MedTrace Logo

Toward Self-management in ILD

NCT03300583 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 16

Last updated 2021-02-21

No results posted yet for this study

Summary

Treating and caring for people with long term conditions accounts for a substantial proportion of health care resources. Self-management is advocated as a mechanism that can empower service users with long term conditions to choose healthier options and also transform the relationship between service user and caregivers from one in which the former is a passive recipient of care to one in which they are an active partner in decision-making.

Interstitial lung disease (ILD) is one such long term condition. Patients with ILD often express concern about the lack of information on possible rehabilitation programmes and other services that could potentially improve self-management of the disease. In addition, there is a general perception about a lack of co-ordination between health care professionals especially in relation to referral to services for comprehensive management of the disease. Therefore, the needs of patients with ILD and their carers, and possible gaps in service provision need to be explored further.

In this study, the investigators propose to explore the needs of ILD patients from all types of ILD and all stages of severity and to also involve carers and clinicians. The investigators will conduct three focus groups for patients and carers and six one-to-one interviews with clinicians to explore perceptions about service gaps and needs in two ILD centres in South and North London, UK.

This study will provide valuable information to develop the building blocks of a self-management resource and will enable the investigators to make it specific to the different types of ILD.

Conditions

Interventions

BEHAVIORAL

Focus groups

Focus group discussion led by the PI and facilitated by another researcher.

BEHAVIORAL

Semi-structured interviews

1:1 semi-structured interviews led by the PI

Sponsors & Collaborators

  • St. George's Hospital, London

    collaborator OTHER

  • University College London Hospitals

    collaborator OTHER

  • Kingston University

    lead OTHER

Principal Investigators

  • Dimitra Nikoletou, PhD · Kingston University and St George's University of London- Joint Faculty- Health, Social care and Education

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
Yes

Timeline & Regulatory

Start
2018-06-01
Primary Completion
2020-10-30
Completion
2020-12-30

Countries

  • United Kingdom

Study Locations

More Related Trials

Entities

Diseases

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT03300583 on ClinicalTrials.gov