Trial Outcomes & Findings for Decision Making and Implementation of Aging-in-Place/Long Term Care Plans Among Older Adults (NCT NCT03960476)
NCT ID: NCT03960476
Last Updated: 2026-04-17
Results Overview
Participants were asked "If you developed Alzheimer's or memory loss and could no longer live independently in your home, have you decided what your living preferences (e.g. stay in own home, retirement/long term care community) would be?" Decision-making is measured as a binary ('yes', 'no') outcome at each time-point. Percentage given below is the % of participants who indicated "YES", that they have decided on their living preferences. All statistical analyses for this outcome reflect data at the 36 month assessment.
Recruitment status
COMPLETED
Study phase
NA
Target enrollment
293 participants
Primary outcome timeframe
Assessed at baseline and every 6 months, 36 months reported
Results posted on
2026-04-17
Participant Flow
293 Participants were recruited and given access to the web-based intervention PlanYourLifespan.org. Participants were assessed at Baseline, 1 month post baseline, and at 6 month intervals thereafter (6/12/18 months post baseline, etc). 36 Months Post-Baseline is the timepoint of interest for all primary and secondary outcomes. No partial data has been reported for any outcome. Reported data and values will not be updated.
Participant milestones
| Measure |
All Enrolled Subjects
All study participants will be given access to the web-based study intervention, PlanYourLifespan.org.
|
|---|---|
|
Baseline Assessment
STARTED
|
293
|
|
Baseline Assessment
COMPLETED
|
293
|
|
Baseline Assessment
NOT COMPLETED
|
0
|
|
1 month Assessment
STARTED
|
293
|
|
1 month Assessment
COMPLETED
|
287
|
|
1 month Assessment
NOT COMPLETED
|
6
|
|
6 Month Assessment
STARTED
|
293
|
|
6 Month Assessment
COMPLETED
|
285
|
|
6 Month Assessment
NOT COMPLETED
|
8
|
|
12 Month Assessment
STARTED
|
292
|
|
12 Month Assessment
COMPLETED
|
278
|
|
12 Month Assessment
NOT COMPLETED
|
14
|
|
18 Month Assessment
STARTED
|
290
|
|
18 Month Assessment
COMPLETED
|
265
|
|
18 Month Assessment
NOT COMPLETED
|
25
|
|
24 Month Assessment
STARTED
|
287
|
|
24 Month Assessment
COMPLETED
|
264
|
|
24 Month Assessment
NOT COMPLETED
|
23
|
|
30 month assessment
STARTED
|
281
|
|
30 month assessment
COMPLETED
|
246
|
|
30 month assessment
NOT COMPLETED
|
35
|
|
36 Month Assessment
STARTED
|
280
|
|
36 Month Assessment
COMPLETED
|
240
|
|
36 Month Assessment
NOT COMPLETED
|
40
|
Reasons for withdrawal
| Measure |
All Enrolled Subjects
All study participants will be given access to the web-based study intervention, PlanYourLifespan.org.
|
|---|---|
|
1 month Assessment
Unable to Contact
|
4
|
|
1 month Assessment
Subject Declined Assessment
|
2
|
|
6 Month Assessment
Death
|
1
|
|
6 Month Assessment
Unable to Contact
|
4
|
|
6 Month Assessment
Subject declined Assessment
|
3
|
|
12 Month Assessment
Death
|
1
|
|
12 Month Assessment
Withdrawal by Subject
|
1
|
|
12 Month Assessment
Unable to Contact
|
8
|
|
12 Month Assessment
Subject Declined Assessment
|
4
|
|
18 Month Assessment
Death
|
2
|
|
18 Month Assessment
Withdrawal by Subject
|
1
|
|
18 Month Assessment
Unable to Contact
|
19
|
|
18 Month Assessment
Subject Declined Assessment
|
3
|
|
24 Month Assessment
Death
|
2
|
|
24 Month Assessment
Withdrawal by Subject
|
4
|
|
24 Month Assessment
Unable to Contact
|
10
|
|
24 Month Assessment
Subject Declined Assessment
|
7
|
|
30 month assessment
Withdrawal by Subject
|
1
|
|
30 month assessment
Unable to contact
|
22
|
|
30 month assessment
Subject declined Assessment
|
12
|
|
36 Month Assessment
Death
|
1
|
|
36 Month Assessment
Withdrawal by Subject
|
2
|
|
36 Month Assessment
Unable to Contact
|
17
|
|
36 Month Assessment
Subject Declined Assessment
|
17
|
|
36 Month Assessment
Participant Failed Pre-Assessment Cognition Testing
|
3
|
Baseline Characteristics
Decision Making and Implementation of Aging-in-Place/Long Term Care Plans Among Older Adults
Baseline characteristics by cohort
| Measure |
All Enrolled Subjects
n=293 Participants
All study participants will be given access to the web-based study intervention, PlanYourLifespan.org.
|
|---|---|
|
Age, Continuous
|
73.8 years
STANDARD_DEVIATION 5.23 • n=130 Participants
|
|
Sex: Female, Male
Female
|
213 Participants
n=130 Participants
|
|
Sex: Female, Male
Male
|
80 Participants
n=130 Participants
|
|
Race (NIH/OMB)
American Indian or Alaska Native
|
0 Participants
n=130 Participants
|
|
Race (NIH/OMB)
Asian
|
8 Participants
n=130 Participants
|
|
Race (NIH/OMB)
Native Hawaiian or Other Pacific Islander
|
0 Participants
n=130 Participants
|
|
Race (NIH/OMB)
Black or African American
|
83 Participants
n=130 Participants
|
|
Race (NIH/OMB)
White
|
191 Participants
n=130 Participants
|
|
Race (NIH/OMB)
More than one race
|
3 Participants
n=130 Participants
|
|
Race (NIH/OMB)
Unknown or Not Reported
|
8 Participants
n=130 Participants
|
|
Ethnicity (NIH/OMB)
Hispanic or Latino
|
13 Participants
n=130 Participants
|
|
Ethnicity (NIH/OMB)
Not Hispanic or Latino
|
273 Participants
n=130 Participants
|
|
Ethnicity (NIH/OMB)
Unknown or Not Reported
|
7 Participants
n=130 Participants
|
|
Rate of Participant Long-term care planning for Alzheimer's Dementia/Memory Loss
|
121 Participants
n=130 Participants
|
PRIMARY outcome
Timeframe: Assessed at baseline and every 6 months, 36 months reportedPopulation: 240 participants out of 293 had data available to report at 36 months Assessment. All participants with data available at 36 months post-baseline are included in the analysis population.
Participants were asked "If you developed Alzheimer's or memory loss and could no longer live independently in your home, have you decided what your living preferences (e.g. stay in own home, retirement/long term care community) would be?" Decision-making is measured as a binary ('yes', 'no') outcome at each time-point. Percentage given below is the % of participants who indicated "YES", that they have decided on their living preferences. All statistical analyses for this outcome reflect data at the 36 month assessment.
Outcome measures
| Measure |
All Enrolled Subjects
n=240 Participants
All study participants will be given access to the web-based study intervention, PlanYourLifespan.org.
|
|---|---|
|
Rate of Participant Long Term Care Planning for Alzheimer's Dementia/Memory Loss
|
173 Participants
|
SECONDARY outcome
Timeframe: assessed 0-36 months, month 36 reportedPopulation: 240 Participants completed 36 Month Analysis and had available data to report.
Participants were asked "Have you already decided what your preferences would be if you developed Alzheimer's Disease or memory loss and needed caregiver help in your home?". Responses recorded as binary. Percentage below is percentage of participants who reported positively that they had a plan for the scenario. Frequencies here are given for 36 month timepoint.
Outcome measures
| Measure |
All Enrolled Subjects
n=240 Participants
All study participants will be given access to the web-based study intervention, PlanYourLifespan.org.
|
|---|---|
|
Rate of Participant Planning for In Home Care in the Event of Alzheimer's Disease/Memory Loss
|
161 Participants
|
SECONDARY outcome
Timeframe: Assessed at 0-36 months, month 36 reportedPopulation: 240 Participants completed 36 Month Analysis and had available data to report.
Participants were asked "Have you decided what your long-term care preferences (e.g. where you would prefer to go if you needed to be in a nursing home or memory care), would be if you ever developed Alzheimer's Disease or memory loss? " Here, participants were specifically asked about "memory care" vs other types of care options. Responses recorded as binary. Percentage below is percentage of participants who reported positively ("Yes")that they had a plan for the scenario. Frequencies here are given for 36 month timepoint.
Outcome measures
| Measure |
All Enrolled Subjects
n=240 Participants
All study participants will be given access to the web-based study intervention, PlanYourLifespan.org.
|
|---|---|
|
Rate of Participant Planning for Memory Care in the Event of Alzheimer's Disease/Memory Loss
|
42 Participants
|
SECONDARY outcome
Timeframe: Assessed at 0-36 months, month 36 reportedPopulation: 240 Participants completed 36 Month Analysis and had available data to report.
Participants were asked "Have you already decided what your preferences would be if you were hospitalized and needed post-hospitalization rehabilitation outside of the home? " Responses recorded as binary. Percentage below is percentage of participants who reported positively ("Yes") that they had a plan for the scenario. Frequencies here are given for 36 month timepoint.
Outcome measures
| Measure |
All Enrolled Subjects
n=240 Participants
All study participants will be given access to the web-based study intervention, PlanYourLifespan.org.
|
|---|---|
|
Rate of Participant Planning for the Event of Hospitalization Requiring Rehabilitation Outside the Home
|
135 Participants
|
SECONDARY outcome
Timeframe: Assessed at 0-36 months, month 36 reportedPopulation: 240 Participants completed 36 Month Analysis and had available data to report.
Participants were asked "Have you already decided what your preferences would be if you were hospitalized and needed caregiver help in your home?" Responses recorded as binary. Percentage below is percentage of participants who reported positively ("Yes") that they had a plan for the scenario. Frequencies here are given for 36 month timepoint.
Outcome measures
| Measure |
All Enrolled Subjects
n=240 Participants
All study participants will be given access to the web-based study intervention, PlanYourLifespan.org.
|
|---|---|
|
Rate of Participant Planning for the Event of Hospitalization Requiring In-home Care
|
158 Participants
|
SECONDARY outcome
Timeframe: Assessed at 0-36 months, month 36 reportedPopulation: 240 participants had data available to report from 36 month assessment.
Participants were asked a panel of statements about contemplation for decision-making in the event of Alzheimer's Dementia/Memory Loss (ADML). Participants were shown a statement and asked to gauge how frequently they contemplated the possibility of the given scenario, ranging from "Never" to "A lot". Frequencies given for 36 month timepoint per primary outcome analysis. Each statement is prefixed by "How much have you thought about..."
Outcome measures
| Measure |
All Enrolled Subjects
n=240 Participants
All study participants will be given access to the web-based study intervention, PlanYourLifespan.org.
|
|---|---|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
Your possibility of getting Alzheimer's Disease or memory loss in the future? · Never
|
25 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
Your possibility of getting Alzheimer's Disease or memory loss in the future? · Once or Twice
|
58 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
Your possibility of getting Alzheimer's Disease or memory loss in the future? · A Few Times
|
80 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
Your possibility of getting Alzheimer's Disease or memory loss in the future? · Several Times
|
50 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
Your possibility of getting Alzheimer's Disease or memory loss in the future? · A Lot
|
27 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
How Alzheimer's Disease or memory loss could impact your ability to continue driving safely? · Never
|
56 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
How Alzheimer's Disease or memory loss could impact your ability to continue driving safely? · Once or Twice
|
45 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
How Alzheimer's Disease or memory loss could impact your ability to continue driving safely? · A Few Times
|
41 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
How Alzheimer's Disease or memory loss could impact your ability to continue driving safely? · Several Times
|
21 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
How Alzheimer's Disease or memory loss could impact your ability to continue driving safely? · A Lot
|
31 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
How Alzheimer's Disease or memory loss could impact your ability to continue driving safely? · N/A
|
43 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
How Alzheimer's Disease or memory loss could impact your ability to continue driving safely? · Unsure/Refused
|
3 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
How ADML might impact your ability to remain in your own home as you age? · Never
|
41 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
How ADML might impact your ability to remain in your own home as you age? · Once or Twice
|
48 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
How ADML might impact your ability to remain in your own home as you age? · A Few Times
|
75 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
How ADML might impact your ability to remain in your own home as you age? · Several Times
|
41 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
How ADML might impact your ability to remain in your own home as you age? · A Lot
|
35 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
How ADML might impact your ability to remain in your own home as you age? · N/A
|
0 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
How ADML might impact your ability to remain in your own home as you age? · Unsure/Refused
|
0 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
How ADML might require you to depend on an in-home caregiver (e.g. family member, paid caregiver)? · Never
|
50 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
How ADML might require you to depend on an in-home caregiver (e.g. family member, paid caregiver)? · Once or Twice
|
56 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
How ADML might require you to depend on an in-home caregiver (e.g. family member, paid caregiver)? · A Few Times
|
62 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
How ADML might require you to depend on an in-home caregiver (e.g. family member, paid caregiver)? · Several Times
|
39 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
How ADML might require you to depend on an in-home caregiver (e.g. family member, paid caregiver)? · A Lot
|
33 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
How ADML might require you to depend on an in-home caregiver (e.g. family member, paid caregiver)? · N/A
|
0 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
How ADML might require you to depend on an in-home caregiver (e.g. family member, paid caregiver)? · Unsure/Refused
|
0 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
How ADML might require you to use long-term care services (such as being in a nursing home)? · Once or Twice
|
55 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
How ADML might require you to use long-term care services (such as being in a nursing home)? · A Few Times
|
60 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
How ADML might require you to use long-term care services (such as being in a nursing home)? · Several Times
|
36 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
How ADML might require you to use long-term care services (such as being in a nursing home)? · A Lot
|
28 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
How ADML might require you to use long-term care services (such as being in a nursing home)? · Unsure/Refused
|
0 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
The possibility of someone you love or know getting ADML in the future? · Never
|
42 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
The possibility of someone you love or know getting ADML in the future? · Once or Twice
|
51 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
The possibility of someone you love or know getting ADML in the future? · A Few Times
|
66 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
The possibility of someone you love or know getting ADML in the future? · N/A
|
0 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
The possibility of someone you love or know getting ADML in the future? · Unsure/Refused
|
0 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
Your possibility of getting Alzheimer's Disease or memory loss in the future? · N/A
|
0 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
Your possibility of getting Alzheimer's Disease or memory loss in the future? · Unsure/Refused
|
0 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
How ADML might require you to use long-term care services (such as being in a nursing home)? · Never
|
61 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
How ADML might require you to use long-term care services (such as being in a nursing home)? · N/A
|
0 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
The possibility of someone you love or know getting ADML in the future? · Several Times
|
55 Participants
|
|
Participant Decision Making Contemplation Rates- Alzheimer's Dementia/Memory Loss (ADML)
The possibility of someone you love or know getting ADML in the future? · A Lot
|
26 Participants
|
SECONDARY outcome
Timeframe: Assessed at 0-36 months, month 36 reportedPopulation: 240 participants had data available to report from 36 month assessment.
Participants were asked a panel of statements about contemplation for decision-making in the event of Hospitalization. Participants were shown a statement and asked to gauge how frequently they contemplated the possibility of the given scenario, ranging from "Never" to "A lot". Frequencies given for 36 month timepoint per primary outcome analysis. Each statement is prefixed by "How much have you thought about..."
Outcome measures
| Measure |
All Enrolled Subjects
n=240 Participants
All study participants will be given access to the web-based study intervention, PlanYourLifespan.org.
|
|---|---|
|
Participant Decision Making Contemplation Rates- Hospitalization
How a hospitalization could impact your ability to continue driving safely? · Several Times
|
18 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
How a hospitalization could impact your ability to continue driving safely? · A lot
|
26 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
How a hospitalization could impact your ability to continue driving safely? · N/A
|
43 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
How a hospitalization could impact your ability to continue driving safely? · Not Sure/Refused
|
1 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
How a hospitalization might impact your ability to remain in your own home as you age? · Never
|
41 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
How a hospitalization might impact your ability to remain in your own home as you age? · Once or Twice
|
67 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
How a hospitalization might impact your ability to remain in your own home as you age? · A Few Times
|
59 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
How a hospitalization could impact your ability to continue driving safely? · Never
|
56 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
How a hospitalization could impact your ability to continue driving safely? · Once or Twice
|
53 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
How a hospitalization could impact your ability to continue driving safely? · A Few Times
|
43 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
How a hospitalization might impact your ability to remain in your own home as you age? · Several Times
|
34 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
How a hospitalization might impact your ability to remain in your own home as you age? · A lot
|
39 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
How a hospitalization might impact your ability to remain in your own home as you age? · N/A
|
0 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
How a hospitalization might impact your ability to remain in your own home as you age? · Not Sure/Refused
|
0 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
How a hospitalization might require you to depend on an in-home caregiver? · Never
|
36 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
How a hospitalization might require you to depend on an in-home caregiver? · Once or Twice
|
69 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
How a hospitalization might require you to depend on an in-home caregiver? · A Few Times
|
61 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
How a hospitalization might require you to depend on an in-home caregiver? · Several Times
|
30 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
How a hospitalization might require you to depend on an in-home caregiver? · A lot
|
44 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
How a hospitalization might require you to depend on an in-home caregiver? · N/A
|
0 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
How a hospitalization might require you to depend on an in-home caregiver? · Not Sure/Refused
|
0 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
How a hospitalization might require you to use long-term care services (such as a nursing home)? · Never
|
69 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
How a hospitalization might require you to use long-term care services (such as a nursing home)? · Once or Twice
|
62 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
How a hospitalization might require you to use long-term care services (such as a nursing home)? · A Few Times
|
47 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
How a hospitalization might require you to use long-term care services (such as a nursing home)? · Several Times
|
30 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
How a hospitalization might require you to use long-term care services (such as a nursing home)? · A lot
|
32 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
How a hospitalization might require you to use long-term care services (such as a nursing home)? · N/A
|
0 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
How a hospitalization might require you to use long-term care services (such as a nursing home)? · Not Sure/Refused
|
0 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
How a hospitalization might require you to use rehabilitation services (such as physical therapy)? · Never
|
39 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
How a hospitalization might require you to use rehabilitation services (such as physical therapy)? · Once or Twice
|
56 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
How a hospitalization might require you to use rehabilitation services (such as physical therapy)? · A Few Times
|
65 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
How a hospitalization might require you to use rehabilitation services (such as physical therapy)? · Several Times
|
35 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
How a hospitalization might require you to use rehabilitation services (such as physical therapy)? · A lot
|
45 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
How a hospitalization might require you to use rehabilitation services (such as physical therapy)? · N/A
|
0 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
How a hospitalization might require you to use rehabilitation services (such as physical therapy)? · Not Sure/Refused
|
0 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
Possibly being hospitalized in the future? · Never
|
41 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
Possibly being hospitalized in the future? · Once or Twice
|
59 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
Possibly being hospitalized in the future? · A Few Times
|
76 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
Possibly being hospitalized in the future? · Several Times
|
40 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
Possibly being hospitalized in the future? · A lot
|
24 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
Possibly being hospitalized in the future? · N/A
|
0 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
Possibly being hospitalized in the future? · Not Sure/Refused
|
0 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
The possibility of someone you love or know being hospitalized in the future? · Never
|
38 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
The possibility of someone you love or know being hospitalized in the future? · Once or Twice
|
68 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
The possibility of someone you love or know being hospitalized in the future? · A Few Times
|
73 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
The possibility of someone you love or know being hospitalized in the future? · Several Times
|
37 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
The possibility of someone you love or know being hospitalized in the future? · A lot
|
24 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
The possibility of someone you love or know being hospitalized in the future? · N/A
|
0 Participants
|
|
Participant Decision Making Contemplation Rates- Hospitalization
The possibility of someone you love or know being hospitalized in the future? · Not Sure/Refused
|
0 Participants
|
SECONDARY outcome
Timeframe: 18 month assessmentPopulation: 265 Participants completed the 18 month assessment point.
Participant utilization of long-term care services such as in-home caregivers as measured by the Resource Use Inventory. Frequencies below are for "yes" responses to individual items on the inventory. This Outcome measure was only collected at the 18 month assessment time point and was collected as part of the LitCog assessment battery. Frequencies below reflect all available data at the 18 month assessment.
Outcome measures
| Measure |
All Enrolled Subjects
n=265 Participants
All study participants will be given access to the web-based study intervention, PlanYourLifespan.org.
|
|---|---|
|
Participant Utilization of Long-term Care Services
Has participant had any form of unpaid help/care in the past 12 months?
|
129 Participants
|
|
Participant Utilization of Long-term Care Services
Has participant utilized any paid help (help1) in the past 12 months?
|
69 Participants
|
|
Participant Utilization of Long-term Care Services
Has participant had unpaid help with shopping in the past 12 months?
|
58 Participants
|
|
Participant Utilization of Long-term Care Services
Has participant had any ambulatory surgeries or procedures in the past 12 months?
|
87 Participants
|
|
Participant Utilization of Long-term Care Services
Has participant utilized ANY doctor (primary care, specialty or PT/OT) in the past 12 months?
|
260 Participants
|
|
Participant Utilization of Long-term Care Services
Has participant had unpaid help with cleaning in the past 12 months?
|
56 Participants
|
|
Participant Utilization of Long-term Care Services
Has participant utilized ANY medical equipment in the past 12 months?
|
163 Participants
|
|
Participant Utilization of Long-term Care Services
Has participant visited Emergency Department in the past 12 months?
|
66 Participants
|
|
Participant Utilization of Long-term Care Services
Has participant been admitted to a hospital in the past 12 months?
|
37 Participants
|
|
Participant Utilization of Long-term Care Services
While admitted did participant have surgery?
|
21 Participants
|
|
Participant Utilization of Long-term Care Services
After being discharged did participant utilize any post-hospital care?
|
7 Participants
|
|
Participant Utilization of Long-term Care Services
Has participant had unpaid help with laundry in the past 12 months?
|
39 Participants
|
|
Participant Utilization of Long-term Care Services
Has participant had unpaid help with managing their money in the past 12 months?
|
13 Participants
|
|
Participant Utilization of Long-term Care Services
Has participant been seen by a primary care provider in the past 12 months?
|
238 Participants
|
|
Participant Utilization of Long-term Care Services
Has participant utilized physical or occupational therapy in the past 12 months?
|
99 Participants
|
|
Participant Utilization of Long-term Care Services
Has participant utilized ANY scans in past year?
|
184 Participants
|
|
Participant Utilization of Long-term Care Services
Has participant seen ANY specialty care doctor in the past 12 months?
|
216 Participants
|
|
Participant Utilization of Long-term Care Services
Has participant had unpaid help with transport in the past 12 months?
|
91 Participants
|
|
Participant Utilization of Long-term Care Services
Has participant utilized urgent care in the past 12 months?
|
79 Participants
|
SECONDARY outcome
Timeframe: BaselinePopulation: Only Participants reporting hospitalization were asked follow-up question about post-hospitalization rehabilitation. Only Participants reporting memory loss were asked follow up question. Only participants reporting prior experience with others with memory loss were asked follow up question.
Participants were asked a panel of non-validated questions about their previous health experiences and their experiences with others. Panel was collected at Baseline assessment only.
Outcome measures
| Measure |
All Enrolled Subjects
n=293 Participants
All study participants will be given access to the web-based study intervention, PlanYourLifespan.org.
|
|---|---|
|
Previous Health Experiences- Self and Others
In the Past 3 Years, have you been hospitalized? · No
|
190 Participants
|
|
Previous Health Experiences- Self and Others
Have you had prior experience with someone else who has/had Alzheimer's disease and/or memory loss? · No
|
81 Participants
|
|
Previous Health Experiences- Self and Others
Have you had prior experience with someone else who has/had Alzheimer's disease and/or memory loss? · Yes
|
212 Participants
|
|
Previous Health Experiences- Self and Others
Have you had prior experience with someone else who has/had Alzheimer's disease and/or memory loss? · Unsure/Don't Know
|
0 Participants
|
|
Previous Health Experiences- Self and Others
In the Past 3 Years, have you been hospitalized? · Yes
|
99 Participants
|
|
Previous Health Experiences- Self and Others
In the Past 3 Years, have you been hospitalized? · Unsure/Don't Know
|
4 Participants
|
|
Previous Health Experiences- Self and Others
Did you need assistance or therapy after your hospitalization? · No
|
48 Participants
|
|
Previous Health Experiences- Self and Others
Did you need assistance or therapy after your hospitalization? · Yes
|
51 Participants
|
|
Previous Health Experiences- Self and Others
Did you need assistance or therapy after your hospitalization? · Unsure/Don't Know
|
0 Participants
|
|
Previous Health Experiences- Self and Others
Have you had any prior personal experience with someone who has been hospitalized? · No
|
51 Participants
|
|
Previous Health Experiences- Self and Others
Have you had any prior personal experience with someone who has been hospitalized? · Yes
|
242 Participants
|
|
Previous Health Experiences- Self and Others
Have you had any prior personal experience with someone who has been hospitalized? · Unsure/Don't Know
|
0 Participants
|
|
Previous Health Experiences- Self and Others
Have you had any prior experiences with someonerequiring additional support in their home? · No
|
107 Participants
|
|
Previous Health Experiences- Self and Others
Have you had any prior experiences with someonerequiring additional support in their home? · Yes
|
185 Participants
|
|
Previous Health Experiences- Self and Others
Have you had any prior experiences with someonerequiring additional support in their home? · Unsure/Don't Know
|
1 Participants
|
|
Previous Health Experiences- Self and Others
Have you had any prior experience with someone needing to move into a supportive living environment? · No
|
138 Participants
|
|
Previous Health Experiences- Self and Others
Have you had any prior experience with someone needing to move into a supportive living environment? · Yes
|
153 Participants
|
|
Previous Health Experiences- Self and Others
Have you had any prior experience with someone needing to move into a supportive living environment? · Unsure/Don't Know
|
2 Participants
|
|
Previous Health Experiences- Self and Others
Have you experienced any memory loss? · No
|
144 Participants
|
|
Previous Health Experiences- Self and Others
Have you experienced any memory loss? · Yes
|
139 Participants
|
|
Previous Health Experiences- Self and Others
Have you experienced any memory loss? · Unsure/Don't Know
|
10 Participants
|
|
Previous Health Experiences- Self and Others
Do you feel that this memory loss is normal for your age? · No
|
13 Participants
|
|
Previous Health Experiences- Self and Others
Do you feel that this memory loss is normal for your age? · Yes
|
109 Participants
|
|
Previous Health Experiences- Self and Others
Do you feel that this memory loss is normal for your age? · Unsure/Don't Know
|
17 Participants
|
|
Previous Health Experiences- Self and Others
Did they require any help or assistance due to their condition? · No
|
18 Participants
|
|
Previous Health Experiences- Self and Others
Did they require any help or assistance due to their condition? · Yes
|
181 Participants
|
|
Previous Health Experiences- Self and Others
Did they require any help or assistance due to their condition? · Unsure/Don't Know
|
13 Participants
|
SECONDARY outcome
Timeframe: Assessed at 0-36 months, month 36 reportedPopulation: 240 Participants had data available at the 36 month timepoint. Follow-up questions regarding hospitalization were only deployed to participants who indicated a hospitalization event in the prior six months (n=36). Follow-up questions regarding memory loss were only deployed to participants who indicated new or worsening memory loss in the prior six months (n=42).
Participants are assessed at each timepoint regarding hospitalization events, recent memory loss, and changes in lifestyle due to hospitalization and memory loss. Responses are binary (yes/no), with a N/A and "unsure/don't know" option. Questions are non-validated. Frequencies given here are from 36 Month timepoint.
Outcome measures
| Measure |
All Enrolled Subjects
n=240 Participants
All study participants will be given access to the web-based study intervention, PlanYourLifespan.org.
|
|---|---|
|
Event and Goal Concordance
In the past 6 months have you been hospitalized? · No
|
204 Participants
|
|
Event and Goal Concordance
In the past 6 months have you been hospitalized? · Yes
|
36 Participants
|
|
Event and Goal Concordance
In the past 6 months have you been hospitalized? · N/A
|
0 Participants
|
|
Event and Goal Concordance
In the past 6 months have you been hospitalized? · Not Sure/Don't Know
|
0 Participants
|
|
Event and Goal Concordance
Did you need any therapy/rehabilitation after any of your hospitalizations? · No
|
21 Participants
|
|
Event and Goal Concordance
Did you need any therapy/rehabilitation after any of your hospitalizations? · Yes
|
15 Participants
|
|
Event and Goal Concordance
Did you need any therapy/rehabilitation after any of your hospitalizations? · N/A
|
0 Participants
|
|
Event and Goal Concordance
Did you need any therapy/rehabilitation after any of your hospitalizations? · Not Sure/Don't Know
|
0 Participants
|
|
Event and Goal Concordance
Did you need any help in your home after any of your hospitalizations? · No
|
24 Participants
|
|
Event and Goal Concordance
Did you need any help in your home after any of your hospitalizations? · Yes
|
12 Participants
|
|
Event and Goal Concordance
Did you need any help in your home after any of your hospitalizations? · N/A
|
0 Participants
|
|
Event and Goal Concordance
Did you need any help in your home after any of your hospitalizations? · Not Sure/Don't Know
|
0 Participants
|
|
Event and Goal Concordance
In the past 6 months, have you experienced any new or worsening memory loss? · No
|
196 Participants
|
|
Event and Goal Concordance
In the past 6 months, have you experienced any new or worsening memory loss? · Yes
|
42 Participants
|
|
Event and Goal Concordance
In the past 6 months, have you experienced any new or worsening memory loss? · N/A
|
0 Participants
|
|
Event and Goal Concordance
In the past 6 months, have you experienced any new or worsening memory loss? · Not Sure/Don't Know
|
2 Participants
|
|
Event and Goal Concordance
Do you think memory loss is normal for your age? · No
|
7 Participants
|
|
Event and Goal Concordance
Do you think memory loss is normal for your age? · Yes
|
31 Participants
|
|
Event and Goal Concordance
Did your memory loss affect where you currently live/did you make any physical changes to your home? · N/A
|
0 Participants
|
|
Event and Goal Concordance
Did your memory loss affect where you currently live/did you make any physical changes to your home? · Not Sure/Don't Know
|
0 Participants
|
|
Event and Goal Concordance
Did your experience(s) with memory loss in the past 6 months affect your driving? · No
|
26 Participants
|
|
Event and Goal Concordance
Did your experience(s) with memory loss in the past 6 months affect your driving? · Yes
|
2 Participants
|
|
Event and Goal Concordance
Did your experience(s) with memory loss in the past 6 months affect your driving? · N/A
|
13 Participants
|
|
Event and Goal Concordance
Did your experience(s) with memory loss in the past 6 months affect your driving? · Not Sure/Don't Know
|
1 Participants
|
|
Event and Goal Concordance
Did your experience(s) with memory loss make you need any in-home caregiver assistance? · No
|
40 Participants
|
|
Event and Goal Concordance
Did your experience(s) with memory loss make you need any in-home caregiver assistance? · Yes
|
2 Participants
|
|
Event and Goal Concordance
Did your experience(s) with memory loss make you need any in-home caregiver assistance? · N/A
|
0 Participants
|
|
Event and Goal Concordance
Did your experience(s) with memory loss make you need any in-home caregiver assistance? · Not Sure/Don't Know
|
0 Participants
|
|
Event and Goal Concordance
Do you think memory loss is normal for your age? · N/A
|
0 Participants
|
|
Event and Goal Concordance
Do you think memory loss is normal for your age? · Not Sure/Don't Know
|
4 Participants
|
|
Event and Goal Concordance
Did your memory loss affect where you currently live/did you make any physical changes to your home? · No
|
42 Participants
|
|
Event and Goal Concordance
Did your memory loss affect where you currently live/did you make any physical changes to your home? · Yes
|
0 Participants
|
OTHER_PRE_SPECIFIED outcome
Timeframe: BaselineParticipants assessed their satisfaction with the PlanYourLifespan.org website tool after use at Baseline. Participants ranked agreement with 8 statements regarding website utilization and satisfaction on a 1-5 point likert scale with values ranging from "strongly agree" to "strongly disagree".
Outcome measures
| Measure |
All Enrolled Subjects
n=293 Participants
All study participants will be given access to the web-based study intervention, PlanYourLifespan.org.
|
|---|---|
|
Website Satisfaction Assessment
I would be likely to use this website in the future. · Strongly Disagree
|
1 Participants
|
|
Website Satisfaction Assessment
I would recommend this website to others. · Agree
|
154 Participants
|
|
Website Satisfaction Assessment
I would recommend this website to others. · Neutral or Unsure
|
33 Participants
|
|
Website Satisfaction Assessment
I would recommend this website to others. · Disagree
|
10 Participants
|
|
Website Satisfaction Assessment
I would recommend this website to others. · Strongly Disagree
|
0 Participants
|
|
Website Satisfaction Assessment
I would recommend this website to others. · Prefer not to say/Refused
|
0 Participants
|
|
Website Satisfaction Assessment
I was able to complete my tasks on the website in a reasonable amount of time. · Strongly Disagree
|
3 Participants
|
|
Website Satisfaction Assessment
I was able to complete my tasks on the website in a reasonable amount of time. · Prefer not to say/Refused
|
2 Participants
|
|
Website Satisfaction Assessment
I would be likely to use this website in the future. · Strongly Agree
|
90 Participants
|
|
Website Satisfaction Assessment
I would be likely to use this website in the future. · Agree
|
149 Participants
|
|
Website Satisfaction Assessment
I would be likely to use this website in the future. · Neutral or Unsure
|
38 Participants
|
|
Website Satisfaction Assessment
I would be likely to use this website in the future. · Disagree
|
15 Participants
|
|
Website Satisfaction Assessment
The content on this website met my expectations. · Prefer not to say/Refused
|
3 Participants
|
|
Website Satisfaction Assessment
This website is visually appealing. · Strongly Agree
|
81 Participants
|
|
Website Satisfaction Assessment
This website is visually appealing. · Strongly Disagree
|
0 Participants
|
|
Website Satisfaction Assessment
This website is visually appealing. · Prefer not to say/Refused
|
1 Participants
|
|
Website Satisfaction Assessment
It was easy to move from one page to the next. · Strongly Agree
|
113 Participants
|
|
Website Satisfaction Assessment
I would be likely to use this website in the future. · Prefer not to say/Refused
|
0 Participants
|
|
Website Satisfaction Assessment
I would recommend this website to others. · Strongly Agree
|
96 Participants
|
|
Website Satisfaction Assessment
This website is easy to use. · Strongly Agree
|
119 Participants
|
|
Website Satisfaction Assessment
This website is easy to use. · Agree
|
147 Participants
|
|
Website Satisfaction Assessment
This website is easy to use. · Neutral or Unsure
|
20 Participants
|
|
Website Satisfaction Assessment
This website is easy to use. · Disagree
|
5 Participants
|
|
Website Satisfaction Assessment
This website is easy to use. · Strongly Disagree
|
1 Participants
|
|
Website Satisfaction Assessment
This website is easy to use. · Prefer not to say/Refused
|
1 Participants
|
|
Website Satisfaction Assessment
Terminology used on this website is clear. · Strongly Agree
|
123 Participants
|
|
Website Satisfaction Assessment
Terminology used on this website is clear. · Agree
|
165 Participants
|
|
Website Satisfaction Assessment
Terminology used on this website is clear. · Neutral or Unsure
|
5 Participants
|
|
Website Satisfaction Assessment
Terminology used on this website is clear. · Disagree
|
0 Participants
|
|
Website Satisfaction Assessment
Terminology used on this website is clear. · Strongly Disagree
|
0 Participants
|
|
Website Satisfaction Assessment
Terminology used on this website is clear. · Prefer not to say/Refused
|
0 Participants
|
|
Website Satisfaction Assessment
The content on this website met my expectations. · Strongly Agree
|
77 Participants
|
|
Website Satisfaction Assessment
The content on this website met my expectations. · Agree
|
150 Participants
|
|
Website Satisfaction Assessment
The content on this website met my expectations. · Neutral or Unsure
|
57 Participants
|
|
Website Satisfaction Assessment
The content on this website met my expectations. · Disagree
|
3 Participants
|
|
Website Satisfaction Assessment
The content on this website met my expectations. · Strongly Disagree
|
3 Participants
|
|
Website Satisfaction Assessment
This website is visually appealing. · Agree
|
164 Participants
|
|
Website Satisfaction Assessment
This website is visually appealing. · Neutral or Unsure
|
38 Participants
|
|
Website Satisfaction Assessment
This website is visually appealing. · Disagree
|
9 Participants
|
|
Website Satisfaction Assessment
It was easy to move from one page to the next. · Agree
|
155 Participants
|
|
Website Satisfaction Assessment
It was easy to move from one page to the next. · Neutral or Unsure
|
16 Participants
|
|
Website Satisfaction Assessment
It was easy to move from one page to the next. · Disagree
|
9 Participants
|
|
Website Satisfaction Assessment
It was easy to move from one page to the next. · Strongly Disagree
|
0 Participants
|
|
Website Satisfaction Assessment
It was easy to move from one page to the next. · Prefer not to say/Refused
|
0 Participants
|
|
Website Satisfaction Assessment
I was able to complete my tasks on the website in a reasonable amount of time. · Strongly Agree
|
79 Participants
|
|
Website Satisfaction Assessment
I was able to complete my tasks on the website in a reasonable amount of time. · Agree
|
173 Participants
|
|
Website Satisfaction Assessment
I was able to complete my tasks on the website in a reasonable amount of time. · Neutral or Unsure
|
26 Participants
|
|
Website Satisfaction Assessment
I was able to complete my tasks on the website in a reasonable amount of time. · Disagree
|
10 Participants
|
Adverse Events
All Enrolled Subjects
Serious events: 0 serious events
Other events: 0 other events
Deaths: 7 deaths
Serious adverse events
Adverse event data not reported
Other adverse events
Adverse event data not reported
Additional Information
Charlie Olvera, MA MS
Northwestern University Feinberg School of Medicine- Division of Geriatrics
Phone: +1 312 503 3916
Email: [email protected]
Results disclosure agreements
- Principal investigator is a sponsor employee
- Publication restrictions are in place