Trial Outcomes & Findings for Patient Centered Methods to Collect Sexual Orientation and Gender Identity Status in the ED (NCT NCT02701049)

NCT ID: NCT02701049

Last Updated: 2018-11-23

Results Overview

The primary outcome was patient satisfaction as measured by a modified Communication Climate Assessment Toolkit (CCAT) patient survey, an assessment of attitudes towards organizational climate and provider/patient communication.The CCAT is reliable, validated in geographically and ethnically diverse health care organizations, and accurately predicts patient-reported quality and trust. Containing 5/7 items from the full CCAT, our pre-specified modified scale included only questions that were applicable to the ED population, e.g. we kept the question "Do you feel welcome at the hospital?" but eliminated the question "Was it easy to reach someone on the phone if you had a question?" from analyses.Each scale item was scored as a 0 (most disagreement), ½ (neutral), or 1 (agreement), resulting in a scale score ranging from 0-5; higher scores were considered more favorable. The average score for the modified scale was calculated and multiplied by 20 to provide the overall score out of 100.

Recruitment status

COMPLETED

Study phase

NA

Target enrollment

749 participants

Primary outcome timeframe

Through study completion (approximately 1 year)

Results posted on

2018-11-23

Participant Flow

Participant milestones

Participant milestones
Measure
Mode 0
Patients who were not asked their SO/GI
Mode 1
Patients who were verbally asked by a nurse their SO/GI
Mode 2
Patients whose SO/GI was collected non-verbally on a form
Overall Study
STARTED
209
342
198
Overall Study
COMPLETED
209
342
198
Overall Study
NOT COMPLETED
0
0
0

Reasons for withdrawal

Withdrawal data not reported

Baseline Characteristics

Patient Centered Methods to Collect Sexual Orientation and Gender Identity Status in the ED

Baseline characteristics by cohort

Baseline characteristics by cohort
Measure
Mode 0
n=209 Participants
Patients who were not asked their SO/GI
Mode 1
n=342 Participants
Patients who were verbally asked by a nurse their SO/GI
Mode 2
n=198 Participants
Patients whose SO/GI was collected non-verbally on a form
Total
n=749 Participants
Total of all reporting groups
Age, Customized
Age
48 years
STANDARD_DEVIATION 17.2 • n=39 Participants
38.5 years
STANDARD_DEVIATION 13.5 • n=41 Participants
33 years
STANDARD_DEVIATION 12.3 • n=35 Participants
39.3 years
STANDARD_DEVIATION 15.2 • n=31 Participants
Sex/Gender, Customized
Male
97 Participants
n=39 Participants
75 Participants
n=41 Participants
32 Participants
n=35 Participants
204 Participants
n=31 Participants
Sex/Gender, Customized
Female
107 Participants
n=39 Participants
149 Participants
n=41 Participants
85 Participants
n=35 Participants
341 Participants
n=31 Participants
Sex/Gender, Customized
Transgender Male to Female
0 Participants
n=39 Participants
1 Participants
n=41 Participants
1 Participants
n=35 Participants
2 Participants
n=31 Participants
Sex/Gender, Customized
Transgender Female to Male
0 Participants
n=39 Participants
3 Participants
n=41 Participants
2 Participants
n=35 Participants
5 Participants
n=31 Participants
Sex/Gender, Customized
Queer/Genderqueer
0 Participants
n=39 Participants
0 Participants
n=41 Participants
1 Participants
n=35 Participants
1 Participants
n=31 Participants
Sex/Gender, Customized
Questioning/Unsure
0 Participants
n=39 Participants
0 Participants
n=41 Participants
1 Participants
n=35 Participants
1 Participants
n=31 Participants
Sex/Gender, Customized
Declined to State
0 Participants
n=39 Participants
0 Participants
n=41 Participants
0 Participants
n=35 Participants
0 Participants
n=31 Participants
Sex/Gender, Customized
Other
0 Participants
n=39 Participants
0 Participants
n=41 Participants
0 Participants
n=35 Participants
0 Participants
n=31 Participants
Sex/Gender, Customized
Unavailable/Not Asked
5 Participants
n=39 Participants
114 Participants
n=41 Participants
74 Participants
n=35 Participants
193 Participants
n=31 Participants
Race/Ethnicity, Customized
White
69 Participants
n=39 Participants
123 Participants
n=41 Participants
77 Participants
n=35 Participants
269 Participants
n=31 Participants
Race/Ethnicity, Customized
Black
78 Participants
n=39 Participants
178 Participants
n=41 Participants
85 Participants
n=35 Participants
341 Participants
n=31 Participants
Race/Ethnicity, Customized
Asian
4 Participants
n=39 Participants
3 Participants
n=41 Participants
2 Participants
n=35 Participants
9 Participants
n=31 Participants
Race/Ethnicity, Customized
American Indian
0 Participants
n=39 Participants
1 Participants
n=41 Participants
3 Participants
n=35 Participants
4 Participants
n=31 Participants
Race/Ethnicity, Customized
Native Hawaiian
0 Participants
n=39 Participants
0 Participants
n=41 Participants
1 Participants
n=35 Participants
1 Participants
n=31 Participants
Race/Ethnicity, Customized
Hispanic
17 Participants
n=39 Participants
30 Participants
n=41 Participants
25 Participants
n=35 Participants
72 Participants
n=31 Participants
Race/Ethnicity, Customized
Other
3 Participants
n=39 Participants
4 Participants
n=41 Participants
4 Participants
n=35 Participants
11 Participants
n=31 Participants
Race/Ethnicity, Customized
Unknown
3 Participants
n=39 Participants
2 Participants
n=41 Participants
0 Participants
n=35 Participants
5 Participants
n=31 Participants
Race/Ethnicity, Customized
Declined
1 Participants
n=39 Participants
1 Participants
n=41 Participants
1 Participants
n=35 Participants
3 Participants
n=31 Participants
Race/Ethnicity, Customized
Missing
34 Participants
n=39 Participants
0 Participants
n=41 Participants
0 Participants
n=35 Participants
34 Participants
n=31 Participants

PRIMARY outcome

Timeframe: Through study completion (approximately 1 year)

Population: Patients who were not asked SO/GI or who provided their SO/GI in the ED via verbal or nonverbal collection and provided complete data on the patient outcome survey

The primary outcome was patient satisfaction as measured by a modified Communication Climate Assessment Toolkit (CCAT) patient survey, an assessment of attitudes towards organizational climate and provider/patient communication.The CCAT is reliable, validated in geographically and ethnically diverse health care organizations, and accurately predicts patient-reported quality and trust. Containing 5/7 items from the full CCAT, our pre-specified modified scale included only questions that were applicable to the ED population, e.g. we kept the question "Do you feel welcome at the hospital?" but eliminated the question "Was it easy to reach someone on the phone if you had a question?" from analyses.Each scale item was scored as a 0 (most disagreement), ½ (neutral), or 1 (agreement), resulting in a scale score ranging from 0-5; higher scores were considered more favorable. The average score for the modified scale was calculated and multiplied by 20 to provide the overall score out of 100.

Outcome measures

Outcome measures
Measure
Mode 0
n=209 Participants
Patients who were not asked their SO/GI
Mode 1
n=342 Participants
Patients who were verbally asked by a nurse their SO/GI
Mode 2
n=198 Participants
Patients whose SO/GI was collected non-verbally on a form
Communication Climate Assessment Toolkit Questionnaire (Patient)
92.78 Score
Standard Deviation 18.05
91.32 Score
Standard Deviation 18.52
94.14 Score
Standard Deviation 13.44

SECONDARY outcome

Timeframe: Through study completion (approximately 1 year)

Population: Nurses and registrars who completed staff outcome surveys

Measures responses to the staff survey question, "Did you experience difficulty collecting sexual orientation data from patients?"

Outcome measures

Outcome measures
Measure
Mode 0
n=41 Participants
Patients who were not asked their SO/GI
Mode 1
n=38 Participants
Patients who were verbally asked by a nurse their SO/GI
Mode 2
Patients whose SO/GI was collected non-verbally on a form
Staff-reported Outcomes Measure Questionnaire
Never/rarely
11 Participants
14 Participants
Staff-reported Outcomes Measure Questionnaire
Sometimes
16 Participants
14 Participants
Staff-reported Outcomes Measure Questionnaire
Usually/Always
7 Participants
8 Participants
Staff-reported Outcomes Measure Questionnaire
Other
6 Participants
2 Participants
Staff-reported Outcomes Measure Questionnaire
Decline to answer
1 Participants
0 Participants

SECONDARY outcome

Timeframe: Through study completion (approximately 1 year)

Population: All adult patients who were seen in the ED during the intervention periods

Measures the proportion of all adult emergency department patients from whom SO/GI was collected during the study period

Outcome measures

Outcome measures
Measure
Mode 0
n=342 Participants
Patients who were not asked their SO/GI
Mode 1
n=198 Participants
Patients who were verbally asked by a nurse their SO/GI
Mode 2
Patients whose SO/GI was collected non-verbally on a form
Proportion of Patients Reporting SO/GI
228 Participants
132 Participants

Adverse Events

Mode 0

Serious events: 0 serious events
Other events: 0 other events
Deaths: 0 deaths

Mode 1

Serious events: 0 serious events
Other events: 0 other events
Deaths: 0 deaths

Mode 2

Serious events: 0 serious events
Other events: 0 other events
Deaths: 0 deaths

Serious adverse events

Adverse event data not reported

Other adverse events

Adverse event data not reported

Additional Information

Dr. Adil H. Haider

Brigham and Women's Hospital

Phone: 617-525-9280

Results disclosure agreements

  • Principal investigator is a sponsor employee
  • Publication restrictions are in place