Trial Outcomes & Findings for Parkinson Disease and DBS: Cognitive Effects in GBA Mutation Carriers (NCT NCT03234478)

NCT ID: NCT03234478

Last Updated: 2026-07-29

Results Overview

Mattis Dementia Rating Scale Unit of Measure: Scores on a scale. Scale range: Total score ranges from 0 to 144. Interpretation: Higher scores indicate better cognitive functioning, while lower scores indicate greater cognitive impairment. Calculation of total score: The total score is calculated by summing the scores from the individual cognitive domains measured in each subscale. Subscale scores not available for this study.

Recruitment status

COMPLETED

Target enrollment

150 participants

Primary outcome timeframe

2 years

Results posted on

2026-07-29

Participant Flow

We used pooled retrospective data as part of our analysis. Thus 366 patients data was examined, but only 150 enrolled. For our analysis, we combined the retrospective data with the data from 150 subjects enrolled.

Participant milestones

Participant milestones
Measure
GBA Mutation Carriers Without DBS
Parkinson's disease patients who have moderate to advanced disease but have not undergone deep brain stimulation. Subjects will be tested for GBA mutation status as part of this study.
Non-mutation Carriers Without DBS
Parkinson's disease patients who have moderate to advanced disease but have not undergone deep brain stimulation. Subjects will be tested for GBA mutation status as part of this study.
GBA Mutation Carriers With DBS
Parkinson's disease patients who have moderate to advanced disease and have undergone deep brain stimulation. Subjects will be tested for GBA mutation status as part of this study.
Non-mutation Carriers With DBS
Parkinson's disease patients who have moderate to advanced disease and have undergone deep brain stimulation. Subjects will be tested for GBA mutation status as part of this study.
Overall Study
STARTED
82
128
58
98
Overall Study
COMPLETED
82
128
58
98
Overall Study
NOT COMPLETED
0
0
0
0

Reasons for withdrawal

Withdrawal data not reported

Baseline Characteristics

missing data

Baseline characteristics by cohort

Baseline characteristics by cohort
Measure
GBA Mutation Carriers Without DBS
n=82 Participants
Parkinson's disease patients who have moderate to advanced disease but have not undergone deep brain stimulation. Subjects will be tested for GBA mutation status as part of this study.
Non-mutation Carriers Without DBS
n=128 Participants
Parkinson's disease patients who have moderate to advanced disease but have not undergone deep brain stimulation. Subjects will be tested for GBA mutation status as part of this study.
GBA Mutation Carriers With DBS
n=58 Participants
Parkinson's disease patients who have moderate to advanced disease and have undergone deep brain stimulation. Subjects will be tested for GBA mutation status as part of this study.
Non-mutation Carriers With DBS
n=98 Participants
Parkinson's disease patients who have moderate to advanced disease and have undergone deep brain stimulation. Subjects will be tested for GBA mutation status as part of this study.
Total
n=366 Participants
Total of all reporting groups
Age, Continuous
60.42 years
STANDARD_DEVIATION 9.55 • n=80 Participants • missing data
61.44 years
STANDARD_DEVIATION 9.50 • n=128 Participants • missing data
57.19 years
STANDARD_DEVIATION 7.48 • n=58 Participants • missing data
58.28 years
STANDARD_DEVIATION 8.31 • n=98 Participants • missing data
59.33 years
STANDARD_DEVIATION 8.71 • n=364 Participants • missing data
Sex: Female, Male
Female
37 Participants
n=80 Participants • missing data
48 Participants
n=128 Participants • missing data
20 Participants
n=58 Participants • missing data
32 Participants
n=98 Participants • missing data
137 Participants
n=364 Participants • missing data
Sex: Female, Male
Male
43 Participants
n=80 Participants • missing data
80 Participants
n=128 Participants • missing data
38 Participants
n=58 Participants • missing data
66 Participants
n=98 Participants • missing data
227 Participants
n=364 Participants • missing data
Race and Ethnicity Not Collected
0 Participants
Race and Ethnicity were not collected from any participant.

PRIMARY outcome

Timeframe: 2 years

Mattis Dementia Rating Scale Unit of Measure: Scores on a scale. Scale range: Total score ranges from 0 to 144. Interpretation: Higher scores indicate better cognitive functioning, while lower scores indicate greater cognitive impairment. Calculation of total score: The total score is calculated by summing the scores from the individual cognitive domains measured in each subscale. Subscale scores not available for this study.

Outcome measures

Outcome measures
Measure
GBA Mutation Carriers Without DBS
n=82 Participants
Parkinson's disease patients who have moderate to advanced disease but have not undergone deep brain stimulation. Subjects will be tested for GBA mutation status as part of this study.
Non-mutation Carriers Without DBS
n=128 Participants
Parkinson's disease patients who have moderate to advanced disease but have not undergone deep brain stimulation. Subjects will be tested for GBA mutation status as part of this study.
GBA Mutation Carriers With DBS
n=58 Participants
Parkinson's disease patients who have moderate to advanced disease and have undergone deep brain stimulation. Subjects will be tested for GBA mutation status as part of this study.
Non-mutation Carriers With DBS
n=98 Participants
Parkinson's disease patients who have moderate to advanced disease and have undergone deep brain stimulation. Subjects will be tested for GBA mutation status as part of this study.
Mattis Dementia Rating Scale
-0.7 points
Interval -1.1 to -0.3
-0.4 points
Interval -0.7 to -0.1
-2.4 points
Interval -2.7 to -2.1
-0.9 points
Interval -1.2 to -0.6

Adverse Events

GBA Mutation Carriers Without DBS

Serious events: 0 serious events
Other events: 0 other events
Deaths: 0 deaths

Non-mutation Carriers Without DBS

Serious events: 0 serious events
Other events: 0 other events
Deaths: 0 deaths

GBA Mutation Carriers With DBS

Serious events: 0 serious events
Other events: 0 other events
Deaths: 0 deaths

Non-mutation Carriers With DBS

Serious events: 0 serious events
Other events: 0 other events
Deaths: 0 deaths

Serious adverse events

Adverse event data not reported

Other adverse events

Adverse event data not reported

Additional Information

Gian Pal, MD, MS

Hackensack Meridian Health

Phone: 7323217010

Results disclosure agreements

  • Principal investigator is a sponsor employee
  • Publication restrictions are in place