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Patients Treated for Chronic Granulomatous Disease (CGD) Since 1995

NCT02082353 · Status: UNKNOWN · Type: OBSERVATIONAL · Enrollment: 1480

Last updated 2021-09-02

No results posted yet for this study

Summary

Chronic granulomatous disease (CGD) is an inherited immune system abnormality in which bone marrow transplantation (BMT) has been shown to be curative. However the risks of transplantation are high and not all patients with CGD may need to undergo this high risk procedure. This study will determine the long term medical condition and daily functioning of participants with CGD after a transplant and if possible, compare these results to participants who do not undergo a transplant.

Conditions

  • Granulomatous Disease, Chronic

Sponsors & Collaborators

  • Rare Diseases Clinical Research Network

    collaborator NETWORK

  • Primary Immune Deficiency Treatment Consortium (PIDTC)

    collaborator OTHER

  • National Institute of Allergy and Infectious Diseases (NIAID)

    lead NIH

Principal Investigators

  • Jennifer M. Puck, MD · University of California, San Francisco

  • Donald B. Kohn, MD · University of California, Los Angeles

Eligibility

Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2014-06-30
Primary Completion
2021-11-30
Completion
2021-11-30

Countries

  • United States
  • Canada

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT02082353 on ClinicalTrials.gov