Trial Outcomes & Findings for Improving Quality of Life for Veterans With Stroke and Psychological Distress (NCT NCT03645759)

NCT ID: NCT03645759

Last Updated: 2024-07-18

Results Overview

The Stroke Specific Quality of Life Scale assesses change in energy, language, vision, mobility, fine motor tasks, mood, personality and thinking, social roles, family roles and work productivity. Scores are reported for the energy, language, mobility, personality, mood, family roles, thinking, and social roles. The score range for each item 1= strongly disagree to 5=strongly agree with a higher score indicating greater disability and worst outcomes. A total score range is 14-70.

Recruitment status

COMPLETED

Study phase

NA

Target enrollment

38 participants

Primary outcome timeframe

Absolute values at 12 weeks post-treatment are being reported

Results posted on

2024-07-18

Participant Flow

Participant milestones

Participant milestones
Measure
I'm Whole
This arm will receive 6 behavioral health treatment sessions that focus on stroke self-management, psychological distress and social re-integration. Treatments will occur weekly. They will also receive 3 assessments at 0 and 12 weeks. I'm Whole: I'm whole will provide 6 behavioral health treatment sessions that focus on stroke self-management, psychological distress and social re-integration.
Education + Usual Care
This arm will only receive the standard usual care for stroke self-management provided by the Michael E. Debakey VA Medical facility and will receive 6 brief health education calls unrelated to stroke or psychological distress. Education + usual care: Will receive the standard usual care for stroke self-management provided by the Michael E. Debakey VA Medical facility and will receive 6 brief health education calls unrelated to stroke or psychological distress.
Overall Study
STARTED
19
19
Overall Study
COMPLETED
16
17
Overall Study
NOT COMPLETED
3
2

Reasons for withdrawal

Reasons for withdrawal
Measure
I'm Whole
This arm will receive 6 behavioral health treatment sessions that focus on stroke self-management, psychological distress and social re-integration. Treatments will occur weekly. They will also receive 3 assessments at 0 and 12 weeks. I'm Whole: I'm whole will provide 6 behavioral health treatment sessions that focus on stroke self-management, psychological distress and social re-integration.
Education + Usual Care
This arm will only receive the standard usual care for stroke self-management provided by the Michael E. Debakey VA Medical facility and will receive 6 brief health education calls unrelated to stroke or psychological distress. Education + usual care: Will receive the standard usual care for stroke self-management provided by the Michael E. Debakey VA Medical facility and will receive 6 brief health education calls unrelated to stroke or psychological distress.
Overall Study
Lost to Follow-up
3
2

Baseline Characteristics

Improving Quality of Life for Veterans With Stroke and Psychological Distress

Baseline characteristics by cohort

Baseline characteristics by cohort
Measure
I'm Whole
n=19 Participants
This arm will receive 6 behavioral health treatment sessions that focus on stroke self-management, psychological distress and social re-integration. Treatments will occur weekly. They will also receive 3 assessments at 0, 6, and 12 weeks. I'm Whole: I'm whole will provide 6 behavioral health treatment sessions that focus on stroke self-management, psychological distress and social re-integration.
Education + Usual Care
n=19 Participants
This arm will only receive the standard usual care for stroke self-management provided by the Michael E. Debakey VA Medical facility and will receive 6 brief health education calls unrelated to stroke or psychological distress. Education + usual care: Will receive the standard usual care for stroke self-management provided by the Michael E. Debakey VA Medical facility and will receive 6 brief health education calls unrelated to stroke or psychological distress.
Total
n=38 Participants
Total of all reporting groups
Age, Categorical
<=18 years
0 Participants
n=99 Participants
0 Participants
n=107 Participants
0 Participants
n=206 Participants
Age, Categorical
Between 18 and 65 years
10 Participants
n=99 Participants
13 Participants
n=107 Participants
23 Participants
n=206 Participants
Age, Categorical
>=65 years
9 Participants
n=99 Participants
6 Participants
n=107 Participants
15 Participants
n=206 Participants
Age, Continuous
65.44 years
STANDARD_DEVIATION 3.77 • n=99 Participants
63.44 years
STANDARD_DEVIATION 4.27 • n=107 Participants
64.44 years
STANDARD_DEVIATION 2.87 • n=206 Participants
Sex: Female, Male
Female
2 Participants
n=99 Participants
0 Participants
n=107 Participants
2 Participants
n=206 Participants
Sex: Female, Male
Male
17 Participants
n=99 Participants
19 Participants
n=107 Participants
36 Participants
n=206 Participants
Race (NIH/OMB)
American Indian or Alaska Native
0 Participants
n=99 Participants
0 Participants
n=107 Participants
0 Participants
n=206 Participants
Race (NIH/OMB)
Asian
0 Participants
n=99 Participants
0 Participants
n=107 Participants
0 Participants
n=206 Participants
Race (NIH/OMB)
Native Hawaiian or Other Pacific Islander
0 Participants
n=99 Participants
0 Participants
n=107 Participants
0 Participants
n=206 Participants
Race (NIH/OMB)
Black or African American
15 Participants
n=99 Participants
9 Participants
n=107 Participants
24 Participants
n=206 Participants
Race (NIH/OMB)
White
4 Participants
n=99 Participants
10 Participants
n=107 Participants
14 Participants
n=206 Participants
Race (NIH/OMB)
More than one race
0 Participants
n=99 Participants
0 Participants
n=107 Participants
0 Participants
n=206 Participants
Race (NIH/OMB)
Unknown or Not Reported
0 Participants
n=99 Participants
0 Participants
n=107 Participants
0 Participants
n=206 Participants
Region of Enrollment
United States
19 Participants
n=99 Participants
19 Participants
n=107 Participants
38 Participants
n=206 Participants
International physical activity questionnaire
203 MET Minutes per day
STANDARD_DEVIATION 284 • n=99 Participants
143 MET Minutes per day
STANDARD_DEVIATION 233.9 • n=107 Participants
173 MET Minutes per day
STANDARD_DEVIATION 258.8 • n=206 Participants
Sedentary Behaviors Questionnaire
5.73 hours spent in sedentary behaviors
STANDARD_DEVIATION 9.49 • n=99 Participants
4.51 hours spent in sedentary behaviors
STANDARD_DEVIATION 1.40 • n=107 Participants
5.12 hours spent in sedentary behaviors
STANDARD_DEVIATION 5.45 • n=206 Participants
Community Integration Questionnaire
18.60 units on a scale
STANDARD_DEVIATION 4.60 • n=99 Participants
29.70 units on a scale
STANDARD_DEVIATION 4.41 • n=107 Participants
24.15 units on a scale
STANDARD_DEVIATION 4.51 • n=206 Participants
Patient-Reported Outcomes Measurement Information System
64.04 units on a scale
STANDARD_DEVIATION 5.32 • n=99 Participants
61.01 units on a scale
STANDARD_DEVIATION 9.10 • n=107 Participants
62.53 units on a scale
STANDARD_DEVIATION 7.21 • n=206 Participants
Generalized Anxiety Disorder-7 items
4.80 units on a scale
STANDARD_DEVIATION 0.70 • n=99 Participants
4.52 units on a scale
STANDARD_DEVIATION 1.01 • n=107 Participants
4.65 units on a scale
STANDARD_DEVIATION 0.85 • n=206 Participants
Patient Health Questionnaire
11.01 units on a scale
STANDARD_DEVIATION 0.91 • n=99 Participants
10.10 units on a scale
STANDARD_DEVIATION 0.70 • n=107 Participants
10.55 units on a scale
STANDARD_DEVIATION 0.81 • n=206 Participants
36-Item Short Form Survey
40.23 units on a scale
STANDARD_DEVIATION 9.15 • n=99 Participants
51.39 units on a scale
STANDARD_DEVIATION 10.96 • n=107 Participants
45.81 units on a scale
STANDARD_DEVIATION 10.06 • n=206 Participants

PRIMARY outcome

Timeframe: Absolute values at 12 weeks post-treatment are being reported

Population: Estimates of changes in patient-reported outcomes were calculated using intent to-treat approach. The paired change in outcome scores from baseline to the end of the study and differences in paired change in scores in treatment and EUC arms were compared with zero using Wilcoxon's signed-rank test.

The Stroke Specific Quality of Life Scale assesses change in energy, language, vision, mobility, fine motor tasks, mood, personality and thinking, social roles, family roles and work productivity. Scores are reported for the energy, language, mobility, personality, mood, family roles, thinking, and social roles. The score range for each item 1= strongly disagree to 5=strongly agree with a higher score indicating greater disability and worst outcomes. A total score range is 14-70.

Outcome measures

Outcome measures
Measure
I'm Whole
n=16 Participants
This arm will receive 6 behavioral health treatment sessions that focus on stroke self-management, psychological distress and social re-integration. Treatments will occur weekly. They will also receive 3 assessments at 0, 6, and 12 weeks. I'm Whole: I'm whole will provide 6 behavioral health treatment sessions that focus on stroke self-management, psychological distress and social re-integration.
Education + Usual Care
n=17 Participants
This arm will only receive the standard usual care for stroke self-management provided by the Michael E. Debakey VA Medical facility and will receive 6 brief health education calls unrelated to stroke or psychological distress. Education + usual care: Will receive the standard usual care for stroke self-management provided by the Michael E. Debakey VA Medical facility and will receive 6 brief health education calls unrelated to stroke or psychological distress.
Stroke Specific Quality of Life Scale Change
41.24 units on a scale
Standard Deviation 6.30
41.67 units on a scale
Standard Deviation 5.80

SECONDARY outcome

Timeframe: The absolute values at 12 weeks post-treatment are being reported

Population: Estimates of changes in patient-reported outcomes were calculated using intent to-treat approach. The paired change in outcome scores from baseline to the end of the study and differences in paired change in scores in treatment and EUC arms were compared with zero using Wilcoxon's signed-rank test.

The Physical Activity and Disability Survey measures change in exercise, leisure time physical activity, indoor and outdoor household activity, wheelchair ambulation, employment-related activity and rehabilitation therapy-related activity. Scores were reported for each 6 areas of exercise/activity. The subscale score is based on the self-reported amount of time an individual states they spend performing each exercise. Higher values represent a better outcome and more time spent engaging in the activity. The range of scores are 0-1440 minutes per day.

Outcome measures

Outcome measures
Measure
I'm Whole
n=16 Participants
This arm will receive 6 behavioral health treatment sessions that focus on stroke self-management, psychological distress and social re-integration. Treatments will occur weekly. They will also receive 3 assessments at 0, 6, and 12 weeks. I'm Whole: I'm whole will provide 6 behavioral health treatment sessions that focus on stroke self-management, psychological distress and social re-integration.
Education + Usual Care
n=17 Participants
This arm will only receive the standard usual care for stroke self-management provided by the Michael E. Debakey VA Medical facility and will receive 6 brief health education calls unrelated to stroke or psychological distress. Education + usual care: Will receive the standard usual care for stroke self-management provided by the Michael E. Debakey VA Medical facility and will receive 6 brief health education calls unrelated to stroke or psychological distress.
Physical Activity and Disability Survey Change
602 units on a scale
Standard Deviation 48
60 units on a scale
Standard Deviation 22

SECONDARY outcome

Timeframe: The absolute values at 12 weeks post-treatment are being reported

Population: Estimates of changes in patient-reported outcomes were calculated using intent to-treat approach. The paired change in outcome scores from baseline to the end of the study and differences in paired change in scores in treatment and EUC arms were compared with zero using Wilcoxon's signed-rank test.

The Community Integration Questionnaire measures change in home integration (i.e., market, meal preparation, household activities, finance), social integration (i.e., shopping, avocation, going out), and productive activity (i.e., work, school, volunteer activity). The score range is 1=you yourself alone 3=someone else. Total score range is 13-39. Lower values represent a better outcome and greater integration into the community.

Outcome measures

Outcome measures
Measure
I'm Whole
n=16 Participants
This arm will receive 6 behavioral health treatment sessions that focus on stroke self-management, psychological distress and social re-integration. Treatments will occur weekly. They will also receive 3 assessments at 0, 6, and 12 weeks. I'm Whole: I'm whole will provide 6 behavioral health treatment sessions that focus on stroke self-management, psychological distress and social re-integration.
Education + Usual Care
n=17 Participants
This arm will only receive the standard usual care for stroke self-management provided by the Michael E. Debakey VA Medical facility and will receive 6 brief health education calls unrelated to stroke or psychological distress. Education + usual care: Will receive the standard usual care for stroke self-management provided by the Michael E. Debakey VA Medical facility and will receive 6 brief health education calls unrelated to stroke or psychological distress.
Community Integration Questionnaire Change
16.8 units on a scale
Standard Deviation 4.21
13.8 units on a scale
Standard Deviation 4.23

SECONDARY outcome

Timeframe: The absolute values at 12 weeks post-treatment are being reported

Population: Estimates of changes in patient-reported outcomes were calculated using intent to-treat approach. The paired change in outcome scores from baseline to the end of the study and differences in paired change in scores in treatment and EUC arms were compared with zero using Wilcoxon's signed-rank test.

The Patient Health Questionnaire-8 assesses change in severity of depression symptoms over the last two weeks. The score range is 0=Not at all to 3=Nearly every day. Total score range is 0-24. Lower values represent a better outcome and less symptoms of depression.

Outcome measures

Outcome measures
Measure
I'm Whole
n=16 Participants
This arm will receive 6 behavioral health treatment sessions that focus on stroke self-management, psychological distress and social re-integration. Treatments will occur weekly. They will also receive 3 assessments at 0, 6, and 12 weeks. I'm Whole: I'm whole will provide 6 behavioral health treatment sessions that focus on stroke self-management, psychological distress and social re-integration.
Education + Usual Care
n=17 Participants
This arm will only receive the standard usual care for stroke self-management provided by the Michael E. Debakey VA Medical facility and will receive 6 brief health education calls unrelated to stroke or psychological distress. Education + usual care: Will receive the standard usual care for stroke self-management provided by the Michael E. Debakey VA Medical facility and will receive 6 brief health education calls unrelated to stroke or psychological distress.
Patient Health Questionnaire-8 Item Change
4.00 units on a scale
Standard Deviation 1.10
8.21 units on a scale
Standard Deviation 0.80

SECONDARY outcome

Timeframe: The absolute values at 12 weeks post-treatment are being reported

Population: Estimates of changes in patient-reported outcomes were calculated using intent to-treat approach. The paired change in outcome scores from baseline to the end of the study and differences in paired change in scores in treatment and EUC arms were compared with zero using Wilcoxon's signed-rank test.

The General Anxiety Disorder-7 assesses change in severity of anxiety symptoms over the last two weeks. The total score is reported. The score range is 0=Not at all to 3=Nearly every day. Total score range is 0-21. Lower values represent a better outcome and less symptoms of anxiety.

Outcome measures

Outcome measures
Measure
I'm Whole
n=16 Participants
This arm will receive 6 behavioral health treatment sessions that focus on stroke self-management, psychological distress and social re-integration. Treatments will occur weekly. They will also receive 3 assessments at 0, 6, and 12 weeks. I'm Whole: I'm whole will provide 6 behavioral health treatment sessions that focus on stroke self-management, psychological distress and social re-integration.
Education + Usual Care
n=17 Participants
This arm will only receive the standard usual care for stroke self-management provided by the Michael E. Debakey VA Medical facility and will receive 6 brief health education calls unrelated to stroke or psychological distress. Education + usual care: Will receive the standard usual care for stroke self-management provided by the Michael E. Debakey VA Medical facility and will receive 6 brief health education calls unrelated to stroke or psychological distress.
General Anxiety Disorder-7 Change
2.80 units on a scale
Standard Deviation 0.82
3.91 units on a scale
Standard Deviation 1.03

Adverse Events

I'm Whole

Serious events: 0 serious events
Other events: 0 other events
Deaths: 0 deaths

Education + Usual Care

Serious events: 0 serious events
Other events: 0 other events
Deaths: 0 deaths

Serious adverse events

Adverse event data not reported

Other adverse events

Adverse event data not reported

Additional Information

Dr. Gina Evans

Michael E. Debakey VA Medical Center

Phone: 832-269-3048

Results disclosure agreements

  • Principal investigator is a sponsor employee
  • Publication restrictions are in place