yet for this study

Summary

In order to best meet the needs of all those affected by the genetic risk of cancer in our region, it is important to identify the factors likely to influence the course leading to the GENEPY surveillance network. The aim of this study is to evaluatie the adhesion to the network of care of people at genetic risk of cancer in Midi-Pyrénées (GENEPY).

Conditions

  • Hereditary Cancer Syndrome
  • Hereditary Breast and Ovarian Cancer
  • Hereditary Colorectal Endometrial Cancer Syndrome

Interventions

GENETIC

inclusion of subjects in the GENEPY network

The inclusion of subjects in the GENEPY network follows the genealogical study of a case (index): relatives are identified as potentially at risk. In accordance with the recommendations, but also generally at the wish of the patients (Claes 2003), the index case is then asked to inform its relatives and to propose them to go to an oncogenetic consultation of their choice. If these people reside in the Midi Pyrenees Toulouse oncogenetic consultation is open to them. If following this consultation a mutation is identified or that their genetic risk is considered important, they are proposed to join the GENEPY network for their monitoring.

Sponsors & Collaborators

  • Institut Claudius Regaud

    lead OTHER

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
Yes

Timeline & Regulatory

Start
2019-08-01
Primary Completion
2019-10-31
Completion
2020-12-31

Countries

  • France

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT03979612 on ClinicalTrials.gov