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Swiss Primary Ciliary Dyskinesia Registry

NCT03606200 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 800

Last updated 2025-11-25

No results posted yet for this study

Summary

The Swiss Primary Ciliary Dyskinesia (PCD) Registry is a national patient registry that collects information on diagnosis, symptoms, treatment and follow-up of patients with PCD in Switzerland and provides data for national and international monitoring and research.

Conditions

  • Primary Ciliary Dyskinesia
  • Kartagener Syndrome

Sponsors & Collaborators

  • University of Bern

    lead OTHER

Principal Investigators

  • Claudia E Kuehni, Prof · University of Bern

  • Myrofora Goutaki, PD, MD-PhD · University of Bern

Eligibility

Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2013-01-31
Primary Completion
2080-12-31
Completion
2080-12-31

Countries

  • Switzerland

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT03606200 on ClinicalTrials.gov