Trial Outcomes & Findings for Safety of Simvastatin in LAM and TSC (NCT NCT02061397)

NCT ID: NCT02061397

Last Updated: 2020-08-25

Results Overview

Safety is a primary outcome measure which will be assessed by any major changes or deterioration in patient health.

Recruitment status

COMPLETED

Study phase

PHASE1/PHASE2

Target enrollment

10 participants

Primary outcome timeframe

5 months

Results posted on

2020-08-25

Participant Flow

Participant milestones

Participant milestones
Measure
Single Simvastatin Treatment Arm
Simvastatin 20 mg oral daily for 2 months; if tolerated, followed by simvastatin 40 mg oral daily for 2 months Simvastatin: Eligible patients will be assigned to receive 20 mg of simvastatin once daily for a period of two months. If tolerated, the dosage of simvastatin will be advanced to 40 mg once daily in months 3 and 4.
Simvastatin 20 mg Oral Daily for 2 Month
STARTED
10
Simvastatin 20 mg Oral Daily for 2 Month
COMPLETED
10
Simvastatin 20 mg Oral Daily for 2 Month
NOT COMPLETED
0
Simvastatin 40 mg Oral Daily for 2 Month
STARTED
10
Simvastatin 40 mg Oral Daily for 2 Month
COMPLETED
10
Simvastatin 40 mg Oral Daily for 2 Month
NOT COMPLETED
0

Reasons for withdrawal

Withdrawal data not reported

Baseline Characteristics

Safety of Simvastatin in LAM and TSC

Baseline characteristics by cohort

Baseline characteristics by cohort
Measure
Single Simvastatin Treatment Arm
n=10 Participants
Simvastatin 20 mg oral daily for 2 months; if tolerated, followed by simvastatin 40 mg oral daily for 2 months Simvastatin: Eligible patients will be assigned to receive 20 mg of simvastatin once daily for a period of two months. If tolerated, the dosage of simvastatin will be advanced to 40 mg once daily in months 3 and 4.
Age, Continuous
50.4 years
STANDARD_DEVIATION 9.5 • n=99 Participants
Sex: Female, Male
Female
10 Participants
n=99 Participants
Sex: Female, Male
Male
0 Participants
n=99 Participants
Race (NIH/OMB)
American Indian or Alaska Native
0 Participants
n=99 Participants
Race (NIH/OMB)
Asian
0 Participants
n=99 Participants
Race (NIH/OMB)
Native Hawaiian or Other Pacific Islander
0 Participants
n=99 Participants
Race (NIH/OMB)
Black or African American
0 Participants
n=99 Participants
Race (NIH/OMB)
White
10 Participants
n=99 Participants
Race (NIH/OMB)
More than one race
0 Participants
n=99 Participants
Race (NIH/OMB)
Unknown or Not Reported
0 Participants
n=99 Participants
Region of Enrollment
United States
10 participants
n=99 Participants
Rate of change in FEV1
68.7 %
STANDARD_DEVIATION 23.8 • n=99 Participants

PRIMARY outcome

Timeframe: 5 months

Safety is a primary outcome measure which will be assessed by any major changes or deterioration in patient health.

Outcome measures

Outcome measures
Measure
Single Simvastatin Treatment Arm
n=10 Participants
Simvastatin 20 mg oral daily for 2 months; if tolerated, followed by simvastatin 40 mg oral daily for 2 months Simvastatin: Eligible patients will be assigned to receive 20 mg of simvastatin once daily for a period of two months. If tolerated, the dosage of simvastatin will be advanced to 40 mg once daily in months 3 and 4.
Safety of Simvastatin in the Treatment of LAM-S and LAM-TS Patients
0 participants

SECONDARY outcome

Timeframe: 5 months

Lung function will be measured by FEV1: forced expiratory volume in 1s mean and calculated as % predicted +\_ SD (standard deviation).

Outcome measures

Outcome measures
Measure
Single Simvastatin Treatment Arm
n=10 Participants
Simvastatin 20 mg oral daily for 2 months; if tolerated, followed by simvastatin 40 mg oral daily for 2 months Simvastatin: Eligible patients will be assigned to receive 20 mg of simvastatin once daily for a period of two months. If tolerated, the dosage of simvastatin will be advanced to 40 mg once daily in months 3 and 4.
Percent Predicted FEV1
-2.9 percent predicted FEV1
Standard Deviation 3.7

Adverse Events

Single Simvastatin Treatment Arm

Serious events: 0 serious events
Other events: 3 other events
Deaths: 0 deaths

Serious adverse events

Adverse event data not reported

Other adverse events

Other adverse events
Measure
Single Simvastatin Treatment Arm
n=10 participants at risk
Simvastatin 20 mg oral daily for 2 months; if tolerated, followed by simvastatin 40 mg oral daily for 2 months Simvastatin: Eligible patients will be assigned to receive 20 mg of simvastatin once daily for a period of two months. If tolerated, the dosage of simvastatin will be advanced to 40 mg once daily in months 3 and 4.
Cardiac disorders
Tachycardia
10.0%
1/10 • Number of events 1 • 5 months
Gastrointestinal disorders
Diarrhea
10.0%
1/10 • Number of events 1 • 5 months
Blood and lymphatic system disorders
Peripheral adema
10.0%
1/10 • Number of events 4 • 5 months

Additional Information

Dr. Vera Krymskaya

University of Pennsylvania

Phone: 215-573-9861

Results disclosure agreements

  • Principal investigator is a sponsor employee
  • Publication restrictions are in place