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The United Kingdom Thrombotic Thrombocytopenic Purpura Registry (UK TTP Registry)

NCT03832881 · Status: UNKNOWN · Type: OBSERVATIONAL · Enrollment: 1000

Last updated 2019-02-06

No results posted yet for this study

Summary

This is a UK (United Kingdom) based registry, involving all sites treating newly presenting Thrombotic Thrombocytopenic Purpura (TTP). From this registry, important epidemiological data will be obtained. Admission and remission samples will be collected. DNA will be collected and analysed from patients wishing to participate to determine if any link exists between mutations/polymorphisms and the risk of TTP. As part of NHS commissioning, we will be undertaking long term follow up, to understand the impact of acute TTP on morbidity and mortality.

Conditions

  • TTP - Thrombotic Thrombocytopenic Purpura

Interventions

DIAGNOSTIC_TEST

ADAMTS13, VWF assay

Sponsors & Collaborators

  • University College, London

    lead OTHER

Eligibility

Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2009-01-31
Primary Completion
2023-11-30
Completion
2023-11-30

Countries

  • United Kingdom

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT03832881 on ClinicalTrials.gov