Trial Outcomes & Findings for Emergency Medicine Palliative Care Access (NCT NCT03325985)

Emergency Medicine Palliative Care Access

* Measured by change from enrollment to 6 months * Used to measure a person's quality of life * 27 questions total * 5-point Likert scale * Reverse code select items per scoring guidelines at facit.org, then calculate a summary score for each respondent. The total score ranges from 0-108 points; higher scores indicate greater quality of life.

Measured from enrollment to 12 months as a count of ED revisits, via self-report and EHR abstraction.

Measured from enrollment to 12 months as the number of inpatient days, via self-report and EHR extraction.

Measured from enrollment to 12 months as the proportion of participants who used hospice, via self-report and EHR abstraction.

* Used to measure how often a person feels disconnected from others * Three questions total * 3-point rating scale (1 = Hardly ever, 2 = Some of the time, 3 = Often) * Total score is the sum of responses and ranges from 3 to 9; higher scores indicate greater loneliness. * measured by change from enrollment to 3 months

* Used to measure how often a person feels disconnected from others * Three questions total * 3-point rating scale (1 = Hardly ever, 2 = Some of the time, 3 = Often) * Total score is the sum of responses and ranges from 3 to 9; higher scores indicate greater loneliness. * measured by change from enrollment to 6 months

* Used to measure how often a person feels disconnected from others * Three questions total * 3-point rating scale (1 = Hardly ever, 2 = Some of the time, 3 = Often) * Total score is the sum of responses and ranges from 3 to 9; higher scores indicate greater loneliness. * measured by change from enrollment to 12 months

* Used to measure severity of symptoms * 10 questions * Each item is rated on a 0-10 scale (0= none to 10 worst possible) * Total score ranges from 0 to 100; higher scores indicate greater severity of symptoms. * measured by change from enrollment to 3 months

* Used to measure severity of symptoms * 10 questions * Each item is rated on a 0-10 scale (0= none to 10 worst possible) * Total score ranges from 0 to 100; higher scores indicate greater severity of symptoms. * measured by change from enrollment to 6 months

* Used to measure severity of symptoms * 10 questions * Each item is rated on a 0-10 scale (0= none to 10 worst possible) * Total score ranges from 0 to 100; higher scores indicate greater severity of symptoms. * measured by change from enrollment to 12 months

* Quality of life for informal caregivers will be measured using the 10-item Patient-Reported Outcome Measurement Information System (PROMIS-10), an instrument designed to measure perceptions of health using global health items. It contains a global physical health scale and a global mental health scale. * Scored by reverse coding with a raw score ranging from 0-20; 0 points represent the patient's most severe physical and/or mental impairment, while 20 points represent the best possible state of health. Scales are scored using the raw sum to T-score tables for physical health and mental health. T-scores range from 0-100; higher scores reflect better functioning. * measured by change from enrollment to 3 months

* Quality of life for informal caregivers will be measured using the 10-item Patient-Reported Outcome Measurement Information System (PROMIS-10), an instrument designed to measure perceptions of health using global health items. It contains a global physical health scale and a global mental health scale. * Scored by reverse coding with a raw score ranging from 0-20; 0 points represent the patient's most severe physical and/or mental impairment, while 20 points represent the best possible state of health. Scales are scored using the raw sum to T-score tables for physical health and mental health. T-scores range from 0-100; higher scores reflect better functioning. * measured by change from enrollment to 6 months

* Quality of life for informal caregivers will be measured using the 10-item Patient-Reported Outcome Measurement Information System (PROMIS-10), an instrument designed to measure perceptions of health using global health items. It contains a global physical health scale and a global mental health scale. * Scored by reverse coding with a raw score ranging from 0-20; 0 points represent the patient's most severe physical and/or mental impairment, while 20 points represent the best possible state of health. Scales are scored using the raw sum to T-score tables for physical health and mental health. T-scores range from 0-100; higher scores reflect better functioning. * measured by change from enrollment to 12 months

* Measured at 3 months post-patient death * Used to measure a caregiver's bereavement * 19 items; each rated on a 5-point scale from 0 (never) to 4 (always) * Total score is the sum of responses and ranges from 0 to 76; higher scores indicate greater levels of grief

* Measured as change from enrollment to Month 3 * Used to measure a caregiver's strain * 12 items; each rated on a 3-point scale from 0 (yes, on a regular basis) to 3 (no) * Total score is the sum of responses and ranges from 0 to 48; higher scores indicate greater burden

* Measured as change from enrollment to Month 6 * Used to measure a caregiver's strain * 12 items; each rated on a 3-point scale from 0 (yes, on a regular basis) to 3 (no) * Total score is the sum of responses and ranges from 0 to 48; higher scores indicate greater burden

* Measured as change from enrollment to Month 12 * Used to measure a caregiver's strain * 12 items; each rated on a 3-point scale from 0 (yes, on a regular basis) to 3 (no) * Total score is the sum of responses and ranges from 0 to 48; higher scores indicate greater burden

* Measured by change from enrollment to 3 months * Used to measure a person's quality of life * 27 questions total * 5-point Likert scale * Reverse code select items per scoring guidelines at facit.org, then calculate a summary score for each respondent. The total score ranges from 0-108 points; higher scores indicate greater quality of life.

* Measured by change from enrollment to 12 months * Used to measure a person's quality of life * 27 questions total * 5-point Likert scale * Reverse code select items per scoring guidelines at facit.org, then calculate a summary score for each respondent. The total score ranges from 0-108 points; higher scores indicate greater quality of life.

* Quality of life for informal caregivers will be measured using the 10-item Patient-Reported Outcome Measurement Information System (PROMIS-10), an instrument designed to measure perceptions of health using global health items. It contains a global physical health scale and a global mental health scale. * Scored by reverse coding with a raw score ranging from 0-20; 0 points represent the patient's most severe physical and/or mental impairment, while 20 points represent the best possible state of health. Scales are scored using the raw sum to T-score tables for physical health and mental health. T-scores range from 0-100; higher scores reflect better functioning. * Measured by change from enrollment to 3 months

* Quality of life for informal caregivers will be measured using the 10-item Patient-Reported Outcome Measurement Information System (PROMIS-10), an instrument designed to measure perceptions of health using global health items. It contains a global physical health scale and a global mental health scale. * Scored by reverse coding with a raw score ranging from 0-20; 0 points represent the patient's most severe physical and/or mental impairment, while 20 points represent the best possible state of health. Scales are scored using the raw sum to T-score tables for physical health and mental health. T-scores range from 0-100; higher scores reflect better functioning. * Measured by change from enrollment to 6 months

* Quality of life for informal caregivers will be measured using the 10-item Patient-Reported Outcome Measurement Information System (PROMIS-10), an instrument designed to measure perceptions of health using global health items. It contains a global physical health scale and a global mental health scale. * Scored by reverse coding with a raw score ranging from 0-20; 0 points represent the patient's most severe physical and/or mental impairment, while 20 points represent the best possible state of health. Scales are scored using the raw sum to T-score tables for physical health and mental health. T-scores range from 0-100; higher scores reflect better functioning. * Measured by change from enrollment to 6 months